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I've had bowel/stomach problems for years.. terrible left sided pain..sometimes right.. sometimes the runs, sometimes constipation. Pasta or bread always makes me feel dreadful..pain bloat and unwell.
I also have intermittent ataxia and peripheral neuropathy problems...have never had a proper diagnosis for WHY.. it comes and goes in severity (but enough to need a blue badge for bad days)
I had a colonoscopy that showed diverticula (not that surprising given my age) but it didn't really account for the constant pain and bloating.
I'd never really thought about coeliac disease or knew anything about it until DS1 had a girlfriend who was a coeliac..and seeing me with a hot water bottle clutched to my stomach, suggested I should really get tested. I had never heard that it could cause ataxia too, but apparently it can.
I don't want to look a fool, going to my gp and demanding tests if I'm way off base, but are there any poeple here who can tell me if it's likely? I try to avoid eating bread and pasta etc but have not gone properly gluten free . Would I need to eat a load of gluteny stuff for the tests to be accurate ? or would eating the odd cake/ Alpen for breakfast (ouch) be enough?
I don't think you need to stuff yourself with bread & pasta, just normal diet for 6 weeks prior to the test. It really depends on your GP, presenting symptoms are so much like ibs that they could fob you off. I had 6 months of constant diarreah & pain & GP only ordered the test bc I went in there crying one day!! It's worth doing though bc you get the prescription for food which does bring costs down. Good luck x
Im interested too......dreadful psoriasis for five years, chronic anaemic, and if I eat much wheat it floors me with headaches. Yesterday I had two pints of wheat beer and had to dash inside a pub In a pure emergency, uncontrollable diahorrea.
If you want to get tested, be careful on how much you cut it down.....I cut out bread couple of months ago, if I eat it now, I'm doubled up in stomach pain. And will also have a crippling headache. I seem to have made my symptoms worse.
Go with your gut (excuse the pun!), and go to the gp. It would be better to go and look a fool, then to suffer indefinitely. Why don't you go and present your symptoms and see if he/she will refer you for tests. If he/she fobs you off with iBS, then start demanding tests and mention vie alias.
Have you looked at the Coeliac UK website? Maybe worth talking them also.
You can do an on-line assessment which tells you if you should/should not get tested for Coeliac disease. You register your email and can choose to have the result emailed to you. This can then be shown to your doctor
OK you can go to your GP and describe your symptoms and ask for a blood test for coeliac.
Now let me me tell you my story. I got blood test for coeliac which came back negative. I felt so bloody awful I went gluten free anyway, I was at the stage I felt I had nothing to lose by doing so. So it turned out to be the best thing I'd ever done, discovered I had lactose intolerance as well once I'd removed the gluten. 20 months on I've now decided I want a proper diagnosis (or not) and will have an endoscopy in September. according to the GI specialists the blood test is not infallible. I've been told I will have to eat gluten every day for 4 weeks prior to the endoscopy.
so I think if I was you I'd be doing some research and asking for an endoscopy as well as the blood test.
None diagnosed fluffy, but I do wonder about Hashimotos. I lost a stone easy peasy when I first went GF, after 4 years of not being able to lose a thing and hearing and sight went back to normal from being pretty grim. I did get a thyroid antibody test done, I was told "normal" but by then I had been GF for over 6 months. I'm going to go and ask for it to be re done at the end of this gluten challenge in the autumn. I do have thyroid issues that I get treatment for privately, the NHS claim there nothing wrong with my thyroid which is not true as I've felt so much better for the treatment, but still sadly a bit of a fat old trout.
That's very interesting, penny, cos when I hit 25 I put on over four stone in four months! Dr said it was gynecological issues I had, but im now beginning to wonder......I just couldn't shift it until I went low carb I dropped it all at the rate of well over a stone a month, it just fell off me.
There's no way I could handle endoscopy, think if today's test is negative, Im Going gf anyway.
Oh, yes, super worm, I get the neuropathy thing when v tired or stressed, always put it down to my psoriasis. Always outer legs and arms, can't bear clothing on them. Wow. Celiac central is a great site.
I went to the GPs a while ago because I have problems with constant bloating and it was/is really getting me down. They arranged for a series of tests including coeliac and bowel cancer and were very understanding. They certainly didn't make me feel like I was over-reacting.
Luckily for me they came back negative so I'm still trying to work out what causes it.