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Lymphoma? Thyroid? What...?

(31 Posts)
Lumpylumperson Wed 16-Mar-16 18:46:49

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Tanfastic Thu 17-Mar-16 07:18:03

I think a GP wouldn't be doing his job if he didn't refer you for suspected lymphoma with your symptoms, however try not to panic as it could be anything.

My ds was referred for suspected lymphoma under the two week rule as he had a rather alarming lump in his neck. Doctor did ask
Us whether he was getting night sweats though.

His lump just turned out to be a lymph node that hadn't returned to its normal size after him getting a lot of illness as a toddler and the consultant could tell this just by feeling it, no further investigation or blood tests required.

The consultant indicated to me that lymphoma symptoms can come on quite rapidly and you'd kind of know about it, rather than a lump that has been there for a while and not changed etc.

I'm sure someone will come along who has more experience soon op, I've seen lots of threads on here with people contributing who have direct experience of lymphoma. thanks

Lumpylumperson Thu 17-Mar-16 12:10:21

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RichardHead Thu 17-Mar-16 13:35:00

I had a lump in my neck scanned a few weeks ago, similarly to Tanfastic's ds it was a swollen lymph node. It's still there but has got smaller since I first felt it 4 months ago.

I'd got incredibly run down before hand, just had a baby and a bereavement so it was difficult to separate out my symptoms. I had been having night sweats for a few weeks after my baby was born but that's also normal for postnatal and breastfeeding, so I had no idea what was from what. One thing I did read though is that the night sweats with lymphoma are pretty drenching sweats, whereas I was just a bit sweaty.

I had a few blood tests including ruling out CMV (cytomegalovirus) and glandular fever. Have a read on CMV and see if that fits at all, I can't remember the symptoms now apart from swollen nodes.

One thing my DH also read is that something like only 5% of neck lumps turn out to be malignant. Though I've always been more of a glass half empty type so just assumed I was in that 5%...

flowers

Lumpylumperson Mon 04-Apr-16 10:18:50

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Lumpylumperson Mon 04-Apr-16 10:19:13

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lucjam2105 Mon 04-Apr-16 10:25:10

You must go back to your GP TODAY. It's not normal to feel so tired and be sweating at night unless you think it might be hormonal (I used to have the mirena and it made me have night sweats - or maybe menopause?)

You must tell your GP about all of your symptoms. If it's something bad (and I'm not saying it is) you need to get treatment plan sorted, if its something else then you need to find out what and get better. It must be awful feeling this ill all the time. I'm amazed you've not hear anything under the two week rule.

How is the lump in your neck, is it bigger, harder, moveable or fixed?

Please please get on the phone or down the surgery today. Good luck.

lucjam2105 Mon 04-Apr-16 11:13:12

I suppose that you need to factor in the Easter weekend into the 2 week wait thing so maybe you will hear today/tomorrow. Did the GP say he was referring you under the 2 week rule?

I understand that you are scared I would be too. I think you need to see the GP asap and get the tests expidited. Have you had the blood tests and chest x-ray yet?

Massive un MN hugs for you. please let me know how you get on. Don't sit worrying start nagging your GP.

PoshPenny Mon 04-Apr-16 15:29:35

I think you need to let your GP know you're feeling worse and haven't got a scan date yet. If you can get emergency GP appointment all well and good. If not, then I think you need to leave very clear message with the receptionist for GP asking them to chase up the scan because (list your symptoms and explain the tiredness with examples as you did on here). Good luck.

Lumpylumperson Mon 04-Apr-16 17:57:36

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LifeIsGoodish Mon 04-Apr-16 18:09:35

Think of alternative diagnoses, not just worst case.

Tiredness could be your thyroid - meds may need adjusting.

Night sweats could be hormonal - how old are you?

Lump could be a swollen gland, as other posters have said. Or a lipoma, which is benign. Lipoma can grow scarily quickly, but stops when it reaches its maximum.

Stiffness could be anxiety/tension, or you unconsciously restricting your neck movements because of awareness of the lump.

I have several lipomas. Just had largest one removed, it was about 2cm x 3cm x 4cm, had taken only a few weeks to reach that size but then did not change for a few years. I had it removed because I was getting stiffness problems, which we thought might relate to the position of the lipoma restricting me. Between developing that particular lipoma and having it removed, I also had problems with tiredness, depression, anxiety and hot flushes. Borderline under active thyroid and menopause! All dealt with. But the time between diagnosis, beginning treatment, and finding the right combinations and strengths of meds was...a difficult time.

lucjam2105 Mon 04-Apr-16 18:12:55

You poor love. Go back to the gp and tell them all your symptoms and see if they think the scan should be brought forward and if more bloods need to be done.

Only your gp can make the decision the hospital will only do what the gp says unless gp has referred you to a specialist which it didn't sound like he has.

peacypops Wed 06-Apr-16 17:29:43

Your symptoms sound so similar to mine - tiredness, aching joints, night sweats and I have also had a couple of small lumps under each jaw for the last few months. Blood tests, chest x-ray have all come back mostly clear (slightly low ferritin level was the only thing that was flagged up). I have been terrified that I have lymphoma and finally today I had a neck ultrasound (which I have been requesting for months). The sonographer gave me a thorough scan of all my neck area and said she was certain that I had nothing to worry about; that the lumps were just lymph nodes that had perhaps just not returned to normal size after an infection. She reassured me that they were not sinister. I am writing this hopefully to reassure you and to not necessarily fear the worst. Have you had all your thyroid levels checked as apparently thyroid problems can make you feel terrible? I am still no closer to knowing what, if anything ,is wrong with me but I am at least eliminating certain things. Hope your scan goes OK - I know how horrible it is waiting for these things x

Lumpylumperson Wed 06-Apr-16 17:35:20

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weaselwatcher Wed 06-Apr-16 18:16:58

Go back to the docs thanks tell them everything!

Lumpylumperson Fri 15-Apr-16 15:07:20

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LifeIsGoodish Fri 15-Apr-16 18:12:57

Fingers crossed for you smile

lucjam2105 Fri 22-Apr-16 21:31:20

How are you feeling lumpy any better?

Lumpylumperson Sat 23-Apr-16 10:06:05

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Itsmine Sat 23-Apr-16 15:18:19

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Lumpylumperson Wed 27-Apr-16 11:56:37

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lucjam2105 Wed 27-Apr-16 12:41:23

Good luck for tomorrow. I'm sure they will be able to sort you out and stop you feeling so awful.

madamegazelle1 Wed 27-Apr-16 21:00:17

I really hope things go well for you tomorrow- awful being in limbo waiting for the scan but also sounds really hard coping with the way you are feeling.

Freezingwinter Wed 27-Apr-16 21:02:17

Good luck for tomorrow cake

LuluJakey1 Wed 27-Apr-16 21:33:03

Try not to worry. I had a lump in my neck and was referred to see a consultant who said it was nothing. He could tell apparently. He was right- 15 years ago. I was tired and achey and had lost weight and had a stiff neck. It all disappeared magically when he said I was fine. I had worried myself sick, literally. Hope you are ok tomorrow.

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