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Cystoscopy -- what was yours like?

(13 Posts)
pusspusslet Thu 08-Sep-16 16:37:15


I've been for a flexible cystoscopy today (in an attempt to find the cause of blood in urine).

I was a little apprehensive--embarrassment, fear of it being painful, a bit of concern about what they might find--but tried to keep it all in perspective and wasn't panicking. It all started well when they took me in 30 minutes early, since (for once) I'd turned up well in advance of the appointed hour. The bloke carrying out the procedure was pleasant enough too, and didn't mind answering a question in advance of the procedure.

When we got into the room, though, it was like a sprint to the finish! I'd read on a sheet of paper that I was given in the waiting room that there would be a local anaesthetic (in the form of a gel), but one moment the doctor wiped me down, the next moment he squeezed in the gel and (literally) immediately afterwards he shoved in the scope. There was no way that it could possibly have taken effect, so presumably the doctor had decided that it wasn't necessary.

It hurt! Not loads, but enough to scare me about whether further pain might be coming, and the speed of the whole thing was shocking. I spent the next 2 minutes (I would guess) rigid with apprehension as the doctor inspected my bladder with the camera. He talked me through it and encouraged me to look at the screen. He clearly didn't mean any harm, but I really felt it wasn't appropriate to go so fast.

Afterwards he told me that he'd not seen anything sinister--good news--but on the way home I was sore. When I got back I went to the loo, and found quite a lot of blood on the tissue. I've now spoken to my GP's surgery about that and been told it's not uncommon--but it would have been good to have been told that in advance.

A colleague recently had the same test in the same hospital and she had a very different experience. She said that they were very calm and reassuring and that a nurse held her hand and helped her through it. The nurse present during mine didn't have time to do any of that, because the doctor was shouting (not aggressively, but he was shouting) that there was too much light so that he couldn't see the screen, and she had to dash round the room turning all the lights off. That was after they discovered that the electronics on the bed were broken, so that they couldn't get it into the correct position.

Now that I've had a chance to calm down (and a glass of wine) I feel less freaked out, but I really hope this isn't typical of how these things are normally conducted. Next week I have to have an endoscopy (the bottom end one, rather than the other) and so now I'm apprehensive in a way that I previously wasn't.

If you've had this procedure how did it compare?

nmg85 Thu 08-Sep-16 19:05:26

I have had a two and both of them were done under a general as there was a chance they needed to do a biopsy. I do however have a bladder treatment each month which involves a catheter and the gel is put on and then inserted straight away... Never really see the point to be honest as like you I assume it won't do anything that quick. Every time I have a cystoscopy it hurts to pee after and I have bled for a day or two. When I have a catheter it feels like I am peeing razor blades for 2 / 3 times I go to the toilet afterwards but then ok. I am sorry you had a bad experience, I had a similar one when I went in for a different procedure called urodynamics apart from the dr was shouting at me not the nurse!

Topanga1 Thu 08-Sep-16 19:14:53

Sorry you had such an unpleasant experience.

Mine was quick and painless - and I have a LOW pain threshold.

Are you going to have sedation for the endoscopy?

pusspusslet Thu 08-Sep-16 19:34:50

Hi both,

Many thanks for replying. I'm relieved to hear that the peeing razor blades feeling/bleeding is par for the course!

nmg85: horrified to hear that the doctor was shouting at you! Nuts...

Topanga1: I am going to have sedation for the endoscopy, thanks smile They didn't mention it as an option but I was forewarned and so asked about it when I rang to book the appointment. I've arranged for somebody to drive me home. I'm glad to hear that your cystoscopy was quick and painless. I'm fairly sure it doesn't have to hurt!

Miiaaoow Thu 08-Sep-16 21:52:31

pusspusslet - I've only had a cystoscopy under general anesthesia, so can't share experiences, but I'm so sorry that you had such a rushed/stressful experiences. I think doctors sometimes get so caught up in the testing/medicine that they forget that it's not just a normal day at the office for us!

The bleeding may last a few days. If you have any stinging - that may last up to a week. Although i think that's likely with the one under general as they use bigger scopes.

At least it's over now! flowers

nmg85 - I'm assuming you mean instillitions. Have you asked them to use a smaller catheter? The normal size they use is a 12. I always ask them to use a size 8. No pain at all with the smaller one and I have chronic urethral pain!

HairyLittlePoet Thu 08-Sep-16 21:59:28

Mine was a bit like yours OP. Not much handhold in or sensitivity. During it the urologist spotted something interesting on the wall of my bladder and decided to biopsy it then and there. I can remember the pinch as they snipped my bladder wall.

Yes also to bleeding afterwards.

I've had unexplained haematuria for 20 years.

Hope you have a good outcome and feel better soon.

GiddyGiddyGoat Thu 08-Sep-16 22:28:32

They do loads of such procedures. It is much better to be treated by someone quick and efficient! I have had this and was much as you describe - some discomfort but not nearly as painful as I'd feared it would be. I was grateful it was all over and done with so speedily.
Hope you feel better soon.

popthisoneout Thu 08-Sep-16 22:42:33

I had this procedure and they were very kind and careful. Lots of hand holding, waiting for the gel to be effective and talked me through it all.

I was like peeping razor blades for that first wee but I was fine after that.

Sorry you had a horrible experience. I would give the hospital feedback so they can improve their service.

Simmi1 Fri 09-Sep-16 04:57:12

I also had one under a general and don't remember a thing. I also had the feeling of peeling razor blades the first couple of times but then it was fine. I've also had an endoscopy under sedation and was similarly out of it - I prefer it that was 😆

Simmi1 Fri 09-Sep-16 04:57:32

That way!

Rulerruler Fri 09-Sep-16 05:54:51

Mine was the same as yours OP too. Was quite sore for a couple of days and wouldn't leave the house and I was doing big audible sighs when I wee'd and didn't want to use a public loo!! After couple of days was totally back to normal.

pusspusslet Fri 09-Sep-16 09:49:29

Many thanks to all of you for the kind replies flowers Much appreciated!

Ilovefluffysheep Sun 11-Sep-16 11:09:47

I've had several and they've always been under general. Can be a bit sore afterwards, and also had bleeding a couple of weeks later which freaked me out but is perfectly normal (was to do with some scabs falling off internally or something, was a long time ago now so barely remember!).

I've had my bladder removed now so no more cystoscopies, instead it will be a camera down the channel they've build through my belly button to my new bladder, which is made out of bowel. The wonders of modern surgery!

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