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15 yo DD Mole stressing me out

(22 Posts)
BlueBrightFuture Wed 30-Sep-15 14:55:26

Taken DD to GP at the end of August because I had noticed that one of her moles had grown rather a lot. I looked on the web to see what I could find and the mole seems to have all the markers of being abnormal.

First GP who saw it said she was not sure and asked her colleague to have a look.
2Nd GP said she had the impression that the mole was disappearing because it was lighter in colour at the edges but just to be sure was going to send us to a dermatologist.
Dermatologist took one look at it and said that it had to come out but that she was going to refer to plastic surgeon because of where the mole is and said that although it has to come out it was not urgent.
A week later we were back at the hospital for the surgeon to have a look and plan the operation. Both a Dr and a Surgeon looked at the mole and said that because DD is a few months under 16 they would not be able to do the surgery and that I should wait for a letter from the pediatric surgeon at the hospital who would then perform the removal of the mole. ( no clue why we did not see pediatric surgeon in the first place). I asked the surgeon and doctor again if they thought this mole was malignant and was told that it was very unlikely to be anything sinister but that it should be removed now because if it was allowed to grow it would then result in a much bigger scar. This sort of made sense to me so went home waiting for the letter.

Yesterday I got a call from a hospital in London saying that we were allocated an urgent appointment at a specialist centre in London to have the mole removed this Friday because it was expect to be a rare melanoma which is normally not seen in children???

I don’t understand what happened, I have been reassured over and over again that removal of this mole is just a routine precaution and now all of a sudden it is URGENT and needs to come out NOW??

Totally stressed out, having kittens here!!

Penfold007 Wed 30-Sep-15 15:16:33

How scary for you and DD. Nothing anyone can say now is going to stop you stressing. Once the mole is removed it will be sent straight to the path lab to be checked and then you will have a proper answer.

goddessofsmallthings Thu 01-Oct-15 02:28:24

How awful for you and your poor dd, but please rest assured she's going to the best place for treatment and it may be that your fears will be allayed once the doctors there have seen the mole in the flesh, so to speak, rather than viewing it via a monitor if the hospital you attended sent photos of it to the specialist centre.

[flowers} for both of you and wishing you good news on Friday.

BlueBrightFuture Thu 01-Oct-15 05:38:55

Thanks all so far this has been the longest week ever!

Penfold007 Fri 02-Oct-15 06:31:51

Good luck to you and DD today

BlueBrightFuture Sat 03-Oct-15 17:02:11

Thanks xx It was removed yesterday. Waiting for results. Hopefully by Wednesday. Stressful times!

ragged Sat 03-Oct-15 17:10:37

let us know?

JamesBob Sat 03-Oct-15 17:16:23

Good luck, I hope it is benign. Even a dermatologist can't always tell by looking.

There are various different things it could be.

Sometimes moles grow and look huge and are totally inoffensive.

Sometimes 'regression' as it's known (where the mole disappears or begins to disappear) can be a warning sign that the body is using its immune response to a problem, and trying to get rid of it.

But it could be nothing.

Everything crossed for you xx

JamesBob Sat 03-Oct-15 17:18:04

Btw where have they sent you? Is it St Georges or the Marsden?

BlueBrightFuture Sat 03-Oct-15 19:21:41

St Thomas children's hospital.

Surgeon who did the operation was sitting firmly on the fence... Roll on Wednesday. Will post when I get results. Thanks all flowers

goddessofsmallthings Sun 04-Oct-15 02:17:30

Tommy's is renowned. Was dd treated at the Evelina?

flowers I imagine that the next few days will seem like the longest of your life, but hopefully you'll have cause to celebrate on Wednesday.

BlueBrightFuture Sun 04-Oct-15 22:06:13

Yes or was the Evelina. The nurses were very sweet. They really did their best to reassure DD.

