I was diagnosed with HS when I was a teenager but until the last couple of years (I'm 29) it hasn't had that much of an impact on me. Now, I have some sort of pain every day - usually hips and/or shoulders. My finger and thumb joints are very weak, and interfere with picking things up, even something like a mug or my handbag. Also all my joints crack constantly and I'm always getting knots in my neck muscles.
I also have bad circulation and am usually cold. When I get home from work I often have to have a bath to warm up after a day in an air conditioned office.
I went to an osteopath who released my hip and gave me some exercises to do. This helped a bit but I think I need to go back to her. There is also a lot of conflicting advice on the best way to deal with it.
In terms of exercise, I've been told not to stretch too much even though it feels good! I do pilates/ballet type exercises but there's not a lot of cardio there.
Does anyone have any advice? I feel like it's getting worse and I'm fed up with always having some issue.
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General health
Hypermobility Syndrome - what helps you?
15 replies
actualtotalloss · 20/08/2016 14:32
OP posts:
FrancisCrawford ·
21/08/2016 13:40
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