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Pt 9 (Oct13) Any old prolapse! Uterus/womb prolapse, rectocele, cystocele, enterocele, urethrocele, incontinence, pelvic floor, anterior and posterior repair, TVT etc

(47 Posts)
rebelnotaslave Sun 10-Sep-17 11:15:14

Welcome to thread 9 (again - see below) of a long-running series of posts from ladies suffering from pelvic prolapses to support each other through the process of diagnosis, repair and recovery.

With apologies for confusion in thread numbers - an earlier thread was called part 7 but it was actually the 6th thread.

Here are the previous threads:

Thread 1
Thread 2
Thread 3
Thread 4
Thread 5
Thread 6
Thread 7
Thread 8

Info from BBC Health

What is a pelvic prolapse?

As the muscles, ligaments and supporting tissues in the pelvis become weaker, they are less able to hold in the organs of the pelvis such as the womb (uterus) or bladder.

Gravity pulls these organs down and, in the more severe cases, may appear through the entrance to the vagina.

A variety of problems can occur, depending on where the weakness lies and which organs are able to descend, but in every case there is some degree of prolapse of the vaginal wall, which begins to invert (rather like a sock turning inside out).
Prolapse of the womb or uterus is the most common prolapse, affecting as many as one in eight older women to some degree
Prolapse of the bladder, known as a cystocele, is less common.
Prolapse of the urethra (the tube that carries urine out of the bladder) is known as a urethrocele.
Prolapse of the intestines is quite rare, and known as an enterocele or rectocele.

Symptoms

Symptoms depend on which tissues descend, and how severe the prolapse is.

They may include:
A sense of heaviness or pressure in the pelvis.
The appearance of a bulge of tissue in the genital area, which can be quite alarming, and is often red and sore.
Urinary problems, such as having to urinate more frequently, feeling the need urgently, being incontinent (losing control of the bladder) or, conversely, being unable to pass urine when you need to.
Pain in the pelvis or lower back.
Sexual problems, including pain and decreased libido.
Constipation.
Vaginal discharge or bleeding.

Treatment and recovery

Once a prolapse has developed, surgery to fix the affected organs is usually the only way to cure it effectively.

However, another option is to use a device known as a vaginal ring pessary. This is rather like a contraceptive diaphragm or cervical cap. It's made of silicone or latex, and placed in the vagina to push back the prolapsed organs and hold them in place. Many women happily manage their prolapse this way.

I really hope it is ok with the original group that I've done this!

rebelnotaslave Sun 10-Sep-17 11:16:53

I messed up the links. Hang on...

CheckpointCharlie2 Sun 10-Sep-17 11:25:53

Hiya, can I ask a couple of questions?
I have a rectocele and cystocele, no issues with leaking but I can feel them all the time. Not protruding but not far off I don't think. It affects emptying my bladder now when it didn't really before so I think it's getting worse.
I last saw a gynaecologist a couple of years ago who said I would qualify for the op but having read up about the mesh, I absolutely don't want to risk being the one in ten who has the terrible complications and then has to live with pain and possibly disability for the rest of my life.

The gynae at the time said the ring was not suitable for me because of my age.
I just wondered what any other women have done in my situation? Is there an alternative to the mesh? Why can't I have a ring?

Any advice or info would be gratefully received!

rebelnotaslave Sun 10-Sep-17 11:29:41

There are alternatives to the mesh. My consultant said the mesh was really only for women who had significant stress incontinence.

My surgery was essentially pulling both the back and front vaginal wall back up to wear it is supposed to be and double stitching in place. No mesh involved.

You have a right on the NHS to choose your consultant. Have you looked into other specialists, what area are you in? I'm in Yorkshire and think my consultant has been wonderful do far.

CheckpointCharlie2 Sun 10-Sep-17 12:07:10

Oh blimey, that's good news, I think I need to look into who is around then in my area. Did you have a six week period off work? That would be crippling for us financially unless I can choose when I have it done (teacher).
Thanks v much for your info.

rebelnotaslave Sun 10-Sep-17 12:26:08

I'm in week 2,been signed off for 6 weeks.

Surely as a teacher you would be entitled to sick pay? I also work for a teaching union and used to be a teacher. If you've done 4 or more years in local authority schools you are entitled to 100 days full pay about 6 months and 100 days half pay.

CheckpointCharlie2 Sun 10-Sep-17 14:27:10

Oh wow I didn't know that either!
I think you might have made my day! I also need to do lots more investigating around my options, trip to the go to be referred I think.
Thanks v much smile you've given me a bit of hope that I don't have to live with this shitty thing forever.

Hope you are feeling well too and have a speedy recovery.