LaContessaDiPlump Sun 04-Oct-15 22:16:58

Hi Blue

I had a dodgy-looking mole removed 2 years ago - it was a red raised patch above another mole and it was itchy. Turned out to be a pre-melanoma, so very good thing that I'm paranoid and had it removed early.

After it was removed, the hospital called to tell me I needed a follow-up appointment. At this appointment they told me that it was a pre-melanoma and that I'd have to have a wide local excision (WLE) where they remove a chunk of the underlying tissue in order to make sure the offending mole hasn't extended itself into the underlying skin layers. I went along and had this done (I couldn't see them do it due to the angle but I like to imagine that they simply used a big spoon grin), then a week or two later they got in touch to reassure me that they'd left a nice healthy margin and that there were no traces of it left.

I haven't worried about it since - in fact I was slightly reassured because I have 200-300 moles (according to dermatologist) and frequently got sunburn as a child, but my paranoid mole-checking was always dismissed as just that by the NHS. Now, though, they listen when I express my concerns. In fact they got a photographer to take pictures of me all over with a very very high-res camera so that future changes can be tracked - this is called mole mapping, do ask your doctor if you can get it done as it costs very little and could be a source of reassurance for you.

I thought I'd share all that as, if it is something nasty, at least it's something nasty which can be readily removed. I'm sure you will still be worried but I hope that some of this helps thanks

BlueBrightFuture Mon 05-Oct-15 16:30:22

Thanks LaContessa, glad to hear you are ok now. Hope DDs result will not require further treatment. The mole was on the underside of her breast so taking out more chunks is likely to be traumatic considering her age. Luckily because it is underneath whatever further treatment will be required will be more or less hidden....

It is just so strange, she has never really been sunburned that I can remember and certainly not burned around the boobs. I used to put her in UV tops when on holidays when they were little and she is far to prudish to go topless....

Will have to wait now... Monday nearly over, wishing my life away!

LaContessaDiPlump Mon 05-Oct-15 16:48:07

These moles - there's no rhyme or reason to them!

Even if she does need more removed, they did a great job on mine and I don't have a gaping hole where it used to me - simply a scar around 5cm long. I'm at work or I'd take my top off and send you a photo! Maybe later grin

As you say, I hope this is all academic and that it turns out to be either benign or very minor.

lljkk Mon 05-Oct-15 18:39:52

I get seborric kerotoses that are rather like weird moles, they are supposed to be genetic, nothing to do with sun exposure. Mine go crusty, eventually I peel them off & forget about for a few yrs before they come back. There are actually quite a few benign skin growths that are mole like. Hopefuly OP will have nothing to worry about.

LaContessaDiPlump Tue 06-Oct-15 06:48:16

Here you go - a WLE 2 years on. It's actually only 3cm long, if that.

BlueBrightFuture Wed 07-Oct-15 11:59:48

Hi All,

Just a quick update. Got the results earlier this morning. The mole appears to have been just a mole... no melanoma, no cancer etc...

They said secondary test have to be performed on the mole but so far it would seem that it will not be necessary to remove more tissue. So happy...

Thanks for all your support all, it really helped with the nervous long wait.
flowersflowersflowers

LaContessaDiPlump Wed 07-Oct-15 12:12:04

Hooray! Very pleased to hear that flowers cake

ScarlettDarling Wed 07-Oct-15 12:20:19

That's lovely news, so pleased to hear that.

I've been lurking on this thread, waiting for an update. My daughter is currently waiting for an app with the dermatologist to hopefully identify and remove a peculiar skin growth on her face. I'm very anxious about it, so was thrilled to hear your good news!

BlueBrightFuture Thu 08-Oct-15 13:50:54

Hi ScarlettDarling,

I hope you will get some good news as well soon.

For what it is worth apparently it is rare for young people to have a "bad" growth but it is better to be safe and deal with it rather than the other way around. I know it doesn't make the waiting less stressful does it?

Let us know how you get on.

ScarlettDarling Fri 09-Oct-15 21:58:25

brightBlue thanks for that. any good vibes gratefully received flowers

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