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Being send to a hematologist because of persistent raised neck gland. Scared.
Ok, so I was feeling awful for months. Really tired, daily headaches, feeling weak etc. Tbh, I was kind of putting that down to not getting enough sleep, but I went to the doctors anyway and she did some blood tests. Came back I was quite severely anemic. Since then, I have been taking iron tablets and within a few days, I was feeling human again. I hardly ever get headaches now and it's such a relief. I then had another blood test, to make sure I was responding to the medication, but whilst I was there, I asked my GP to check my neck, as I can feel several raised glands. She can only feel one, but I've had that for months, since last summer I think, cos I remember feeling it on holiday. Anyway, she agreed it needed watching and told me to come back in a couple of weeks to check it had gone down, cos I was getting over a virus at the time, so was hoping that's why my glands were up.
My hemoglobin levels have come back normal on the next blood test, but my white blood cells were a little low, which again, could be to do with the virus that I had. Nevertheless, it was quite alarming.
I have had a 3rd blood test and my hemoglobin levels were still ok and actually my white blood cells were back to normal, so I was relieved. I then did some research and found out that the nasty things, which I was obviously wanting to rule out, don't necessarily show up in your blood.
I went back to my GP last week and she could still feel the gland was swollen, so she has referred me to the hematologist. I am seeing them next week and I'm really worried. She said it was probably nothing to worry about, but that I had an emergency appointment. They'll probably do an ultrasound and then take it from there.
I think maybe I'm more worried because it was only 2 years a go that I had a cancer scare, which seemed to go on for ages. It really effected me emotionally, as I really genuinely believed I was very poorly. From finding a cyst, to being given the all clear, it was about a month and I don't think I got any sleep tbh. Awful time. Of course I was very lucky to get the all clear, but I think that's maybe why I'm getting so worked up about this appointment.
This is bound to be scary. If GP has done lots of blood tests I'd have thought they'd know if you have any cancer markings.
Ihad something similar to you and did get diagnosed with lymphoma but it was diagnosed really quickly. It took only days from first concern raised about lumps in neck and other symptoms which I hadn't realised were connected by GP to getting in the system and although the treatment wasn't pleasant and was long, I am cured.
I am sorry you are going through this. Do you have anyone win RL to talk to?
Many people have swollen glands which turn out to be nothing serious. Having slightly low white cells which are now back to normal is not unusual either. Try not to worry. Doctor is just being cautious.
at my haematology appt you have your blood tests done and results back in about an hour and the doctor goes through them with you straight away. That's for straightforward blood tests like FBCs and liver function - for more involved tests might take a few days for results to come through.
Doesn't have to be anything scary, I have had problems with the glands in my neck since I was about 15 (nearly 20 years ) . They are larger than normal and when I get a bug they swell up massively (think golf ball sized). The docs reckon that they became over sensitive during a bout of glandular fever. I've had scans, blood tests and biopsies as well as operations to remove 3 of the worst but the problem lingers. After the last op I asked the consultant what the diagnosis was. He said I was just a lumpy person
Treatment ended jam 2013 and declared cured April 2014. Symptoms were: night sweats, itchiness (really really bad), overwhelming tiredness, huge lumpy glands, constant being ill with coughs colds etc. all of which I could put down to menopause, 3 kids, two jobs, hay fever etc so stupidly didn't seek GP advice until about 8 months after huge lumpy glands. Saw locus Friday, my GP Monday and haemotologist the following week when had full range if tests inc bone marrow biopsy. But GP told me on the first Wednesday he thought lymphoma. It was Hodgkin's- really curable. It all started mid June and was having chemo beg august.
I hope you are ok. It's the waiting that's so hard . I couldn't sleep with worry of how to tell 3 kids if mummy was ill! But on fact they were amazing.