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Anyone had a complex cyst that was benign? So worried :(

(10 Posts)
nikki1978 Sat 08-Nov-14 21:46:13

I am having a laparoscopy in a couple of weeks as an ultrasound in June showed an 8cm cyst which was originally thought to be simple but when I was referred to a gynaecologist (I had a large cyst 8 years ago which was drained so they referred me due to my history) they got another ultrasound as the first one wasn't clear. This was done by a very experienced lady (apparently) and she spent a long time and took 18 pictures then said it was complicated and there were several types of cyst but she didn't see anything that worried her. I went back to the gynaecologist who said the cyst was 8-9cm and complex but there was some rectovaginal septum involvement which made him think endometriosis but the ca125 was low at 19 so that seemed to write off the endo idea. He said the cyst was like a twisted balloon in that it had 2 or 3 compartments. I asked about cancer and he said it doesn't look malignant and didn't seem concerned about that idea. So he said he would do a diagnostic laproscopy and maybe take the cyst out if it turns out to be simple or haemorrhagic if it was complex or there was endo he will refer to the endo clinic he runs (he is an endo specialist and has 30 years experience as a gynaecologist). I also had a bad pelvic inflammatory infection 5 years ago so there may be damage/adhesions from that.

I am just scared it is cancer. Everything I read about cysts with compartments says dodgy and can be malignant. I hate the fact that they don't really know what is going on in there and what they might find. I don't know if I am more scared of the op itself or the result!

Some stories of complex cysts that turned out ok might calm me down temporarily if anyone has one!

Thank you flowers

nikki1978 Sat 08-Nov-14 21:46:29

Sorry that was long blush

Hedgehogging Sat 08-Nov-14 21:52:16

Friend of mine did- ended up having it monitored by ultrasound every 6 months. Not sure if it's still ongoing but that was 3 years ago and nothing doing since.

Ca125 is a tumour marker for ovarian cancer, not to do with endometriosis, so it's reassuring that's low.

Sorry I haven't got personal experience but hope it all works out okay thanks.

Hedgehogging Sat 08-Nov-14 21:55:45

Sorry, just googled and I see ca125 can be raised in endo actually. But the fact that it's low is good from the nasty stuff point of view.

Best of luck Op.

nikki1978 Sat 08-Nov-14 22:44:38

Thanks smile

nikki1978 Sun 09-Nov-14 10:28:26

Anyone else?

Le1890 Sun 09-Nov-14 11:47:44

I have a complex cyst on my liver. I read all the same things.

I had an MRI scan and monitoring for 6 months. That was over 4 years ago and know if I had had liver cancer I would not be here by now.

Try not to worry altho I know easier said than done. They can usually tell what looks like cancer. So that's reassuring x

nikki1978 Sun 09-Nov-14 21:26:08

Thanks that's reassuring. So much negative stuff on the Internet! Not what I need to get me through the next few weeks tbh!

lucjam Sun 09-Nov-14 22:20:14

When is your op? I'm having it done on 26 Nov. Scared too. Waaahhh :-(

nikki1978 Sun 09-Nov-14 22:23:30

27th! We can be shit scared together smile Did we talk before about cysts?

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