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Any hyperhydrosis sufferers?

(18 Posts)
TabithaTwitchEye Sun 23-Aug-15 20:02:05

It's not the coolest of conditions fnarfnar just wondered whether there was anyone else out there?

I've tried lots of things, dryclor (which has left me scarred) pills, Botox when I was younger.

It's rubbish and I hate it.

CurlyhairedAssassin Sun 23-Aug-15 20:14:48

Me too. It's a horrible thing to have. Made my teens a nightmare. In fact my life has probably taken a different path to what it might have, because I have avoided certain situations and made different choices because of it.

I have given up on trying to solve the problem. I find alcohol helps - must expand the blood vessels or relax whatever it is that causes it (obv anxiety makes it worse - I dread job interviews purely beause of the handshake but it's not like I can have a couple of Vinos beforehand and go in smelling like a wino!)

At my most desperate I ordered a device over the Internet from America. One of those electrical water bath things. I wouldn't recommend buying something that way - it did work but I think it wrecked the nerves in my hands for a while because I had twitching sensations!!! shock. I guess the way to do it is via a hospital with a proper iontophoresis machine but having to go regularly would be too disruptive.

I'm not too bad for most of the year. July and August aren't good. Attending summer events like weddings are a nightmare.

TabithaTwitchEye Sun 23-Aug-15 20:22:10

curly thanks so much for replying. It's such a "hidden" - because we spend so much time and energy trying to hide it - disorder, associated with so much shame (well, for me, anyway).

I've yet to find a GP that will refer for treatment other than what I've already had. Fucking depressing.

WhoNeedsToDream Sun 23-Aug-15 21:51:15

My DH has suffered for years, many a t-shirt has been ruined due to sweating. He's recently started using Anhydrol Forte and it's made such a difference.

MrsBalustradeLanyard Sun 23-Aug-15 21:56:36

Acupuncture!! Please please, all of
you, give it a go.

I tried it 6 years ago, it cured me almost 100%, then had to go back for a set of maybe 8 sessions again last year. It's been worth every penny for me.

GPs knew nothing, I couldn't have Botox as it affects only my head, beta blockers made me feel ill as fuck.

Acupuncture is the only thing that has ever had any affect. I can't sing its praises highly enough.

MyHeartsPumpingWine Sun 23-Aug-15 21:57:34

I'm plagued by this-in a mild form I suppose and mainly underarm area, unless it's warm thankfully I live in Scotland
I live in black to disguise it and go through perfume and deodorant and a great rate of knots.
My GP has been less than sympathetic which is frustrating

Hackersschmakers Sun 23-Aug-15 21:58:43

Driclor is the only thing that works for me. Having suffered through the burning and itching my skin seems to have for used to it and I use it once a month now.

PullUpsAreTricky Sun 23-Aug-15 22:28:00

hi i suffer from this. I had a bilateral sympathectomy 20 yrs ago and it was a god send. But as a result i get compensatory sweating elsewhere. My hands were the worse part of me effect as i also got pomphlix associated with the hyperhydrosis. I do now sweat a little on my hands but its normal. I do a job where i wear medical gloves all day and manage fine.

CurlyhairedAssassin Sun 23-Aug-15 22:41:43

Tell us more about the acupuncture, mrsBalustrade. How did you come to try it? And how did you find the practitioner?

TiggeryBear Sun 23-Aug-15 23:15:41

Pullups I think that I had the same procedure too. I used to suffer terribly, my hands were permanently soaked - imagine dunked in a washing up bowl and not wiped off. Writing with fountain pen at school was impossible. I was fortunate enough to see a locum doctor at my GP surgery following a sprain to my fingers during a PE lesson who refered me to specialist. I suffer from some over compensation sweating, mainly my groin & feet, but I can at least write properly & drive (a massive concern growing up as I never thought I'd be able to grip a steering wheel without having to have a towel on my lap) the only downside I seem to have encountered is my hands are now so dry I need to use a lot of hand cream. But it's a small price to pay in my opinion.

BumpAndGrind Sun 23-Aug-15 23:32:55

Checking in.

It's a big sweaty pile of shit, isnt it?

slippermum Mon 24-Aug-15 00:35:01

Hi, My daughter suffered terrible with this for years, got her botox on her armpits and that stopped it everywhere for a couple of years.

MrsBalustradeLanyard Mon 24-Aug-15 08:23:31

Curly I suppose it was desperation! I was getting married and couldn't face spending my wedding day looking like I had just stepped out of the shower.

Someone told me about an acupuncturist they had used, so it was word of mouth really the first time. I had around ten sessions of an hour each time; it cost £40 a time but I would have paid double, because it worked so well.

Now I have found someone quite close to home who is just fabulous. It's like part treatment part therapy. I absolutely love going, it's so relaxing and makes me feel great.

I think there is a British Acupunture Council or something, so you can check who is registered and legit.

PickleFish Mon 24-Aug-15 09:23:30

Yes, me. Facial. Not diagnosed officially - tried mentioning it to my doctor a few times but she's not really taken me seriously. Underarms a bit too, but mostly my face.

I've tried the various creams and lotions on the hyperhidrosis support website, and there's been a small difference, but not great. I have found that the Sweatstop brand spray worked quite well for underarms, but that wasn't my main problem - I even started putting a bit of the strong version of that on my face, as I was getting desperate, but it's really harsh.

It only affects me seriously in the summer when it's hot/humid (or when I exercise other times of the year, or am in a humid place), which is why I expect the GP doesn't really take it seriously, because I know hyperhidrosis is supposed to be an all the time thing. But the difference for me is that it goes from being fine all year, to being seriously excessive as soon as it's hot - sweat pouring off my face, trying to sing in choir concerts dripping on the music, carrying a little flannel with me to mop up between pieces, being totally unable to exercise in the summer, enough that other people comment on my face, etc. So while it's not exactly the diagnostic conditions of it being a serious problem all year, when it does start, it is much, much worse than the average person's sweaty face.

What I'd like is medication that I could take just on the days that I know it's going to be really hard to deal with, like concerts. I cope on other days, avoid exercise (would be useful for those days, too), but when you're in public and it's so obvious and uncomfortable and restricts activities, it would be nice to have a tablet that would reduce it just for a time. I don't know about taking tablets long term, but just on occasion.

RunAwayHome Mon 24-Aug-15 09:25:00

interesting about the acupuncture. Is it specifically for the certain parts of the body that sweat lots, or is it a more general treatment that a certain acupuncture point affects sweating globally over the body? Or is it more of a relaxation thing that then reduces triggers for sweating?

TabithaTwitchEye Mon 24-Aug-15 10:31:25

I'd REALLY like to hear more about acupuncture!!

MrsBalustradeLanyard Mon 24-Aug-15 13:08:02

Well, it's hard because as far as I can tell, there are different types of practice.

The first guy put a load of needles in various places, then left them in for an hour. The woman I see now moves them around a lot, uses moxa, combines it with acupressure - she's very, very experienced, and has a very clinical approach. However, the background of it is total woo, so I can't say why it works, or what exactly is being treated, I just now that it has made my life so much better.

MrsBalustradeLanyard Mon 24-Aug-15 13:08:24

know sigh.

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