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Is this it? Are these really my only options?

(36 Posts)
2ndSopranos Thu 19-Jan-17 14:49:12

I've suffered from awful, awful period pain for as long as I've had periods. After years of being fobbed off, finally I'm being taken seriously.

Today I saw someone in the gynae department as a follow up to an ultrasound. A junior doctor who happened to be really, really gorgeous blush. Anyway.

The ultrasound was normal, but showed a sort of 'flat' fibroid which apparently can cause pain. They've recommended a hysteroscopy but only if I consent to having a Mirena coil fitted. I don't want a coil. I don't want to gain weight and I don't want my depression to get worse. I've never, ever had any success with hormonal contraceptives. The doctor respects that at least but unless I agree to a Mirena, they won't biopsy this area.

The other option was laparoscopy, plus hysteroscopy plus ablation. No first two with an option of a third, just straight to that. I'm in my late 30s and probably done with having babies but the thought of ending my fertility right now is making me feel physically sick.

The third option, which is what I've opted for, is watch and wait and back in four months.

Is this really it? It's Mirena or ending my fertility?

2ndSopranos Thu 19-Jan-17 18:27:21

Hopeful bump smile

Footle Thu 19-Jan-17 18:27:36

What's the purpose of the Mirena ? Is it to prevent pregnancy, or to delay the regrowth of the fibroid ?

Groovee Thu 19-Jan-17 18:30:27

I have refused the mirena. My consultant was shocked at how adamant I am. I have started on the mini pill until I loose enough weight to have an ablation.

The mini pill has worked wonders. I still get some bleeding but nowhere near what I used to suffer.

2ndSopranos Thu 19-Jan-17 18:32:00

To combat the pain.

2ndSopranos Thu 19-Jan-17 18:34:23

The dr I saw today understood that I didn't want it, but it seemed that they are only prepared to investigate further after I've had a go with Mirena.

Footle Thu 19-Jan-17 18:36:28

How long a trial is long enough ?

2ndSopranos Thu 19-Jan-17 18:41:20

Stupidly I didn't ask.

Dh heard the word "biospy" and is flapping.

Footle Fri 20-Jan-17 08:25:53

I'd try the Mirena to see if it helps. If it doesn't , have it out and see what else can be done for you.

AttilaTheMeerkat Fri 20-Jan-17 08:46:03

They seem to be simply treating the symptoms rather than properly work out what is the underlying cause. Awful period pain like you describe can be caused by endometriosis. Has anyone mentioned that word to you?.

In the meantime I would keep a daily pain and symptom diary if you do not already do so to show them. I would also now be determined to see a gynae consultant on your next visit rather than a junior doctor and get this person to explain more about the "flat fibroid" seen on ultrasound. It is all too easy to be fobbed off and I would also think twice about having a Mirena inserted before you get a proper diagnosis of the underlying problem.

Endometriosis is usually diagnosed through a laparoscopy; did this doctor mention any more about that?. A lap is not going to end your fertility.

hesterton Fri 20-Jan-17 08:51:13

I could never tolerate the oral contraceptive but in later reproductive life (fifties) have a mIrena which is wonderful. No weight gain, and no periods, end of all the mess and pain. Hopefully by the time this one runs out, I'll be through the menopause. Not the same issue as you, but don't completely shut off the idea of a mIrena. The hormonal effect feels very localised.

2ndSopranos Fri 20-Jan-17 08:54:12

Yes, they are talking about endometriosis: I've a myriad of other endo symptoms too.

The laparoscopy was the other option but during the same surgery the plan would be to do an ablation (plus the hysteroscopy they are unwilling to do without my having the Mirena inserted).

I've got another appointment in May to discuss what I'd like to do next. I have been wondering about going to see my GP in the meantime to try to get some clarity.

2ndSopranos Fri 20-Jan-17 08:57:39

hesterton I haven't completely ruled it out but I am terrified of weight gain. I have depression for which I take medication and the thought of compromising my mood also frightens me. I'm also worried that if I can't get on with it, I'll have to wait months for it to be removed.

lougle Fri 20-Jan-17 09:16:18

The mirena coil is only removed by tugging two strings doesn't have to be a permanent choice though, does it?

picklemepopcorn Fri 20-Jan-17 09:17:45

It's easy to get the mirena out, I think. Just a GP/nurse procedure like a smear. I've had two about and can't remember it at all!

Why would the procedures end your fertility? Have I missed something? Aren't they just investigative? Hysteroscopy isn't the same as hysterectomy. Sorry if I've missed what you mean.

2ndSopranos Fri 20-Jan-17 09:24:07

It's if I opt for laparoscopy to diagnose endometriosis. They plan to do an ablation at the same time.

welshweasel Fri 20-Jan-17 09:29:54

I would push for a laparoscopy plus hysteroscopy. They can't force you to have a coil or ablation. If the laparoscopy reveals endometriosis get referred to a specialist centre to get the endo excised. If the lap is normal and the only issue found is the fibroid you can then discuss treatment options, which may include the coil. Ablation (assuming you're talking about uterine ablation) is only really of use for heavy periods, not for pain.

welshweasel Fri 20-Jan-17 09:30:31

If they are talking about ablation of endo then run a mile and go to see a surgeon who knows what they are doing.

2ndSopranos Fri 20-Jan-17 09:37:21

Thank you welsh. I'm feeling really quite emotional about all of this today. The dr yesterday printed out something about ablation that stated it wasn't suitable for anyone with endometrial disorders. I wonder if it's a case of if they do the laparoscopy and don't find endo they'll proceed to ablation?

welshweasel Fri 20-Jan-17 10:02:29

But why were they planning to do an ablation for pain? Doesn't make sense. I would push for a diagnostic laparoscopy, then at least you know what you are dealing with and can then research the correct treatment.

PinxTheTinxMinx Fri 20-Jan-17 10:12:16

I've had the mirena for over 7 years, on my second now & I've not experienced weight gain. Apart from
when I knowingly eat too much over Christmas and holidays!

Also if anything my mood has improved dramatically and I am much more on a level. Before I was emotionally all over the place.

So don't get too worried about the negative stuff you may like me and it be the best thing I could have done.

Good luck flowers

Dragongirl10 Fri 20-Jan-17 10:15:52

This may be a long shot op, but have you tried Chinese medicine and acupuncture for the endo and pain?

I have a friend who had severe endo and after trying many things( she was young at the time) tried this and it massively controlled the pain.

Google it to find a reputable clinic, there is a great one on Camden high st if you are London based.

welshweasel Fri 20-Jan-17 10:49:06

The mirena might be brilliant. As might acupuncture. But you really need a diagnosis first so you know what you're dealing with.

rosie39forever Fri 20-Jan-17 11:12:26

Hi I had a Mirena in September for heavy painful periods ( I also have five small fibroids) still bleed a bit but absolutely no pain and have lost a stone as am able to exercise more because no pain and flooding! There are lots of people who don't get on with Mirena but also loads who find it brilliant and is easily removed if there are problems.

I don't understand why ablation has been offered for pain as it tends to be for heavy bleeding and if your planning future pregnancy then defiantly not for you.

I do think you need to see a consultant gyne rather tan a junior.

2ndSopranos Fri 20-Jan-17 12:00:17

Would it be worth phoning and seeing if I can be seen any sooner than May?

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