Any advice from someone who has been through similar would be much appreciated as I feel I could go mad.
I don't even care much now what the diagnosis is, I just want, a DIAGNOSIS. Actually that sounds flippant to those that have been diagnosed with some b***d illness, sorry. But if you've been there you'll probably know.
To keep it as simple as possible and not to bore you:
June this year I developed a gnawing pain in my left side/flank/under rib area. Saw GP, she had no idea, said to leave it and see. Waited 3 weeks for a bloods appointment, all clear.
About 2 months later I saw another GP as the pain was stronger and more ongoing. He again had no idea, mumbled about IBS as I now had intermittent constipation coupled with times of going A LOT. Had bloods which took 2 weeks just for an appointment, so adding to frustration. They were clear.
Another month later, another appointment, another GP. Same bowel issues, now constant, pain non stop, HUGE rebound tenderness but he could find nothing specific. Burning and gnawing in my left side/rib area, intermittent stabbing pains. Wanted bloods, no appointment so went to walk in and sat for 3 hours in miserable pain. Also stool sample. No results given on these as I now lost patience as when I phoned for a follow up appointment and results as requested by GP, it was a 3 week wait simply for a telephone appointment..
So.… asked for a private referral as I have insurance plus a lovely private hospital right in my village where I used to work.
Unfortunately it was a 2 week wait to see the chap I was referred to but I was just glad it was going forward, I now had relentless pain, never got any sleep, intermittent nausea, felt like I had swallowed a football that was lodged under my ribs, and constantly need to poop, albeit each time either copious amounts of thin very small chipolata creations with liquid or just one tiny very thin chipolata Stabbing pains that make me catch my breath that shoot around my back.
Before I could see my consultant, one day my husband saw me in so much pain and feeling lousy we went to an urgent care clinic. A medic performed a procedure on me, called it Murphies and I had a positive sign... I could have lamped him!! and frog marched me to general surgery, where they confirmed my suspicions, it may have had me hit the ceiling with lots of expletives, but he was in the idle to left side. So not Murphies but of course it hurt as it is where my pain is.
And 2 weeks again and I had a colonoscopy. So far the feedback I got from the surgeon was, from what I remember as it took a good long 48 hours for the sedation to fully wear off..... no tumours, polyps, crohns, colitis, diverticulitus etc. He did inject an internal haemmoroid but said it had no relation, and indeed, the bowel issues are the same. So what is the change in size if no tumour? Could it be outside pressing against? I also remember stirring during the procedure and crying out in agony as they hit the spot all the pain comes from, I remember the reassurance, but he says I was fine. Is he just trying to help as the amnesia effect is wanted for a reason. But for me it reaffirms the pain. Says he'll be in touch. How long does it take? I have no idea. Do they re visit the pics/videos later?
Sorry, I'm rambling but LAST. During my pre procedure run through, I discovered I've lost a stone. I've kept answering no to this question as although my ribs are now bony, my clothes fitted, but indeed a whole stone in 5 months. Last night I was in so much pain I got zero sleep. I'm snappy and keep crying I am just so frustrated. I have no idea when/if I hear back for the next step/scan idea. It's all just too slow.
I'm turning into a pathetic mess.
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General health
Any, really ANY input appreciated..... going round in circles with pain, appointments, waiting. And all the while in more and more pain. Stomch/Pancreatic/Splenic Cancer??
48 replies
Dunkling · 20/11/2018 11:07
OP posts:
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