Whatcanido13 Mon 11-Sep-17 16:58:29

Hi! Has anyone on here at a urethrocele repaired alongside a cyctocele? Sorry tmi but my urethra has dropped into my vagina and I think this is what is causing the 'gaping ' or 'open' feeling I have. There's also a cystocele. Just from my research and looking through surgery options I understand how they can reinforce the vaginal walls to stop bladder sagging down but I just don't see how the urethrocele could be repaired! Any advice or tips welcome! Also any reccos for good urogyne in London area ?!

rebelnotaslave Mon 11-Sep-17 21:40:58

Just bumping for you.

LivininaBox Fri 06-Oct-17 21:15:45

Hello, I was so pleased to see this thread going again. When I first had my prolapses it seemed to have died out. I am currently trying to decide whether to go ahead with surgery for my prolapses - it would be a hysteropexy plus probably an anterior repair.

I asked about the mesh issue and was told the problems have occurred when mesh has been used to reinforce the vaginal wall or when it is put between the bladder and vagina. For my op, mesh would only be used to hoik up the uterus and attach to the spine. The anterior repair would just be with stitches, no mesh.

I'd be v grateful if anyone could share their experiences of having this op, did it work and what was recovery like?

Thank you

LivininaBox Sun 08-Oct-17 14:29:32

Quick bump ...

Shakey15000 Fri 13-Oct-17 22:14:31

Hi all

Would you all mind popping over to Site Stuff and go to this thread

www.mumsnet.com/Talk/site_stuff/3059452-MN-Can-we-please-support-highlight-this

I'm asking for folk to support/ask Mumsnet for a WebChat on Pelvic Organ Prolapse with the founder of APOPS (Association for Pelvic Organ Prolapse Support)
.

If you think it's a good idea could you post on the thread? Thanks

Mary0963 Sat 14-Oct-17 17:22:21

It is a fantastic idea...a subject that definitely needs more awareness - especially for NEW MOMS!!! You are susceptible to prolapse and you need information! The founder of APOPS would be a terrific speaker!
I posted on your thread and thank you @shakey15000

Mary0963 Sat 14-Oct-17 17:28:02

@livininaBox I have had two POP surgeries, but not with mesh (had I gone the mesh route I probably would have been better off). Most of the mesh problems are surgeon skill...so please make sure you vet your surgeon (should be a urogynecologist). Ask him/her if s/he has had any issues from his patients, how many of YOUR surgeries has he/she done. Visit APOPS website for great information...there is an article called Mesh Updates that would interest you. www.pelvicorganprolapsesupport.org Hopefully MN will support shakey15000 request! Then a lot more women will know about POP.

1966gettingold Tue 17-Oct-17 07:06:32

www.dailymail.co.uk/health/article-4986356/How-supermarket-mesh-bag-like-approved.html

the problem with mesh it can cause problems years later , it goes brittle and breaks off , and can cause autoimmune conditions .

Mrs Elneil said 20 years , it’s like watching a car accident in slow motion , plastic doesn’t belong in the vagina.

Microwaste Mon 23-Oct-17 06:41:21

Hello, I’ve just been diagnosed with a prolapse of bowel and bladder. And maybe a slight involvement of uterus as well. I have known for years really but only just got up the courage to do something about it. So I have seen the GP and have a referral to physio and a gynaecologist. The gp said that surgery is likely to be the recommended route.
What I’m worried about is the recovery - how to deal with 6 weeks unable to drive or do much?! I know it’s very early days to be concerned about this but I have to drive to take my kids to school at the moment, we live rurally so have no neighbours or public transport and no family nearby.

sadie9 Mon 23-Oct-17 12:27:21

Could they schedule it during the school holidays, or to overlap when schools are on a couple of weeks off. You will need to get some help with the school runs. Could another parent bring them home and you could get a taxi with them going in? You might be able to employ somebody local just to do the school runs for those days. There are online childminding websites where people advertise for school runs.
I had the surgery a couple of years ago, and I was extremely worried about all the arrangements as well. My husband got a week off and then he was able to arrange with work to leave and collect the kids and then go back in for another couple of hours.
Thing about the surgery is you want to give it a right good go to heal up properly so resting, especially the first 2 weeks is absolutely crucial.

Battyoldbat Mon 23-Oct-17 14:17:36

We could definitely overlap with some school holiday, but having 3 kids at home is not restful either! I will have to think about it, can’t really get another parent as they are at different schools and all finish at different times - the schools are all close by but it’s a bit much to ask people to hang around. Plus I don’t know many who could fit 3 kids in addition to their own in a car.
We could really do with a short-term au pair I suppose, does such a thing exist? Someone to do school runs, cooking, cleaning, washing etc for 6 weeks or for the rest of my life, sounds bliss!
My DH has just got a new high-pressure job so unsure what he’d be able to do.

WhereBeThatBlackbirdTo Tue 24-Oct-17 12:19:48

Sadly I find I have to join your thread sad

I'm 54, peri and just started on HRT. All was going well - flushes stopped, sleeping all night, much less grumpy - excellent!

