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Really need a GP’s opinion on this! Pleeeease! *** PIC ATTACHED ***

14 replies

HouseOfMinnie · 30/11/2017 20:02

I have Chronic Idiopathic Urticaria with Angioedema and it’s quite severe. I’m having a flare up and yesterday morning woke up with these swellings on my forehead. They have now massively reduced in size since then but are still there a little. Is this likely to be connected to the Urticaria/angioedema or would you think it’s unrelated? Please help.

Really need a GP’s opinion on this! Pleeeease! *** PIC ATTACHED ***
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HouseOfMinnie · 30/11/2017 20:03

Doctors appointment booked but can’t see GP until next week.

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HouseOfMinnie · 30/11/2017 21:15

???

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HouseOfMinnie · 30/11/2017 21:58

If anyone has any knowledge on this, please help. I’m literally at breaking point with this now. I’ve suffered for over 20 years and it just gets worse and worse.

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claraschu · 30/11/2017 22:01

Bumping for you, but it sounds like you need to see a doctor tomorrow Sad.
(Sorry I am not a doctor, so can't help.)

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Hulder · 30/11/2017 22:04

As I've said on your previous posts, you need to be managed by a specialist immunologist not your GP. Ask for a referral.

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HouseOfMinnie · 30/11/2017 22:05

I saw a doctor 2 days ago about my current flare up. I’ve had bloods done etc. I just hoped someone on here may have some medical knowledge and could hopefully reassure me that this can happen with Urticaria/angioedema. Thanks for the bump clara

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HouseOfMinnie · 30/11/2017 22:06

I’ve been referred to an allergy clinic (one of the best aoparently), but I haven’t got my appointment through yet.

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Whisky2014 · 30/11/2017 22:10

My partner has hereditary angioedema and I've seen his hands and feet swell up. I showed him your pic and he said he didn't know but to go to a dr. I think it could be related. Do you take anything? Partner is prescribed danazol.

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Hulder · 30/11/2017 22:13

So glad you have been referred - at last!

And yes, you can have bumps anywhere.

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HouseOfMinnie · 30/11/2017 22:17

Thanks for the support hulder. I know I should feel positive now that I have the referral but I just feel like giving up. It’s a huge blight on my life and to have been told it’s most likely I’ll always have this and it’ll likely get worse is just extremely depressing. I know there are many people who are worse off so I feel very selfish saying that and I do have loads to be grateful for but I’m just struggling to move forward while it feels like this is dragging me back Sad

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Hulder · 30/11/2017 22:50

There is a difference between always having a condition and always having it but never having had the right treatment.

If you have never been to immunology or dermatology presumably you've just had antihistamines and not much else.

Although I don't know much about it, even the NHS Choices site shows there is more available than that. I know when I had chronic urticaria I got so much out of seeing a specialist that my GP couldn't have done, and mine was way milder than yours.

I really have my fingers crossed for you.

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Ollivander84 · 02/12/2017 02:35

Hopefully the specialist can help. Handhold here, I have chronic cholinergic urticaria (20 years now) and dermographism, it's been one of the most frustrating things I have had

I saw an urticaria specialist who was really good at Salford hospital and they did loads of tests and tried different meds etc at a much higher dosage than the GP did

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Aleemas · 09/04/2021 14:29

Did you get help?

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Aleemas · 09/04/2021 14:31

@HouseOfMinnie

I have Chronic Idiopathic Urticaria with Angioedema and it’s quite severe. I’m having a flare up and yesterday morning woke up with these swellings on my forehead. They have now massively reduced in size since then but are still there a little. Is this likely to be connected to the Urticaria/angioedema or would you think it’s unrelated? Please help.

Did you get help. I'm having the same thing over a few months now. Currently doing test. But tired of different medications
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