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Interstitial cystitis anyone else the same..

(5 Posts)
Jeanne51 Mon 06-Mar-17 22:38:52

I have Interstitial cystitis am taking elmiron and still in pain. Feeling fed up and scared. The next step botox injection into bladder and Last step removal of bladder. Anyone else been thru this??

Jeanne51 Mon 06-Mar-17 22:39:14


Ohyesiam Mon 06-Mar-17 23:37:24

No, but I'm really sorry you are going through th is.
Friends who have had long term cystitis and years of antibiotics have found a complete end to the cycle by taking a product called mannose D. I realise your situation is different, but look it up. You can get it on Amazon for less than £10.

Chocolate1985 Tue 07-Mar-17 22:08:53

My DM has this and orders Cystex Plus from America it is quite pricy but she swears by them . She has also stopped drinking caffeine as much . DM me if you want any info as she's suffered from this for several years .

user1484615313 Wed 08-Mar-17 17:32:15

what are your symptoms of IC?

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