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Asherman's Syndrome

(9 Posts)
CornflakeHomunculus Thu 13-Apr-17 17:01:48

I've been officially diagnosed with Asherman's Syndrome today. I went into hospital for a second endometrial ablation only to be told when I came round that it had been impossible to perform because of the amount of adhesions blocking the way.

I've had no noticeable symptoms since my first ablation, which was done in May last year. It had improved things a little but not to a point I was happy with (hence going in for another) but I've had less pain than previously and there's clearly no issue with it obstructing my periods themselves.

The majority of information I'm finding online is geared towards treating it with a view to having children but I'm more interested in how it's dealt with when fertility isn't a concern.

I'll be seeing my consultant in a few weeks to discuss where we go from here but I just wondered if any MNetters have had experience of Asherman's, particularly either post-children or if you didn't want them.

I'm still a tad squiffy from the GA and morphine so be kind if I've missed any glaringly obvious sources of info grin

CornflakeHomunculus Thu 13-Apr-17 20:09:30

Bumping for the evening crowd smile

CornflakeHomunculus Fri 14-Apr-17 12:28:16

Another bump.

CornflakeHomunculus Fri 14-Apr-17 19:00:21

One last bump.

Dannygirl Fri 14-Apr-17 19:14:41

Sorry to hear this. There's a lovely poster on here called helenlouisey who has posted about this before (hope you don't mind me tagging you x) and I know there's a specialist at Queen Charlottes/Hammersmith hospital in London called Geoffrey Trew who is highly recommended for Ashermans. There are also some old threads on this topic it might be worth try searching on it to see who else has experience of it. Good luck x

MollyHuaCha Fri 14-Apr-17 19:45:20

My friend has this surgically treated successfully in a different European country. She already had two children and wanted a third. You need a really good specialist. Hope it works out well for you.

CornflakeHomunculus Fri 14-Apr-17 20:03:31

I have had a search though MN but run into the same issues as on the wider web; it's predominantly cases where people are seeking treatment with a view to being able to have children.

I don't want children and I'm struggling to find information about treating Asherman's when fertility isn't a concern, whether it needs treating at all if it's not causing problems, whether a hysterectomy is recommended at this point or just an option, etc.

I had the first ablation to help with horrendously heavy periods and the outcome wasn't satisfactory so I went in for a second which obviously couldn't be done. I'm now stuck with periods that are still pretty bad with seemingly no options other than to live with it or have a hysterectomy at 33 sad

Dannygirl Fri 14-Apr-17 20:26:29

What part of the country / world are you in? Would you be able / entitled to get a second opinion do you think? Mr Trew is a Gynaecologist and although he does work with women struggling to conceive he is a very well respected specialist in Ashermans so wondered if it might be worth trying to see him...

CornflakeHomunculus Fri 14-Apr-17 21:17:52

I'm about 200 miles away from London so getting there would be doable but potentially awkward.

It's certainly something to look into though, thank you.

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