This is page 1 of 1 (This thread has 14 messages.)
Mumsnet hasn't checked the qualifications of anyone posting here. If you have medical concerns, please seek medical attention; if you think your problem could be acute, do so immediately. Even qualified doctors can't diagnose over the internet, so do bear that in mind when seeking or giving advice.
I dont have this but have chronic pain, have done some reading on meds and there has been a couple new ones having good success recently- I think Gabapentin and Pregablin were the ones mentioned, good luck. I can second the heat suggestion- it can sometimes work better than strong opioids
Yeah, I have taken pregabalin since I was 15, bloody miracle that stuff is, couldn't move out of bed before I was put on it. Gabapentin didn't do nearly the same job but it's cheaper so you would likely be offered it first.
If the worst pain is in specific places you could ask for versatis patches which are local anasthetic in a patch, they are very expensive as well though so some convincing could be needed and also buprenorphine patches, they're a synthetic form of morphine and technically not addictive I think and not too strong. Good for when you can't keep up with taking enough painkillers to do anything to the pain.
That deep freeze spray is quite good too.
I think it's actually surprisingly common, well it's pretty common that there are lots more people than thought with invisible pain conditions. Mines was diagnosed as fibro and then Ehlers Danlos. We have no idea if is EDS along with fibro or just EDS.