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The big C

(22 Posts)
theunknownandscared Thu 22-Jun-17 10:41:55

We've recently found out that my twin brother has cancer.
We're 24 and i'm in total shock. It's a waiting game atm, literally, he's got a PET scan coming up to find out the grade etc. before he can start any treatment.
I just don't know what to do and i needed a little vent.

helzapoppin2 Thu 22-Jun-17 13:19:45

You poor love, that must be a huge shock for you and your brother.
I wish him all the best. Treatment is excellent these days, and he will get a treatment plan next. Just stay close, and help him through the next few days, weeks, months, and ask the doctors any questions you have. Let us know how he gets on.

WhatWouldLeslieKnopeDo Thu 22-Jun-17 21:16:11

Sorry to hear this. What type of cancer is it?

There's lots of support out there, including for family members.

I was 21 when I was first diagnosed and I was assigned a CLIC Sargent social worker within days of diagnosis.

His team may have already referred him, but if not see here. They offer support up to age 25. They're really great.

There's also Shine cancer support who have a Facebook group and various events.

It can be very lonely having cancer, especially if it's not a type common in young people. So he might find the Shine group helpful as there's lots of people who will know what he's going through. And unless it's a very rare cancer there will probably be someone there with the same one, or something similar! There's also a "plus one" group for partners, siblings etc. which you could join if you think it would help.

I hope he gets the best possible results from the PET scan flowers

1234hello Thu 22-Jun-17 22:43:43

So sorry to read this. Your thread title made me think of these guys..

www.elliesfriends.org/

People (patient and family) usually feel a bit better once a treatment plan is in place.

I really hope things turn out as well as they can do. Look after yourself and each other x

theunknownandscared Mon 26-Jun-17 15:57:07

not sure what happend to my response.
Thank you for your replies. I'm looking through the links now.
It's called synovial sarcoma. Apparently it's fairly rare.
Hoping to find out the results of the PET scan soon, the waiting is just horrible. I function alot better with plans

1234hello Tue 27-Jun-17 11:08:36

Thinking of you. flowers Have you heard of mindfulness? It can be very helpful for helping with allsorts of emotional matters, including your and your brother's situation.

If you have a local cancer help charity they often run wellness courses for patients aswell as carers/family members. Some include fun cookery courses etc as they recognise people benefit from taking control of their situation.

Best wishes, keep posting if it helps x

lanouvelleheloise Tue 27-Jun-17 11:12:45

So sorry this has happened. The waiting is absolute hell. It sounds reasonable and sensible on paper - 2 weeks for this, 2 weeks for that. When you are living it, it's the most inhuman, awful thing.

Love to you and your family. I hope you get good news soon.

1234hello Fri 30-Jun-17 20:17:00

How are you doing theunknown ? I hope your brother has a good oncology team and is/will be comfortable with the treatment plan.

flowers

TheFirstMrsDV Fri 30-Jun-17 20:22:00

teenage cancer trust

are excellent too. They work with teens up to 25

Augustbabyyeah Fri 30-Jun-17 20:25:46

It's just awful, having cancer or having a loved one with cancer. My best advice is to try and take one day at a time and to try and keep things normal. By that I mean keep busy and do as many normal things as you can. Your brother will appreciate you treating him normally as well.

Augustbabyyeah Fri 30-Jun-17 20:26:07

I hope that makes sense. x

mar33 Fri 30-Jun-17 20:38:13

Thinking of you. It's always so difficult waiting on results. Sarcomas are rare but the best people to speak to are at sarcoma.org.uk/. They are extremely helpful and will give you lots of very useful advice for you and your brother. It's important that he gets the correct treatment with sarcomas so please contact the charity they will advise you on the hospitals that specialise in dealing with this particular cancer. It's always a worry but hopefully there will be a plan in place soon. flowers

theunknownandscared Wed 05-Jul-17 15:39:54

hello lovely people.
So we had the consultant appointment yesterday, and we've had some good and bad news.
The cancer is stage 1 so only needs an operation however the operation is an amputation below the knee.
Thank you for all your kind words and support it's very helpful.

Roughlyroughrough Wed 05-Jul-17 15:52:01

Whilst that is good news, it's also really sad that your dear brother has to lose part of his leg. flowers

TheFirstMrsDV Wed 05-Jul-17 15:58:49

The bit about the stage one is very good news. Most cancers of this sort in young people are far more advanced at diagnosis.
I am sorry about the amputation. It all must be such a shock

Thedot90 Wed 05-Jul-17 16:03:14

Sad to hear about the diagnosis, but promising that they seem confident about curing it. How is he feeling about the amputation?
Can I ask what his symptoms were?
Wishing him and you all the best x

Frazzled2207 Wed 05-Jul-17 17:40:19

I'm sorry that is very rough news. How has he taken it? I'm surprised there isn't a non-amputation option

1234hello Wed 05-Jul-17 21:26:30

That is a huge relief that the cancer is only stage 1. This part really was the best possibly outcome you could have asked for, given a cancer diagnosis. Obviously the operation part is a tough blow , you must all be upset.The impact for your brother, mentally and physically, shouldn't be underestimated. I would encourage your brother to seek support on an ongoing basis for this.

All in all though, please try hard to be grateful that the cancer has been caught early and there is curative treatment.

WhatWouldLeslieKnopeDo Wed 05-Jul-17 21:34:04

Stage 1 is the best possible news. But the surgery must be very scary.

I often think cancer is a bit like that game Fortunately, unfortunately.

There was actually someone with a similar diagnosis/treatment featured in the recent CLIC Sargent No filter for cancer campaign. He's on their Facebook page here

WhatWouldLeslieKnopeDo Wed 05-Jul-17 21:34:35

Well, obviously best possible news is miracle cure. But stage 1 is the next best.

lanouvelleheloise Thu 06-Jul-17 09:28:57

Thinking of you and your family, and wishing your brother hope and strength. flowers

theunknownandscared Thu 06-Jul-17 14:34:22

my brother is actually taking it quite well he was so convinced it would be stage 4 that the thought of losing his leg as apposed to his life is a huge relief, and tbh he's right. I think my parents are finding it the hardest atm. Usually they can attempt limb salvaging surgery but due to how big and deep his tumor is they said they'd be no point because his foot would be useless and they'd end up leaving some of the tumor behind so this is the only option x

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