Here we go brace yourself this is my story.... on good Friday in 2017 I had the worst anaphylaxis you could imagine. I was in recuss for 19 hrs in a life threatening position. From this spiralled a chain of admissions into hospital. 17 to be precise my kids have seen me fitting fainting slurred speech etc and carted off in am ambulance numerous occasions. Now I’ve been fobbed off sent home, I’ve cried and screamed at Drs ( but that’s another story) I had no tests until July when I was rushed into hospital from fitting and losing speech and heart rate over 200 to be scoped down my throat and told the damage from the anaphylaxis was causing my vocal chords to close up and that’s why my speech is impaired etc etc.
Well cut a long laborious story short and my I’ll health still progressing we decided to go private to see a neurologist, who may I add is brilliant he booked me in for MRI head spine and neck Ct scan head and tummy, oxford bloods and eeg I am just about to have nerve conductor tests next week and if they are all clear then my diagnosis is M.E
These are my symptoms
Pain in left side of neck down into shoulder and spine
Problems with short term memory
Loss of speech
Extreme exhaustion when pushing myself too hard
Clonus although that’s settled
Fitting that’s also settled
Trembling sometimes in fingers
Struggle to get up after kneeling
Dizziness and weakness
Mood swings
Loss of sex drive
Snappy
Confused
So if anyone out there can offer any help or advice it would be greatly greatly appreciated
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General health
Well it seems my diagnosis is M.E
8 replies
DebbieP123 · 12/03/2018 20:36
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