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Suspected RA diagnoses, talk to me what life is like with arthritis

(103 Posts)
2fedup Thu 02-May-13 21:14:01

Message withdrawn at poster's request.

OHforDUCKScake Thu 03-Oct-13 20:42:34

Hi Candy I took a sly photo of the print out of what he wanted to test for, there was quite a few it looks like he tested for everything

Anti-nuclear Ab
Anti-neutrophile cytoplasmic Ab
C reactive protein level (CRPS)
Electrolyte and Cretinine (ECS)
Erythrocyt sedmentation rate (ESR)
Full blood count (FBC)
Rheumatoid factor lecel (SRF)
Thyroid function test
Urea Level

And all was normal.
I asked for specifics for my HB and Rheumatoid factor, the HB was 11.9 and the Rheumatoid factor was 'less than 10'

And 'all of the, are normal'

MrsStarwars Thu 03-Oct-13 21:08:27

I was diagnosed with RA about 3 months ago and was tested for all the same things you've listed above plus anti CCP antibodies. If this is positive, and at a moderate or high level it can help confirm the diagnosis of RA and may indicate you are at more risk of joint damage, low levels are less significant. Might be worth asking your GP for this blood test too. I had positive rheumatoid factor plus positive ccp, thankfully it has been caught early and there is nothing much to see in the X-rays that is out of the ordinary. I'm currently taking methotrexate, hydroxychloroquine and naproxen. I'm due for a review with the rheumy in 2 weeks but things have been much better since starting the treatment. Hope you can get some answers soon.

Hey, just popping in, I have psoriatic arthritis (PsA) which is basically the same thing as RA, but linked to psoriasis. Am still breastfeeding ds2 so cant take mtx, but on sulfasalazine, 1g naproxen, omeprazole and lofepramine, plus depomedrone injections every three months. Nothing has so much as dented it yet since I was diagnosed this time last year.

Ducks, PsA has none of the markers for RA, if that possibly helps?

mineofuselessinformation Thu 03-Oct-13 21:30:27

Hello again.... Just coming back to ask a question.
My hip has been painful recently, escalating to screaming pitch when I drive for more than 30 mins. I need to do a 1 1/2 hr drive on Saturday (and back again - I'm dreading it) so wondered what the best combination of painkillers and anti-inflammatories is? I have paracetamol, ibuprofen, diclofenac and codeine. I know I can't take the ibuprofen and diclofenac together--and don't want to be off my face when driving--. Should I start taking the max dose of paracetamol the day before (a gp told me that I should really try to keep a level in my system) but usually try not to take anything unless I really need to.
Probably a slightly dim question blush but thought someone could give some advice.

LostInWales Thu 03-Oct-13 21:57:17

AS someone who has more than she really wants experience of managing pain, paracetamol and the like are much more effective if you keep the dose up over a period of time not just when you start to have pain. If you have a happy liver etc etc I would start now, taking the appropriate max dose for the day over the correct intervals. This should help a lot. Also tag teaming with an anti-inflammatory (see 'Losty's short lecture on NASID's and stomach health' wink ) So if you can take paracetamol 4 times a day and ibuprofen 3 times per day (check it's a while since I've taken either) try and make it so you can spread each of the type of pills out so you never come to the end of both at the same time IYSWIM. Then get the children to bed and take the codeine and get a heat pack on your hip when you get home!

mineofuselessinformation Thu 03-Oct-13 22:04:42

Thanks Lost. Sorry if I've trivialised what you or anyone is going through. (I know things could be SO much worse for me than they are.)
I will start tonight and stop being so lazy about it. smile

mineofuselessinformation Thu 03-Oct-13 22:05:53

Oh and I do know about omeprazole and the like - dd had to take it when on a high does of steroids.

LostInWales Fri 04-Oct-13 07:52:32

There is nothing trivial about pain of any sort. I don't think people are educated enough about how to use painkillers which is such a shame because they are really helpful!

candycoatedwaterdrops Fri 04-Oct-13 08:24:16

Beyond Did/do you have normal CRP and ESR?

candycoatedwaterdrops Fri 04-Oct-13 16:50:53

I meant to say this morning but was in a rush....

Duck - have you looked into fibromyalgia? That can cause the symptoms you describe.

