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Activity leading to tiredness and fever

(7 Posts)
OrlandaFuriosa Fri 14-Oct-16 00:57:09

anyone know why this is and what I can do about it?

Since having radiotherapy for a non cancerous brain tumour over Christmas, ie a long time ago, if I have an active day, two days later I go down with low grade fever which is only dispersed by about 23 hours sleep and 6 litres of liquid. It's boring and disruptive.

Other than just sitting on an ever increasing backside, what can I do?

CFSKate Mon 17-Oct-16 12:55:30

If you hadn't mentioned the radiotherapy/tumour I'd have considered ME. The title "Activity leading to tiredness and fever" made me think of M.E. and click on the link. The two-day delay between activity and feeling ill/exhaustion/flu like symptoms is also like ME.

OrlandaFuriosa Wed 19-Oct-16 01:10:09

Thanks, Kate, I'll do just that. Never considered it before, though have had friends who have had it.

HeyMacWey Thu 20-Oct-16 13:38:17

Yes it sounds like classic post exertional malaise which is one of the key features of me/cfs - a few friends had cancer treatment (both chemo and radiotherapy) have had terrible post treatment fatigue which sounds so similar to me/cfs.

Have you spoken to your gp? Had tests to rule out vit deficiencies?

OrlandaFuriosa Thu 20-Oct-16 14:08:28

I shall do that. It drives me bonkers. In retrospect I've had it a long time but thought it was tumour related and then radio related. It's mild in the ME diagnostic criteria, but disruptive. When I read those criteria a light bulb went on with the descriptions if my life...

But could easily be vit related instead.

You have encouraged me to do something about this!

HeyMacWey Thu 20-Oct-16 14:35:06

Good - glad you're going to get checked out - it could be something easily rectified.
In the meantime - rest when you need to - don't push yourself to do stuff when you're feeling fatigued.

CFSKate Mon 07-Nov-16 10:50:19

I hope your GP was some help. Are you still feeling it is ME/CFS? There is a long list of things to exclude here

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