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First appointment with Rheumotologist, how did yours go?

(8 Posts)
runningouttaideas Mon 29-Feb-16 22:31:51

Finally had a GP listen to me about joint pain! Please tell me its not going to be like my previous experiences with numerous GP's which consisted of a swift glance/touch of my hand, a prescription for Naproxen and a word of warning not to let the door hit my sore arse on the way out!?!

Paddingtonthebear Mon 29-Feb-16 22:36:57

I was referred by GP (after two years!) to a consultant rheumatologist for coccyx pain. Had to wait ages for my appointment, about four months. At the appointment we had a chat about my problems and then he gave me a cortisone injection into the end of my tailbone. I was not expecting it shock.

I've just been back again a year later for a repeat injection.

runningouttaideas Mon 29-Feb-16 22:44:14

Paddington that must be a standard waiting time (2 years) because mine have been going on just over 2 1/2 years, well that's the pain on top of my other pain....long story..

Eek to the injection, hope it helped?

Paddingtonthebear Tue 01-Mar-16 07:22:37

Yes it worked for just under a year and then the pain came back. I had to go back to GP, get a referral, wait 4 months for an appointment and just last week got another injection. It's all a pain in the bum, literally grin

wonkylegs Tue 01-Mar-16 07:49:54

I can't remember exactly as my first appointment was nearly 20years ago. I was diagnosed with sero negative RA - I remember it took a while for diagnosis (lots of tests and observations), it took a lot of faffing with meds to find a combination that worked and you have to give each lot a chance to work so it is not a quick process.
I wrote down questions between appointments because otherwise I would forget to ask them. It's not necessarily a quick process but it's nice to feel like you are finally getting somewhere.
I was quite disabled by RA back then but finding a good combination of meds was like changing. I am currently pregnant and relying on steroids and Painrelief once again and remembering why my meds are so important.

runningouttaideas Wed 02-Mar-16 20:48:25

I'm sure it was paddington grin

Congratulations on the pregnancy and I'm sorry its so tough pain wise. I think I shall write things down too wonky because my memory is shocking right now. I'm just hoping that the consultant actually checks me over, I have so much crunching and burning going on but I never ever swell and my bloods always come back fine other than elevated WBC showing bacterial infection and I haven't had an infection confused.

FurbysMakeSexNoises Sat 12-Mar-16 14:04:10

Can I join the club?! I'm waiting for my rheum appt to come through and results of bloods regarding my swollen stuff and sore fingers/ thumb bases and am nervous as hell I'll get a life changing diagnosis. NSAIDs not helping much for pain but making them less stiff.

Lonecatwithkitten Sat 12-Mar-16 14:31:29

First consult full examination (strip to underwear) to check every joint and look at all Vitelligo and abdominal palpating (he does this once a year). Bloods ( repeated every year) for thyroid, u&es, liver profile, b12, vitD, folate, haematology, Crp, rheumatoid factor, ANA and antibodies specific to one of my conditions. Clotting factors if there are signs my meds are affecting my clotting ( they do sometimes).
We discuss meds do I have any side effects etc.
With currently four autoimmune conditions and bordering on a fifth, he is fab. I am very resistant to steroids for a whole raft of reasons and currently we are dodging them nicely. It's been 10 years now, since I first saw him.

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