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To think dd uti isn't really gone but nurse says it is. More wwyd?

(17 Posts)
Noodoodle Tue 14-Mar-17 10:17:48

To not drip feed, dd has long history of uti/kidney problems. Has caused scarring and function problems and she's under a consultant, has next appointment with them tomorrow coincidentally. Also has history of uti with little to no symptoms so consultant advice is any time dd has headache, high temp or any unexplained actual illness, get urine tested.

Last week she had a pain in her side that didn't go away from sunday night to monday morning but wasn't the "normal" pain, so took her to docs monday and they said it was a definite uti. She was then quite unwell (vomiting, dizzy, headache, side pain) so was off school for two days with that and had antibiotics until thursday.

Took her friday for urine dip to make sure all clear (as instructed by consultant) but there were no nurses to do it...over the weekend she was fine. Last night she had a headache and mini side pain, this morning the same. I took her first thing to gp's to have urine dip done and nurse said it's clear. I wanted to send her to school (have had to go to work now so dh was taking her) as she had paracetamol and nothing else wrong, nurse said clear so what good would keeping her home do, etc. Dh said she just looked increasingly unwell and neither of us are really sure the infection has gone due to the pains now so he's taken her home.

She has had back to back infections in the past and she genuinely loves school at the moment so I don't think she is putting it on, but what do I do now? It seems silly to take her for another urine dip later if this one was right, and the consultant will test tomorrow as routine, I just know it's so important for her to get treated asap with this and feel awful if we're wasting a day leaving her with it as these are the usual syptoms she has. Is it possible for an infections to cause symptoms but be undetectable in a urine sample? Sorry it's long!

Caenea Tue 14-Mar-17 10:24:10

Sorry, OP, no practical advice I'm afraid. If the test was clear this morning though it might be unrelated pain, or a hangover from it?

If she's not well enough for school, I'd just spend the day keeping a close eye and getting fluids into her as much as you can. If you have the consultant tomorrow though there doesn't seem much point on insisting on a second test. Might be worth asking HQ to shift this over to one of the medical/health boards though?

Noodoodle Tue 14-Mar-17 11:45:58

Thanks Caenea. Yes she's under instructions to drink as much water as possibe. I've asked for the move to children's health smile

MrsJayy Tue 14-Mar-17 11:51:16

Hiya I have lifelong kidney problems and i get random kidney pain like you said your dd has it is to do with function make sure she ups her fluids cranberry juice if she will drink it or lemon barley water it really is miserable poor Dd

Noodoodle Tue 14-Mar-17 12:41:18

MrsJayy do you mind me asking if it's anything to do with a duplex kidney? I have heard some have them their whole life without major incident. That's what's currently being investigated for dd (too slowly I believe but there you go). She's not had pain before that has turned out to be just pain because of function or something like that, it didn't even occur to me that was a possibility actually. Thank you - it is such a miserable thing to have problems with!

MrsJayy Tue 14-Mar-17 16:58:07

Yes i had a duplex kidney plus retention but i have also got spina bifida and i had a really dodgy kidney that i had removed when i was 27 , what age is she ?

MrsJayy Tue 14-Mar-17 17:00:31

Least she has her appointment soon

Noodoodle Tue 14-Mar-17 17:07:49

Oh what a coincidence! She's 11, I don't know about retention, just that there's scarring and at last years appointment they hadn't grown from the year before. She's been referred to a specialist/surgeon for anotherr opinion, which she was meant to see next month but it's been cancelled and no new appointment yet. It just seems such a slow process after having so many infections since she was about 5 I think. She's also not grown well in general so there are other tests I hope we'll discuss tomorrow to see what the issue is. But thank you for replying, infections are just so disruptive, it's awful when you can't do anything to help but wait.

MrsJayy Tue 14-Mar-17 17:13:08

Ah right that is why i askes I get kidney pain round about my period have done since i started no explanation urologist said he had never heard of it however all of my friends with kidney issues have the same .

pombal Tue 14-Mar-17 17:16:40

It's possible for the dipstick to be negative early on in the infection and also if the urine is very dilute. By early on I mean really early.

First thing in the morning sample is most accurate.

flutterby77 Tue 14-Mar-17 17:59:06

My daughter gets Utis and the GP dipstick test never shows an infection. I always have to insist it is sent off for proper analysis and for them to start her on abs immediately. I've become quite sensitive to early symptoms so we can get ahead of it. I'd go with your instinct and get her tested again with more abs in the meantime.

flutterby77 Tue 14-Mar-17 17:59:44

Don't be fobbed off with just a dipstick test.

Lweji Tue 14-Mar-17 18:02:53

It could be unrelated. My son has had a few not feeling well days this winter that I never quite put my finger on, although other days with a fever. And he's a boy who's very active and keen to go to school.

So, the test could be right.
But I'd want to check with the consultant if there weren't other issues.

Backingvocals Tue 14-Mar-17 18:05:38

DD has the same - also with kidney damage. I found when she was on antibiotics the diptest would always come back clear even with an infection that would reemerge the second she finished the antibiotics. Consultant ended up prescribing a six month low dose with d-mannose and cranberry tablets to try to clear it once and for all.

Caenea Wed 15-Mar-17 10:15:43

How did it go, OP?

Noodoodle Wed 15-Mar-17 15:48:49

Thanks all, lots of water being consumed!

They did dipstick test which showed +2 white blood cells so it's being sent off for culture. I think everything else was ok (that's all he mentioned from it) and dd is feeling fine today so consultant not too worried but he's going to chase up the specialist referral. He doesn't think further testing for other things is needed at the moment because she's grown 2 inches since last year even though the kidneys didn't grow. So just the paediatric urologist to see.

He said they will be better at determining if any "procedures" are needed, and he's booked her yearly scan (though that's not till September). But he's going to keep an eye on her progress until she gets seen by the specialist so she doesn't slip through the net unseen. He was a bit annoyed the gp didn't send her urine off for culture last week but that's done now. In the meantime to just carry on monitoring and treat any infections quickly. Dd got a hot chocolate from a coffee bar and they put heart swirls in the foam so she was super happy with that at least!

Noodoodle Wed 15-Mar-17 15:57:47

flutterby I know what you mean, it's a horrible thing to have learnt to recognise but you just know when it's not right, don't you?

Backingvocals we did try the low dose thing for a while, I think it was low dose trimethoprim. It just keeps coming back, they think possibly due to the duplex kidney so that's what they want to know more about. The scarring makes me feel awful. Scarred kidneys, pole defect (whatever that is when it's at home), duplex kidney, function loss - I try to feed her stuff as non processed as possible so they don't have to do as much work but that's not very "fun" when you're 11.

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