For 3 months I've been really really ill with the same symptoms I had - lasting 4 to 6 months - 2 years ago but then recovered. It's the same profile exactly as last time and the same tests were done and the same conditions ruled out. I'm losing all faith in the medical profession and so am turning to MN wisdom as a last chance.
Here are my symptoms: It starts - each episode - with urgent need for diarrhoea in the middle of the night and severe localised lower left sided abdominal pain like a red hot spear in my side. This isn't like cramp or spasms or wind - just a sharp, hot 'infection'-like pain.
It goes along with incredibly bad flu-like symptoms - burning intense pain (not muscular but sort of inside the spine) at the base and top of my spine that's so bad I need to lie down, as it hurts to support my back, even sitting up. No respiratory issues though.
I'm icy cold and shivery but have no really high temperature but sometimes hot sweats along with the abdominal and spinal pain waking me from deep sleep in the night.
I feel extremely nauseous for about 5 weeks, lose a stone in weight, have a very bitter taste in my mouth, white tongue, mouth sores and herpes type sores on my lips. My eyes are too dry to wear contact lenses.
After about 7 weeks, the abdominal pain is less bad and now feels like a clearer, cleaner sharp needle type pain - no longer burning hot, infected feeling. Bowels seem more normal and sometimes even don't 'go' for a few days at a time.
Pain is always worse after a poo and often relieved if I eat and haven't 'gone' for a few days.
However, the pain at the base and top of my spine remain really really bad as does the flu-like feeling of exhaustion and 'yukky' grotty, weak feeling. If I try to ignore it or push through it, all the symptoms get worse. Rest helps but don't really have the kind of life where I can easily rest.
Stomach pain is now more like a dragging, tugging feeling most of the time but no longer so unbearable and acute.
The only time in my life I've ever felt like this and for this long is 2 years ago when the same symptoms developed then and it took about 6 months for me to feel anything like normal - but after this, I was fit, healthy and well for 14 months - except for some IBS type symptom.
Can anyone at all suggest a diagnosis?
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General health
Can anyone at all diagnose me - anyone? At wit's end!
72 replies
Whoremoan · 13/02/2017 12:21
OP posts:
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