Hi all, was wondering whether anyone whose baby had a cleft and was all clear on kidney/heart scans at birth (classed as 'isolated' cleft) then went onto develop further (hidden) problems later in development? We have had genetics appt/basic scans done at birth on my 6 month old but still concerned that isn't necessarily the end of the story?! Apparently they'll be no more major organs tests etc done from here on...! Is that right?! Can anyone advise? Thanks
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