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Crohn's disease

(41 Posts)
Debinaboat Fri 26-Jun-15 19:24:58

Does anyone here suffer from Crohn's disease ,without weight loss?

Debinaboat Fri 26-Jun-15 19:26:57

I ask because I have all the symptoms of Crohn's ,but am still overweight .so just wondering if it possible to have it ,with out the weight loss symptom .

WiIdfire Fri 26-Jun-15 19:27:54

Yes its possible. I dont have it personally, but have had patients with it who have still been overweight.

Debinaboat Fri 26-Jun-15 19:29:42

Thank you wildfire ,
Can I ask if you are a gp? Can I ask you a couple of questions about Crohn's

ilovemydoggy Fri 26-Jun-15 19:38:26

Yes. I have crohns and am over weight. Even more so when I get put on steroids. I can try and answer any questions for you. Been diagnosed now for 6 months.

ilovemydoggy Fri 26-Jun-15 19:39:08

6 years sorry not months. Since feb 2009.

Debinaboat Fri 26-Jun-15 19:54:45

Thank you ilovemydoggy,
I have thought for years that I had Crohn's ,never voiced it to my gp tho because I always believed weight loss was a huge part of the disease ,so all my symptoms have been put down to ibs.
But I had blood tests done ( for a different thing) and I got the results today ,they show that I am deficient in vit b 12.
On googling ( I know I shouldn't ) it seems that this might indicate Crohn's ,and added to all my other symptoms ,I am now wondering if I do in fact have Crohn's .
Do you know anything about vit b 12 ? And the reasons for a deficiency of it ?

ilovemydoggy Fri 26-Jun-15 20:05:35

Do you loose any blood when you go a toilet? In crohns this is linked to low iron levels which can be caused by bleeding when going to a toilet. What other symptoms do you have? They is a brilliant Facebook page for crohns.

MrsPnut Fri 26-Jun-15 20:07:48

I have ulcerative colitis and am overweight. I lose some during a flare but it all piles back on afterwards.

What symptoms of crohns do you think you have?

Debinaboat Fri 26-Jun-15 20:13:26

I will have a look for the Facebook page thanks .
I don't appear to be anaemic as such ,my blood levels are good .its the vit b 12 that I am low in .
I don't think I lose blood when I go to the loo ,but I can have mucus in the stools .
I get gripping pains,very similar to labour contractions ,and I can hear the liquid in my body ,it sounds like someone has turned on a tap .
And with little warning ,can be on the toilet with what can only be described as liquid ,pouring out ( sorry ,that's probably tmi)
It can be out of the blue ,or it can be after certain meals .
Does that sound familiar to you ?

Debinaboat Fri 26-Jun-15 20:16:03

Sorry ,the other symptoms are extreme fatigue ,always .if I sit down ,I sleep .
I have joint pain .
And a weird thing with my knees ,at night they are scarlet red and feel a bit swollen .from just above the knee to just below ,both knees .

wannabestressfree Fri 26-Jun-15 20:16:23

Yes I do and am overweight. I also have injections for B12 Deficiency but have recently been diagnosed with pernicious anemia.
I had lots of other symptoms of crohns though and the disease was diagnosed after surgery. I now have a permenant colostomy and next to no bowel.

wannabestressfree Fri 26-Jun-15 20:17:52

That could be down to B12 deficiency- the extreme fatigue I mean. Have you had a colonoscopy?

MrsPnut Fri 26-Jun-15 20:18:36

I had diarrhoea all the time, and had begun passing blood with it.

I had stomach cramps and urgency. I'd get the feeling and know I needed the toilet that moment. I was so bone tired and no enthusiasm for anything.

I had symptoms for about 2 years before I went to my GP and I saw a consultant very quickly and had a colonoscopy and endoscopy within a few weeks. I was diagnosed after that and it took about 18 months to get my meds right but I haven't had a flare in over a year now.

ilovemydoggy Fri 26-Jun-15 20:18:43

I get urgency to go a toilet a lot. Sometimes instantly after food other times an hour or so later. I loose a lot of blood when I go to the toilet and always have mucas. Only recently since I had a dose of steroids and increase in tablets I have been having soild toilet other then that it's very watery. Make sure you join the crohns and Colitis UK forum and that's a closed group so no one can see on your friends list what you write. Go and see your gp you might be surprised.

ilovemydoggy Fri 26-Jun-15 20:20:32

My knees are really painful also my hips and back the doctors have now put that down to arthitics. I'm only 35.

Debinaboat Fri 26-Jun-15 20:21:05

So it seems that weight loss is not always the first thing to look for ,
And I should bring it up with my gp,and not have my question dismissed because I am overweight?
Thank you for your replies ,every bit of info helps .

MrsPnut Fri 26-Jun-15 20:23:21

My bloods don't show particularly high inflammatory markers nor do my other blood results look anything out of the ordinary even when I'm in flare. I had a fecal calprotectin test done which was off the scale. It should be under 50 and mine was about 350. That was the only indication that I had such a large amount of inflammation.

Debinaboat Fri 26-Jun-15 20:25:42

Oh I missed some posts there ,I am a slow Typer:-)
Wannabestressfree ,iv only ever been treated for ibs,and not had any investigations done at all .
From reading ,I can see that the vit b12 deficiency can be a cause of fatigue also,but I don't know why I am deficient .
A bit more investigating needs to be done I think .

Debinaboat Fri 26-Jun-15 20:28:28

My bloods did show signs of inflammation ( is that the right way of putting it )
But when the blood tests were done I had a bad throat infection ,so I think the results have been put down to that

shadowfax07 Sat 27-Jun-15 00:26:00

Deb vit B12 is absorbed in a certain part of the colon, the terminal ileum. If this is inflamed, then it can't absorb vit B12. You'd need a colonoscopy to know where inflammation is in your bowel though.

Debinaboat Sat 27-Jun-15 07:52:48

Thank you shadowfax07
I think I will have to put my concerns to my doctor and see what he thinks .

MrsPnut Sat 27-Jun-15 08:17:38

I would work out how long you have had the symptoms for, and go to the GP armed with your information to ask for a referral to a gastroenterologist. You'll have to have a set of bloods taken because they won't accept the referral without them (or so my GP told me) but it should be a fairly straightforward process.

I'd be fairly firm about wanting a referral - don't be fobbed off with them telling you it's IBS. IMO, you need a colonoscopy to see what's going on and only the consultant can order one.

Debinaboat Sat 27-Jun-15 08:54:42

Iv had the symptoms for years ,i have always believed it was ibs and assumed that some foods dont agree with me ,but the diarrhoea can be so sudden and unpredictable sometimes ,and it can be In the middle of the night,I wake up thinking I'm in labour ( not pregnant ) the pain is so bad ,and then I spend 1/2 hour on the toilet .go back to bed only for it all to start up again within minutes .

MrsPnut Sat 27-Jun-15 10:17:16

That does sound more like IBD than IBS

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