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Chronic calcified hematoma on brain. Anyone got experience of this?

(2 Posts)
borninastorm Thu 19-Oct-17 20:32:58

DD, 18, recently had a contrast MRI and today was told she has a small chronic calcified hematoma (blood clot) in her brain.

Does anyone have any experience of this? And know what the treatment might be? There's not a lot online about it and all I can see is that it'll likely mean brain surgery.

The backstory is that DD had a subdural hematoma as a baby, she had three brain surgeries and successfully survived and thrived. She's just started uni. She was diagnosed with Ehlers Danlos Syndrome III a few years ago.

About a year ago she started having neurological symptoms including seizures, numbness down one side, cognitive impairment, confusion and visual disturbances. She was rushed to hospital in March this year where a CT scan showed something perhaps another subdural hematoma but as they weren't sure they sent the scan to Kings College London and they said it was probably scar tissue from the previous surgeries and she was sent home!

She has seen a specialist neurologist in London but he specialises in EDS and functional epilepsy and she's been on the waiting list for investigations since June and probably won't be seen until next year. Which is why our GP ordered her an emergency contrast MRI.

I know it's a long shot but I'd really appreciate any experience anyone has of this DD is scared and there v little info out there.

borninastorm Fri 20-Oct-17 18:15:49

Bump, just in case...

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