newly diagnosed with CF - sources of support and any advice needed

[sombrero]

Children of friends of mine have just been diagnosed with cystic fibrosis. Is there anyone out there who can offer some words of support? some ideas about where they can get support? anything at all that might help? I will send them a link to this thread. (I'm a regular btw but have changed my name so - should either of my friends decide mn is a place to hang out a bit, I will have a bit of anonymity)

[popsycal]

I do not know anything about CF but I teach an 11 year old with CF and he lives a full and 'normal' life.

[thewomanwhothoughtshewasahat]

bugger my anonymity, can't be bothered to change my name. just bumping this as may be seeing friends soon