I'm in a lot of pain at the moment, and tried googling but just confusing myself more and more.
I'm struggling and want to try keep this short, but basically I had a test for Lupus Anticoagulants as part of a pre-op routine test set. They retested at the hospital then referred me back to my GP. Who retested twice.
First time I've actually seen any doctor (just been nurses taking blood and receptionists calling to ask me to repeat), he said I should of have had lots more blood tests to check for lupus. Which he has now ordered, but won't be tested until end of the month (due to lack of appointments) and then wait for results.
I thought they were too separate things? And didn't relate at all, and it was just a poor naming coincidence? GP acted like they are one and the same, but the anticoagulant wasn't the only test they should have done. Am I missing something?
I'm fed up of being in pain. Can barely lift my arms today. I use a wheelchair, crutches or a stick depending on my level of pain in my back and legs, but today I couldn't cope with the weight of my coat on my shoulders. I thought I was getting better (op seems to of helped a lot but not a complete fix). Typing is also painful so I'm going to have to leave it there.
If it is lupus are there treatments that will allow my life to be more normal? I want an active life, I want to study, work, see family and friends etc. I'm fed up of being stuck in bed in pain. I thought I was getting better, and the joint and muscle pain was just from me doing more (after being stuck in bed for 9 months).
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Lupus Anticoagulant and actual Lupus?
10 replies
BloodWorries · 11/04/2017 09:57
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