So after years of suffering pain in my joints and back I've recently been diagnosed with JHS. The consultant said it's nothing to worry about it but then also said my JHS is really bad, my joints move considerably more than she normally sees with people with this condition, I can't exercise much and there's very little I can do about it.
I can't sit down for too long otherwise my back seizes up, I can't stand for long without being in immense pain, I can't walk anymore (I used to be an avid hill walker) without being in immense pain after about 15 minutes. Even day to day things like cooking dinner hurts because of the standing / holding heavy pans / chopping food.
I feel pretty down about it all. I work in an office but typing hurts my wrists and arms as does sitting down for a while.
I know many mumsnetters have JHS. How do you manage the pain and what do you do for work? How do you cope with day to day tasks? I don't know anyone else in real life that has had this diagnosis.
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General health
Recently been diagnosed with Joint Hypermobility Syndrome
10 replies
sadandanxious · 16/12/2016 14:05
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