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doctors don't know what it is?

(15 Posts)
GreenGoth89 Mon 10-Oct-16 08:32:21

I have had something which has made me really ill and no one knows what it is!

I was rushed into hospital with a temp of 39.1, chest and back pain on intake of breath, headache, neck ache, nausea and I quickly became photosensitive (yes I know...all sounds like viral meningitis). Kept feeling very hot, sweating buckets but having a low temp of around 35.5 - 36. They did a CT - all clear, they did a lumber puncture and had a pressure of 23.6 (elevated but not enough to be classed as elevated), the fluid was clear, and that also came back clear. I was let home on Saturday after they said whatever it was I was out of the danger zone but I'm still feeling really yucky.

Any interesting ideas as to what it could be?

GreenGoth89 Tue 11-Oct-16 08:01:46


cheesecadet Tue 11-Oct-16 19:50:42

Were your blood tests clear?

cheesecadet Tue 11-Oct-16 19:50:53

Were your blood tests clear?

cheesecadet Tue 11-Oct-16 19:50:54

Were your blood tests clear?

GreenGoth89 Tue 11-Oct-16 19:53:15

Raised CRP (50?) but everything else was clear.

cheesecadet Tue 11-Oct-16 19:55:19

Whoops sorry!

peponi Tue 11-Oct-16 19:55:47

Did you have a cheat X-ray? Was your pulse normal? (Thinking PE or chest infection/pleurisy)

oolaroola Tue 11-Oct-16 20:02:56

I had something like this 18 months ago....chest pain, neck pain, temperature, headache, photosensitive, tachyacardic, palpitations,felt like crap....
They didn't do a lumbar puncture but my CRP came back at 415!! Kept in overnight and then left because it was sooo awful in hospital. I promised to come to outpateints and they kept doing repeat blood tests. I was ill for 6 weeks! CRP eventually came back to normal and finally got a letter saying that I'd had a virus to which I was now immune.
Sympathy to you OP, it's awful feeling so ill. Hope you get better soon.

GreenGoth89 Tue 11-Oct-16 20:35:51

Chest x ray was clear. Had pulse of 135 when the paramedics arrived, slowed to 110 after IV fluids and then bobbed around 100.

peponi Wed 12-Oct-16 20:15:57

And how are you now?

lougle Wed 12-Oct-16 20:41:30

I'm surprised they didn't sepsis algorithm. Did they do a blood gas? Did you have antibiotics?

GreenGoth89 Wed 12-Oct-16 23:09:45

Still have permanent headache, neckache, not much of an appetite, light sensitivity and tiredness.

GreenGoth89 Wed 12-Oct-16 23:11:39

Did have 2 lots of IV Antibiotics but they didn't send me home with any.

peponi Thu 13-Oct-16 20:50:56

Lougle. They probably did, and if they didn't they used their medical knowledge/experience to assess and decide she didn't need one...

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