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anyone know anything about coeliac disease?

(16 Posts)
KirstyAndKeelysMom Thu 22-Feb-07 13:07:17

i have received a letter to say my blood test suggests i have this condition, however, they want me to have a magic eye examniation to confirm the diagnosis.

if i have got this what foods can i eat, or not eat, drink etc.

thanks

pesme Thu 22-Feb-07 13:09:26

you have to avoid glutton, basically all wheat product but the doctors should be able to advise you. you will feel alot better when you change your diet. take care

PandaG Thu 22-Feb-07 13:09:39

coeliac is as far as I know gluten intolerence, so no wheat - and some other grains. Yon can buy wheat free flour, bread, pasta etc. Someone with a bit more knowledge should be able to give you more info I hope

KirstyAndKeelysMom Thu 22-Feb-07 14:17:29

thanks. do i have to stop eating meat? can i eat vegetables and fruit? thanks.

PandaG Thu 22-Feb-07 14:22:37

most meat would be fine, but not for example, sausages - some have breadcrumbs in, or breaded chicken etc. You will need to check packets caefully, or buy completely unprocessed food so you know what is in it. Fruit and veg fine too - but again you will need to check processed foods.

I am sure you will get very detailed instructions from your GP or hosp. if you do have Coeliac.

KirstyAndKeelysMom Thu 22-Feb-07 14:29:38

thanks

tkband3 Thu 22-Feb-07 14:30:07

My daughter was diagnosed with coeliac last year. As others have said, once the diagnosis is confirmed you will have to go on a gluten-free diet. Gluten is found in wheat, barley, rye and oats so you will have to have gluten-free bread, pasta, pizza, biscuits, cakes, cereals etc.

You will be certainly be given an appointment and regular check-ups with a dietitian who will be able to advise you on what you can and can't eat. You can get lots of dry foods on prescription, which is really handy and the large supermarkets now all have extensive 'free-from' ranges which include gluten-free sausages, fishfingers, ready-made lasagne etc.

Coeliac uk is a great source of info - check out their website here . If you join you get their annual book showing all the branded you can eat.

Hope this helps.

Fauve Thu 22-Feb-07 15:07:30

Hi K&KsMom, good luck! My ds has just had his biopsy and we're waiting for the results - his dad is definitely coeliac. I started this thread, Beginner's guide to coeliac disease , which you might find useful.

It gets easier as you go on

KirstyAndKeelysMom Fri 23-Feb-07 13:51:17

bump

chopchopbusybusy Fri 23-Feb-07 14:22:42

Hi K&Ksmom. My DH has coeliac disease. What is a magic eye examination? You should not go gluten free until the diagnosis is confirmed because if you do go gluten free and your gut begins to heal then you may not get the diagnosis. If you are diagnosed then join Coelaic UK and they will send you a directory of foods which you can eat safely. You can also have some foods on prescription. You do have to be aware of hidden sources of Barley, wheat, rye and oats as they are added to the strangest things. GPs (and sadly many dietitians)are very varied in their knowledge about Coeliac. I can recommend this website
\link{http://members2.boardhost.com/glutenfree/}
Sorry not sure how to links but you could retype.

They are a friendly bunch and they have loads of info stored on the supplementary board.

Dottydot Fri 23-Feb-07 14:27:35

Hi - I was diagnosed with coeliac disease in November and was just thinking yesterday that I'm over the worst of it, acceptance-wise and it really is OK..!

you'll pick up really good info from the links other people have done and hopefully by now will know that you can eat fresh meat (need to check sausages though, and some burgers, because they often have breadcrumbs in as a filler), dairy products are fine, fruit and veg. Bread's the big no no, and anything with wheat in - biscuits, cakes, anything breaded - fishfingers, breaded fish etc.

If your diagnosis is confirmed you'll be able to get gluten free food on prescription - pasta, bread, pizza bases, biscuits, crackers. I find this very helpful as gluten free food is very expensive in supermarkets!

You'll find that g-f food doesn't taste the same as ordinary stuff - I've found that very difficult to get used to, but I'm learning to accept that that's the case and I'll just have to get used to it!

The endoscopy you'll have should be completely pain-free and only takes a few minutes. I was terrified before mine - turned into a jibbering wreck at my outpatient's appointment beforehand and cried all over the consultant. But the sedative meant I don't remember a thing and wouldn't be at all worried if I ever had to have another one.

Good luck and give me a shout if you need any more info!

KirstyAndKeelysMom Fri 23-Feb-07 15:44:08

thanks both.

Dottydot. did they offer u the spray to numb the throat? i might go for that rather than the sedative.

KirstyAndKeelysMom Sat 24-Feb-07 15:29:44

anyone had the throat spray??

KirstyAndKeelysMom Sun 25-Feb-07 19:50:22

bump

Callmemadam Sun 25-Feb-07 20:53:42

Hi k&K'smum - do you mind me asking what your symptoms were?

KirstyAndKeelysMom Sun 25-Feb-07 21:20:28

Callmemadam - my symptoms are

diorreha (sp?)

more often than the above, constipation

constant wind and bloated feeling

not sure if these are connected but:-

anxiety
depression
panic attacks

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