Hi,
10+ yrs ago I had Glandular Fever. That seems to have triggered whatever is wrong with me as I've been ill ever since.
About 6 months after it was confirmed I had Glandular Fever I was diagnosed with CFS/ME, as I was not getting any better.
I'm not convinced that I 'just' have CFS/ME. My symptoms are listed below;
Severe tiredness
Headaches
Dizziness
Balance - feel like I'm falling backwards
Pain in hips
Hives and rashes on jaw/face/neck - no known trigger
Flu-like feeling
Memory issues - Long term fine, short term not very good
Weakness in hands/arms/legs/lower back
Burning feeling in skin - back of calves and side of hand/arm
Pins and needles - arms, legs and mid back next to spine
Always cold, even in very hot weather
Stiffness in body in morning
Difficulty picking things up, opening jars etc
Get words mixed up when speaking and forget what I'm saying halfway through a sentence
Painful stomach - on Omeprazole
Muscles feel tight and 'squeezed'
Hands and fingers always feel tight and swollen (don't look it) plus skin on my finger pads are normally wrinkly??!
Back pain - physio didn't help
Sometimes have difficulty swallowing
Sometimes eye blur - eye examine normal
'Flashes' in eyes when I turn my head to the side (not every time though)
Sometimes shake
Dry eyes
Palpitations
I've been to the doctors numerous times and they always just do a blood test which comes back normal every time. I've asked to be referred to someone but 'There's no one to refer you to'.
I have reached my limit now. My tiredness rules mine and my family's life.
I would happily live with all my other symptoms if I could just get rid of my exhaustion.
Please can anyone help? I'm even willing to go to the woo side if it helps!!
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General health
Please tell me what's wrong with me - at the end of my tether
64 replies
FinallyDiagnoseMePlease · 08/12/2014 09:56
OP posts:
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