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faecal incontinence - what help is there?

(15 Posts)
nibblingfingernails Sun 14-Feb-16 20:23:27

I have had this problem now for just over 2 years since I had a rectocele repair. We are not talking great lumps (sorry TMI) but just enough to wipe away every time I go to the toilet to pass urine. I have had several tests done and its been agreed that I do have a problem with nerve damage and can get some help. The procedure that was offered to me originally was not time effective for me as it would mean travelling to London 6-8 times to have it, so Consultant offered me the Secca procedure.

Has anyone had this procedure or any other treatment to help with leaking? The Secca procedure sounds grim but then so is leaking throughout the day.

Thanks in advance

nibblingfingernails Sun 14-Feb-16 20:50:34

Anyone?

nibblingfingernails Mon 15-Feb-16 10:25:40

bump

flamingnoravera Thu 18-Feb-16 22:33:34

I am afraid i don't have any answers but just wanted to let you know you are not alone. I was hoping there might be more responses for you.

What does the suggested approach involve?

flamingnoravera Thu 18-Feb-16 22:43:18

I just read about secca and can totally understand why you are a bit reticent. I suppose you have to weigh up which is worse? Not having the treatment or having it. If it were me I think I would be willing to try but would, like you want to talk to someone who has had it done first.
I would need a general anaesthetic too, I cannot cope with even the most minor of procedures without panic.

RedOnHerHedd Thu 18-Feb-16 22:44:04

Sorry I don't have any ideas either but hoping that by replying you will get others to see this.
Having just had a quick look at what the procedure is, I would definitely give it a try if it were me.
Good luck thanks

WhoKnowsWhereTheTimeG0es Thu 18-Feb-16 23:12:24

I haven't heard of this, but I do suffer with faecal urgency since childbirth (I've also had a rectocele repair but it didn't make any difference in that respect). Fortunately for me I have very regular habits and very rarely get the urge outside the home so it isn't an issue, but it is a bit close for comfort sometimes and if it got any worse I think I would consider this.

nibblingfingernails Fri 19-Feb-16 19:54:57

Thank you for taking the time to respond, I have a few weeks before I need to make any decisions, was hoping that someone would have a few suggestions.

WhoKnowsWhereTheTimeG0es Fri 19-Feb-16 20:00:31

Could I suggest, that if you use FB, you look for a group called Pelvic Organ Prolapse Support (POPS). It is a large, closed group of women from all over the world whose lives are affected by exactly this sort of condition. There are healthcare professionals in the group too. They are a really lovely, caring, sharing bunch and you may well find people who have had the procedure there.

nibblingfingernails Fri 19-Feb-16 20:26:13

Thanks will take a look!

beigehat Tue 18-Jul-17 16:54:46

hello

did you have secca please?

Footle Thu 20-Jul-17 18:59:37

beigehat, start a new thread with your question about this. OP is unlikely to see this one , and you're more likely to get replies.

Appin Thu 20-Jul-17 19:08:16

Have you considered physiotherapy? I had a fourth degree tear and only have 25% of my sphincter muscles left, so will definitely need a sphincter repair at some point. Two years ago I was recommended to get specialist physio to try and keep me going until my youngest child started school, and it really really helped me. I'm still continent, with feacal urgency and very rare leakage. I'm hoping to avoid surgery until my quality of life is compromised, and physio helped with this.

nibblingfingernails Thu 20-Jul-17 20:53:00

Beigehat did pm me.

I did have the Secca procedure just over a year a go and had a good response. Unfortunately the past month or so I have noticed a fair decline. I am waiting to see my GP as I think I have a rectocele again and am struggling some what. As you can imagine - somewhat fed up!

beigehat Tue 01-Aug-17 19:19:50

Just seen this message, thank you for your reply & sorry to hear you're fed up, I know how you feel, hope things work out. I just saw dr today & he said
1. Some peoples symptoms get worse after SECCA? Is that right?
I'm really scared to have it but I don't have a choice, PLEASE any information you can give about how it was for you would help so much

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