Hi, I have the auto immune under active thyroid (something beginning with H - can't remember actual name!) and have for about 9yrs. Was on 75mcg a day but have been having symptoms for last three years of being under active - hair loss, difficulty losing weight, tiredness, low mood, joint pain (only found this was a symptom after reading things on here).
I had been going to the doctors and having it tested and would phone for results and be told normal. When I eventually, again after reading in here, asked what it was/has been I was told it has been 10.4-11.8ish. Which I now know to be really low.
I already feel really down that I have been left with symptoms and just been told it is normal - surely results should be taken in account along with symptoms? If I was without symptoms then I could understand the fob off with 'normal' but I wasn't.
Anyway I spoke to two different doctors who both said they find patients function better if they are high teens, and after a test in Feb and me crying down the phone the doctor agreed to up me to 100mcg.
Just been tested again, still have symptoms, and been told 'normal' - result was 13! Other one was 2.4.
I just feel so frustrated that I am battling to just feel normal.
I asked for a call back from doc and receptionist just said 'but the doctor has marked as normal', then said they were full for call backs and I should call on Monday.
I am thinking of asking for a referral to an endocrinologist or making a complaint to the practice manager?
Any advice on what to say to doctor or what to do now?
Thank you (apologies for long post!)
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General health
Thyroid - so fed up with battling
28 replies
TheGoodEnoughWife · 11/09/2016 08:53
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