Prolapse thread?

[Fuzzyduck21]

Is there still one? I have been fitted with a ring pessary and I'm only in my 20s and throughly depressed!!!!!!

[TryingtobePrepared]

Haven't seen one recently but am waiting for an appointment at hospital as GP thinks I need proper assessment and diagnosis am freaking out about what they are going to suggest. Hope the pessary is working out for you.

[colouringinagain]

Hello! Yes please to a prolapse thread. I was diagnosed 10 days ago and am feeling so depressed. Cystocele. Rectocele and poss slight uterine. Been to physio - I have approx 45 mins exercises to do a day. I'm 45 but feel like an old lady. No more running, badminton, trampolining

Fuzzyduck not surprised yr depressed physio mentioned pessary to me too. How are you finding it?

Tryinto whose yr appt with?

[colouringinagain]

Anyone?

[Tanfastic]

I was told I have a "slight" bladder prolapse the other day during an internal. GP didn't seem bothered, I have to do 60 pelvic floor exercises every day (for the rest of my bloody life ) to stop my fanjo completely falling out I expect.

[colouringinagain]

60 wow.

I'm still not sure I'm doing mine right.

My physio gave me the impression she thought mine were worse than gp had indicated. Guess I need to be brave and ask her for a "grade" next time...

[Unicornsandrainbows3]

I'm here with uterine prolapse. It's really not much fun but I do find yoga helps a lot as long as I do it regularly.

[Tanfastic]

I have an app on my phone that reminds me to do my pelvic floors. To be honest it does give me the kick up my arse I need as it's always there, bloody bleeping away. It's an NHS app. I do three blocks of 20 a day, 30 slow squeezes and thirty fast squeezes. No idea if it will help but I assume I have to keep at it.

[colouringinagain]

Unicorns I used to do yoga but I've been told there are positions that can make things worse - how do you get round this?

[Fuzzyduck21]

I must admit I have been rubbish at pelvic floors recently as just makes me feel more crap but must do them.

Pessary was useless as couldnt wee properly. Got smaller one fitted and same issue. Now have removed it myself and waiting for another apt to try yet another!!

60 pelvic floors a day is tough! My physio said if I manage it every other day I should be ok. So I need to do that as a minimum.

Does everyone know the cause of theirs? Apparently I am hypermobile so childbirth knackered mine. Didn't even have forceps or an unusual birth. Just generally peed off and have a 'why me?' attitude at the mo.

It has taken me a year to get to this point - not bashing the NHS but just think that kind of time frame is crazy and been backwards and forwards to various consultants in that time!

[colouringinagain]

Fuzzy I know exactly what u mean re pelvic floors making u feel crap.

I'm currently feeling very depressed and anxious as result of this diagnosis. I get the "why me". Spent the day in London with my dad for his birthday (would normally enjoy), lots of walking. It was horrendous cos walking is so uncomfortable. I spent a lot of the time fighting hack tears

Mine mainly result of traumatic delivery off dd (first child) episiotomy, forceps, 4th degree tear. Complete and utter nightmare which this is reminding me of. Also mum with major prolapse which apparently increases chances.

Suspect I will need to go down the pessary route, which I'm also not feeling enthusiastic about. Do GPs have any idea of the psychological and physical impact of prolapse? I suspect not.

[sunshine05]

Hello, I'd like to join! I first got diagnosed with a mild prolapse after my 2nd child, and for some reason went on to have a 3rd! Now I've seen a specialist and he had a look and said he couldn't quite tell how bad it was and I might need to go under general anaesthetic so he can have a proper prod around- yeah I really feel like I want him to do that! In the meantime he fitted me with a ring pessary which promptly fell out after half an hour, then a few weeks later he fitted me with a bigger one which lasted about the same amount of time. so I've given up on them. Then I was given a physio referral which lapsed as I went on holiday and well kids/life/crazy chaos, always putting myself last, so I have to call up to put myself on the waiting list again for that. I'm 39 and I'm falling apart- prolapse, shoulder that needs surgery and acid reflux so I can't even drink wine and eat chocolate to drown my sorrows. Feeling sorry for myself but I know it could be worse! I love running and would love to bounce on the trampoline with my kids but I can't.

[sunshine05]

oh and I've been useless at doing my pf. I've even got an app on my phone which I just ignore now. I don't seem to have the time! I'm so annoyed at myself after waiting for the referral that it lapsed.

[MerdeAlor]

Evening
I had a rectocele and cystocele, had them for years since the birth of my DS.

After seeing a gynae years ago and having no luck with the ring pessaries (do they stay in for anyone?) he recommended a hysterectomy and prolapse repair. I ignored that for a few years as I was in my mid thirties.

Last year after having a smear test my gynae recommended taking a course of pelvic floor exercises with a specialist midwife. They were fantastic, she taught me how to isolate and strengthen every muscle and how to lift my bladder through exercise. Despite that the prolapse was gradually getting worse.

