What does this sound like to you? Re numbness/ weird body stuff going on

(38 Posts)
Kenworthington Wed 25-Jul-18 17:37:33

I should say I am prob a bit of a health anxiety person but this is a real thing with real symptoms. I am trying to not talk to anyone in rl about it though I have voiced some concerns to share.
I have already been to the gp , to be honest I’m quite worried but I’m trying not to voice it irl.
Last year I noticed my heels were numb. No pain. Just numb. Went to gp, gp said oh that’s weird. Had a Doppler thing done on legs to check circulation. Came back fine. Didn’t Persue it.
Fast forward to May this year- heels remain numb, now I also have numb little toes. This has been joined by tingling/ numbness in fingertips, also running down the side of little fingers onto side of hand. And a faint tingling of lips is ow happpening too. It’s All the time. It doesn’t stop and start. I can feel. It’s not completely completely numb. More altered sensation, like when you’ve been anaesthetised. And are just starting to get the feeling back iyswim. No other real symptoms as such although I would say that I have some brain fog/confusion that comes and goes, a bit like the start of a migraine. Very occasionally I get this thing when I’m walking where my legs sort of ‘collapse’. I am often extremely fatigued by mid afternoon/evening.
Went to see a different doctor. He is sending me to see. Neurologist. No idea how long wait will be or what they will be looking for. I have blood being taken on monday. I think this maybe a long drawn out thing with no real outcome. I am really scared it’s gling to be a degenerative condition. Simply because it’s already getting worse. And the doctors are puzzled by it.
I am 42, a bit overweight, otherwise healthy. Any ideas???

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RabCNesbitt Wed 25-Jul-18 18:07:31

Must be a worrying time for you.

Im afraid that this is how my fibromyalgia startedshock fatigue, brainfog, tingling in face and scalp, sunburnt feeling patches of skin, dizziness, numb areas

I was investigated for MS and do have some abnormalities on brain scan but was told to watch and wait.

I also have vitamin B12 deficiency which has been treated for years, is this something you have been tested for? It can cause these symptoms

magbob Wed 25-Jul-18 18:12:31

I had spookily similar symptoms and had an MRI which eliminated anything awful . I was diagnosed with migraines and I now take a v low dose of amitriptyline which has eased virtually all of the symptoms. I hope this helps. I was extremely worried with the left side of my body feeling numb and tingly for months. I feel so much better and the tablet also helps me to sleep, I was only sleeping for 4 ish hours each night previously. I really hope you get a quick diagnosis and feel better x

Justyou Wed 25-Jul-18 18:24:21

Hiya, I have ms and it did start like that I’m sorry to say but I’m a few years from diagnosis and am doing great.
If it is that (hopefully not) there are amazing medications and all I ever hear when people find out is shock as they would never have known that I had it.
There are so many conditions which it could be so try not to worry but I just wanted to let you know that even if it was something like ms you can still have a great life - there are just extra challenges on the way!
Feel free to pm me if you want to know anything else.

ImmortalityMyDarlings Wed 25-Jul-18 18:29:50

It’s really good you’re doing something about it - that health anxiety does have a useful purpose sometimes. Blood tests will help too, as they could show signs of vitamin deficiencies for instance. Hang in there!

Kenworthington Wed 25-Jul-18 18:30:12

Thank you for all your replies

I have had migraines for years and years- always with aura- rarely with any pain

I’m not in any pain now either

Vit b12 deficiency? Now that’s interesting. No I haven’t had any tests yet. Is that something that might be tested for when they do my bloods I wonder?

@Justyou It’s ms that I’m worried it might be. For no other reason other than the symptoms seem to fit. What tests did they do to diagnose you?

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Justfred Wed 25-Jul-18 18:31:32

Possibly Alice in Wonderland Syndrome?

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Shockers Wed 25-Jul-18 18:33:29

Is that a real thing?

esk1mo Wed 25-Jul-18 18:34:26

i’ve had this and it was due to anaemia. it got alot worse when i started worrying about it, i think being hyperaware made me focus on every little feeling.

b12 deficiency could also be the causw

Kenworthington Wed 25-Jul-18 18:34:45

Eh? That’s not a thing. Is it? What is it?!

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Shockers Wed 25-Jul-18 18:34:56

Just googled it- apparently it is!!

MyRelationshipIsWeird Wed 25-Jul-18 18:34:59

I came on to say B12 too. I get numb toes, numb bum and also weird orgasms (dull ache rather than pleasure!) when my B12 is low. I also get really tired and breathless.

Definitely worth a test. Hope you sort it soon.

Kenworthington Wed 25-Jul-18 18:35:29

Oh that’s interested @esk1mo

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Kenworthington Wed 25-Jul-18 18:36:01

Off to google b12 deficiency....

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Shockers Wed 25-Jul-18 18:37:20

I’m following this with interest as I have very similar symptoms. Also very quivery inside, but no visible tremors.

AtLastAPlan Wed 25-Jul-18 18:37:22

I have fibromyalgia and have the exact same sensations in parts of my feet. It's part and parcel of the condition. I think it's referred to as peripheral neuropathy. It feels worse when my feet are bare, so even in this weather I don't wear sandals, just trainers.

Kenworthington Wed 25-Jul-18 18:38:11

Oh. Interesting. Some of those symptoms match. Mostly not. But some do. Illl check with the nurse on Monday that it’s being checked in my blood test

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SinkGirl Wed 25-Jul-18 18:38:15

Make sure they check B12, folate, vitamin D and thyroid. I have similar issues (crawling sensation on feet, burning in feet and legs, numb section across my back). It has improved a little now I’m taking vit D as my level was incredibly low.

Kenworthington Wed 25-Jul-18 18:38:50

Don’t you get pain with fibromyalgia?

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Kenworthington Wed 25-Jul-18 18:40:13

This is all really helpful thank you

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Kenworthington Wed 25-Jul-18 18:40:45

I also don’t feel like such a raging hypochondriac now 😬

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RabCNesbitt Wed 25-Jul-18 18:42:04

I didnt get pain at first no, it presented with neurological symptoms and aching legs, lack of energy

KellyMarieTunstall2 Wed 25-Jul-18 18:43:09

Vitb12 deficiency. I had numbness and tingling in my hands feet and face. I was worried it was ms or worse but it was low b12. Try not to worry.

RueDeWakening Wed 25-Jul-18 18:46:03

I have ms which started with similar symptoms. I'm 10 years post diagnosis though and have only had one relapse since. I take tecfidera for it.

I have chronically low B12 and vit D, which is linked, and take supplements for those, both otc though the vit D could be prescribed (I buy the mouth spray one off Amazon instead).

Justyou Wed 25-Jul-18 18:49:38

I had a ct scan which showed a shadow on my brain which terrified me then an mri and with the symptoms got diagnosed.

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