OHforDUCKScake Sat 05-Oct-13 20:47:40

Thats been mentioned to me a couple of times actuall so I looked at e symptoms and no thats definitely not me at all. I couldnt identify with any of the symtoms.

My mum has polymyalgia (which isnt as bad as fybromyalgia) and her symptoms dont match mine at all either.

mandmsmummy Sat 05-Oct-13 20:52:42

Anyone had side effects like breathlessness from naproxen, ibuprofen? X

OHforDUCKScake Sat 05-Oct-13 21:13:58

No I have no side effects from either, thankfully. Do you have asthma? I know ibruprofen can be a trigger.

candycoatedwaterdrops Sat 05-Oct-13 21:26:21

Do you have joint swelling, Duck? What are your symptoms, if you don't mind me asking?

mandmsmummy Sat 05-Oct-13 21:28:14

Not as far as I know duck! But they are having that effect on me. X

OHforDUCKScake Sat 05-Oct-13 21:52:22

I dont think Ive had swelling no.

My wrists joints are very very painful, radiating at the outer joint where the knobbly bit is, and my knuckles are very painful and stiff in the morning. The bottom of my thumb joint causes me awful burming pain.

I have pain in the elbows, knees and when its all very bad, in my shoulders.

My joints crack during a flare up, but not im between when Im fine.

I have typical symtoms of carpel tunnel and have done for about 6 years and regularly wake up with hands blown up to 3 times the size (think blown up marigold!) and pins and needles.

Im slim and not over weight so I cant blame that, as I know weight can effect joints.

Ive also been getting horrendous fatigue, this is the first night in a week Ive been up past 8.30pm.

OHforDUCKScake Sat 05-Oct-13 21:53:54

I also got a searing pain at the bottom of my hand/top of my wrist a few weeks back, ran it under the tap as the pain was that bad and within 30 minutes a huge long black bruise appeared and stayed there for about 2 weeks.
I forgot to tell my doctor this, I have a picture will show him monday but I have no idea if this is related.

candycoatedwaterdrops Sat 05-Oct-13 22:11:10

In my completely unprofessional opinion, it's very unlikely to be an inflammatory type of arthritis given you have no/little swelling and no inflammation showing up in your blood. Have you been tested for vitamin D and thyroid?

OHforDUCKScake Sat 05-Oct-13 22:20:57

Oh I see. I didnt know that. It hurts to touch my wrist, but I cant see any swelling, I dont think.

My thyroid is fine. Dont know about vitamin D.

I suppose I will just have to keep taking painkillers then and never knowing what it is. This thought is a pretty awful one though. It makes me feel quite sick having to just deal with all the pain and tiredness and not know what it is thats effecting my life so much.

mandmsmummy Sat 05-Oct-13 22:26:55

I don't have swelling or imflammatory in my bloods but I have ankylosing spondylitis (an imflammatory arthritis) x

candycoatedwaterdrops Sat 05-Oct-13 22:34:20

Oh yes, that's true but arthritis of the spine presents differently. Apparently, it is difficult to detect swelling in joints such as; spine and hips but for hands, wrists, elbows, knees etc - swelling in inflammatory arthritis is generally obvious, if not to the patient, definitely a medical professional.

mandmsmummy Sat 05-Oct-13 22:44:28

Yes you're right x

I don't know the exact result of my bloods, will see if I have them around anywhere. But even if my blood didnt show swelling, it is very obvious to look at (think sausage fingers... how attractive )

OHforDUCKScake Sun 06-Oct-13 11:34:22

Ok candy I need more of your opinion. This morning, I decided to stop Naproxen for a few days to see if there did end up with any swelling.

However, I took my hooj Ice Watch off and noticed that there is most definitely more swelling on my left side in comparison to my right.

However, first of all could it have been like that all my life because Ive only looked now!

Second of all, there is no heat.

Third of all, whilst all my joints hurt together, i.e both wrists, both knees, both elbows, my left wrist is a deal more painful and stiff than my right. My right IS painful and stiff but shouldnt they be 'even'? I thought the eveness of the pain was a symptom of RA?

And lastly, does anyone know how to upload a photos from an iphone to MN? Then I can show you the difference in size.

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