My gynae recommended surgery but first referred me for tests, namely bladder and bowel function tests. Grim but necessary, leave your dignity at the door.

I had the surgery two weeks ago - laparascopic sub total hysterectomy (leaving the ovaries) and a double prolapse repair with two prosthetic inserts attched to my spine.

No lifting for a good while but it has been surprisingly pain free and I'm recovering quickly. No need to fear it. It feels like I've had a vagina lift 😁

The process from the smear to having the surgery has taken a year. Probably relevant is that I live in France, the procedures are the same but not everyone has the same investigations prior to surgery.

Happy to answer any questions.

[FuckyNell]

I'm 44 had a rectocele repair in April. Best thing I ever did

[Sallystyle]

I am wondering if I have one.

I found a spot thing just in my vaginal entrance. I had a look and there was some strange looking shit in my vagina. Like my vagina had been turned inside out. However, I also had thrush.

I looked again today. All seems back to normal but whatever it was in there didn't look right. Don't know if I should see a GP or not? Keeping an eye on the spot thing anyway.

[colouringinagain]

Sounds like it might be worth a trip to the Gp U2,...

Merde, Funky, I'm busy with physio - sorry to hear yours didn't work (but am prob hoping for a miracle!) I've been told I'm too young for surgery (45) cos of extent of prolapse and lifespan of operation???

Devastating

[Sallystyle]

Can a nurse have a look or does it have to be a GP?

I might need to get the spot checked out so I will leave it a week to see what happens with that.

[MerdeAlor]

Interesting Colouring I'm 43 so younger than you by just a little. The exercises are well worth it and are needed even if surgery is indicated.

I had mine done because my prolapse was causing constipation and a little bladder incontinence plus frequent thrush and UTIs and that would only have gotten worse. Even if I have a revision in years to come, my improved quality of life now will be worth it.

[colouringinagain]

Sounds great Merde, glad it's working out well. I have major quality of life issues as I use exercise to maintain good mental health. So this diagnosis plus minimal exercise is proving to be a deadly combination. I am so frightened of what the future holds and depressed by the here and now that I'm struggling to function properly at the moment.

[FookyNell]

Finally had enough today and made a GP appointment to see if I can get mine sorted. Not saying it's all falling out down there but if I needed a smear test I'd only have to remove a sock!

[loveyouradvice]

Hi ... I've a prolapsed uterus and rectocele... first is getting worse, and fairly recent ... rectocele since DD birth 14 years ago.... and I am hypermobile and have been overweight and rather inconsistent on my PF exercises....

For anyone who's had the op, how long did it take to recover? Gynae I saw a few years ago said 3 months off work and 6 months no exercise which has really made me hesitate... I'm self-employed and with a tendency to overweight, rely on exercise to keep myself on track.... So at the moment just grinning and bearing it, but suspect could get worse. I can still do my zumba but no the jumpy bits!

[mehitabel1]

Am post-menopausal and am having horrible problems (three births including ventouse and high forceps deliveries and the damage they did only apparent now). Have been diagnosed with a rectocele and am waiting for MRI and referral back to consultant. I want to try to avoid surgery by getting intensive expert help with pelvic floor exercises, including using biofeedback etc. Does anyone know a good physio in London who treats prolapse and is up to date with latest research and techniques? Willing to pay as am so desperate. Please recommend anyone good you know of.

[MrsSnootch]

Bladder prolapse here. I just started a thread and came across this a few mins later.

I am terrified. Really don't want to live with this for years, the feeling of discomfort is almost enough to drive me to despair. I have been in tears several times per day due to that awful bulge feeling, getting worse when I stand up/the day goes on..

Anyone know what the waiting times are like UK NHS to see a eurogyno? and any tips to help with the bulge/burny feeling that is driving me mental?

[Bummymummy77]

Can I join? Severe bladder prolapse (it's pushed my vaginal wall so it actually, visibly hangs out of my vagina.

No point doing anything until I'm definitely not having another baby apparently.

Means I pee when I bend, jump, cough etc so it's not ideal.

Also means sometimes if I sit funny I sit on it and it's bloody painful.

I doubt we'll be able to afford to do anything about it anyway as I'm in the States.

[mehitabel1]

Mrs Snootch: wait in London is long. I was referred to consultant in May but waiting times for bladder tests & MRI proctograms are endless and my urogynae consultant appointment is at the end of Feb - that's why I'm looking for a recommended private Physio. The wait will vary around the country - I hope yours is shorter! Am afraid I can't help with your question about bulge/pain, but would be glad to know the answer.

Bummymummy77: just in case it's helpful, there's a good US website you may have found already with useful threads -
www.pelvicorganprolapsesupport.org/mission/
Hope you manage to find some help and support.