I've got damage in my hip that has been causing me problems for over 2 and a half years. I have been in pain every single day though the level of pain varies. I've had a steroid injection which relieved some of the pain but it is still there. I have to think about what I do and how I do it every day to ensure that I can continue to work and look after my ds.
Is there any support for people like me?
I am only managing to keep my job because of an understanding line manager who managed to arrange certain adjustments for me such as a parking space but I may be losing this as I don't have a blue badge. If I stand or walk for too long I am in agony and can barely move. I keep everything to the bare minimum so that I can expend all my energy with my very lively and active ds. My reluctance to overdo anything physical has been commented on by 'friends' (the exercise will do you good, you aren't disabled, don't be lazy) I keep a brave face on it and most people don't know that I am in pain every day.
I'm having regular physio which is helping build up the strength in have lost as a result.
I don't know what I'm looking for really. I just wanted to express how draining it is to live like this. How humiliating it is to have to explain to people that I can't do x y z because of a bad hip, that I'm not crying because ds is having a tantrum but that I'm in agony trying to restrain him.
I need to give myself a kick up the ass and stop feeling sorry for myself but tonight I feel shit because the pain is really bad.
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General health
What support exists for those with long term conditions that aren't disabilities?
8 replies
littletike · 08/09/2016 21:03
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