But I woke up yesterday and realised I have a vaginal prolapse. Dammit - of all the things I thought I'd get, that was not on the list.

Sorry if TMI but we're all seemingly in the same situation. I can feel my cervix just inside my the entrance to my vagina - it feels like a tampon that's stuck. Again - dammit!!

I've seen my female GP who has given me Estriol (?) cream and a gynae physio referral.

My questions are what about my sex life? And would a Kegel8 machine help?

yearofthehorse Sat 04-Nov-17 17:34:10

Hello ladies, I 'm afraid I'm joining the party. Pre op on Monday and surgery for anterior and posterior repair and hysterectomy on Thursday. I've booked 6 weeks off work and am hoping this will be enough but this thread has been quite an eye opener.
6 kids and no problems at all until menopause hit me like a train at 46 and it's been downhill ever since. I have a pessary but that gives me gallons of foul discharge (has been tested, no infection) so at least I'll be losing that. It's scary stuff, just hope it works.

Worsethingshappenatsea Tue 07-Nov-17 17:56:28

Hi ladies.
I'm 43 had rectocele repair and TVT op on 11th September so am 8 weeks post op now. My first time posting on these threads but I lurked on them all pre-op and during recovery and found some really useful advice.
Seems to be successful so far, went back to work after 6 weeks on reduced hours at first but still very tired. Happy to answer any questions if I can help anyone considering either of these operations.

yearofthehorse Wed 08-Nov-17 13:57:51

Hello Worsethings, really glad things are going so well. I'm going in tomorrow and was told at preop to lift absolutely nothing for 3 months to allow scar tissue to form and hold everything together. I've warned my family and will be having an OT assessment before returning to work, so if need be, I'll take longer.
My biggest worry at the moment, (particularly after reading these threads) is the first poo..
I"m also not sure if I'll be having hysterectomy or not - the concern with this is that I have heard this can lead to further vault prolapse - but I won't know until after I've come round exactly what they've done. Does anyone know anything about this?

sadie9 Wed 08-Nov-17 14:44:34

Best of luck with it yearofthehorse. I had an anterior (bladder) prolapse repair 3 years ago. Don't know anything about getting the hysterectomy at the same time as I didn't get that done. The first poo wasn't as bad as I thought it would be. Think it was a few days after the op. I did the prune juice/prunes etc. Physio suggested pears and warm water first thing in the mornings. If you put your feet up when on the loo so your knees are a teeny bit higher than your bum. And you can clench and unclench your bum rather than straining. It might be less bad than you think.
I now can go a number of days/weeks without my 'down there' even entering my head. You will keep thinking it's back when it isn't a couple of times.
Also bring some loose leggings and/or a dress in with you as you won't want anything tight around your tummy coming out after it. You might get a fright when you first come home after it. I felt like an 85yr old lady shuffling into the loo etc and got a bit tearful. But each week sees a big improvement. Be patient and take your time. Go slow now to go fast later is the motto...

Worsethingshappenatsea Wed 08-Nov-17 16:59:38

Hope your op went ok today years flowers

I must admit did struggle a bit with the first poo but i suffer from Constipation which I am pretty sure contributed to the rectocele in first place . Try not to worry as I think a lot if it is psychological as your so worried about bursting stitches etc.
I second using the footstool whilst on the loo, deep breaths then blowing out as if blowing bubbles helped too and I held a wad of clean tissues / loo roll over perineum area aswell for support .
Because of previous constipation problems I was given movicol sachets to take home from hospital and I took one morning and night along with 40ml lactulose and am now down to one sachet a day and drinking loads of water.
My consultant told me if I felt the urge to go but nothing happening NEVER to strain and use glycerine suppositories which work in about half hour and I did use them couple of times and found they really helped things and were nowhere near as scary as sounded.
First 2 weeks you probably won't feel like doing much apart from lying on sofa or bed I found sitting quite uncomfortable at first and used a donut cushion i ordered from Amazon. I kept occupied by crocheting and downloaded loads of books on my kindle and watched loads of TV. From week 4 started feeling bit better everyday
My advice would be don't rush back to work as I went back after 6 weeks and with hindsight could have done with another couple of weeks as finding it quite tiring .

Shakey15000 Mon 13-Nov-17 17:30:22

Hi all

Just reposting this link for people to add support if they feel a webchat on Pelvic Organ Prolapse would be useful? If you could pop a post on the thread linked below that would be great.

www.mumsnet.com/Talk/site_stuff/3059452-MN-Can-we-please-support-highlight-this

It's a link to Site Stuff here (on MN) not spam, promise! I'm a prolapse veteran sad so my thoughts with you all. Just recovering from sphincter repair and rebuild of perineum. Prolapses to be addressed (again!) next year.

Many thanks!

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