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I had a TT last year for a small, noninvasive follicular tumour. everything went well post op, but I just haven't felt quite right since. My surgeon said that most people felt well with a TSH of around 2, and that's what he aimed for. However, my surgeon discharged me to the care of an endocronologist when I was three months post op, and my endo says that's too low and wants me to be about 5, which I currently am, with a T4 of 11. I know this is something I need to sort out with my doctor, but I'd be really interested to know what TSH level other people on levo feel well at. I'm just so tired all the time and I feel my brain has a time lag on it.
Thanks . I'm currently taking 100mcg (cut back fom the 137mcg that my surgeon had me on). Endo gave me a lecture about 'everyone thinks they need more thyroxine than they actually do' and that he considered me bang on normal with my current level, but I'm feeling disheartened at another 8 weeks like this before a re-test.
i had a total thyroid removal due to cancer and I was told to keep the cancer from returning my TSH must be kept as near to 0 as possible to prevent any cells left reproducing. So it's odd if you've had a tumor they are letting your TSH be 5 ?
Your T4 count is too low at 11. Most endocrinologists want to keep it around the 16 mark (Range around 14 to 22)
You should rally go back and discuss things with them or change your endocrinologist.
If your not on enough you will be tired all the time and the weight will creep up and it is harder to shift.
Catpark - I'm in the UK. Digred - it was all taken out. My endocronologist keeps saying that everyone WANTS to think they are hypothyroid, but they usually aren't, and that there are cardiac risks to taking too much thyroxine - which I understand, but my surgeon put me on 137 expecting it to be raised, not lowered, as he said I'd feel much better with a low TSH. Feeling a bit glum about it all, tbh. I felt so well initially, now 6 months down the line feeling worse. I was euthyroid before surgery, and my TSH then was 1.5, so its now much higher than I'm used to. Endo also suggested I hadn't been complying with treatment for my T4 to be 11, but I've never missed a dose in 6 months. But I don't think he believed me.
I had my thyroid removed in January due to papillary thyroid cancer.
After my radioactive iodine treatment I have been put on a dose of 150 mcgs of Levithyroxine. I have only been taking that amount for 3 weeks and feel fine so can't comment really but will keep an eye on this thread as my levels will be checked soon.
I had my thyroid removed about 20 years ago (due to growth - goitre). I was initially on 150mmg and this was reduced to 125mmg after a couple of years. It was then reduced to 100mmg after another couple of years and I have been on that ever since. Not sure what the results of my annual TFT's are but I have felt well (except for unrelated illnesses) ever since.