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Spoons! Support thread for CFS, ME & Lupus sufferers

(938 Posts)
Grockle Mon 24-Dec-12 23:30:26

Merry Christmas to you all.

Wishing you a happy, spoon-filled day.


Spoon Theory here

ArbitraryUsername Thu 04-Apr-13 09:59:15

My neighbour Totoro is absolutely lovely. DS2 loves it.

Also good are nausicaa, princess mononoke, Laputa: castle in the sky and arietty. The cat returns is quite fun. It's a kind of sequel to whisper of the heart but the two are very different. Whisper of the heart is a realistic romance type thing; the cat returns is a fantasy adventure. Porco rosso is about a flying pig. grin

Grave of the fireflies is incredibly sad. You will weep buckets. And it will stay with you.

Tales from earthsea isn't great, especially not if you're expecting it to be at all like the books.

CFSKate Thu 04-Apr-13 09:02:55

An article in Discover magazine about the ME drug research MEandyou are fundraising for. You might have to scroll down a bit.

fuzzpig Thu 04-Apr-13 08:35:05

The advert for it looked a bit scary blush

Any other ghibli films you particularly recommend? Makes a nice change from Disney grin

ArbitraryUsername Wed 03-Apr-13 22:29:03

Ah. We have pretty much the whole ghibli lot on DVD. However, DS2 is off nursery tomorrow and might be keen to watch Pom poko (which we don't have) while I nap on the couch.

fuzzpig Wed 03-Apr-13 20:52:52

It is all studio ghibli, there is currently one on each day at varying times. Today it was ponyo which was really lovely. Also enjoyed kiki's delivery service! Tomorrow's is Pom Poko and on Sunday it's The Cat Returns, not sure about others though. I'd not really watched much before (except spirited away and howls moving castle) but I'm really enjoying it smile

ArbitraryUsername Wed 03-Apr-13 19:36:55

There's an anime season on film4 right now? What's on? I love a bit of anime.

I just realised that we do actually have film4. I've stopped noticing channels that don't appear on the HD list because H will not watch SD TV.

fuzzpig Wed 03-Apr-13 19:28:38

I didn't know there were any on telly (we've been watching some of the anime season on film4) but I LOVE carry on screaming. "Do you mind if I smoke" hehehe

belleshell Wed 03-Apr-13 18:35:02

fuzz have you watched the carry on films over the weekend, i love em....Core strength im with you, anymore i shoulds are too much to bare at present!! Im back to work tomorrow, whicjh from a food point of view is good, because i can only have what i take...... so its 2 slices of milk roll to have with a banana, and cous cous and roast veg for my dinner!

buildingmycorestrength Wed 03-Apr-13 18:17:37

Have been quite good food-wise today. Eggs, berries, yoghurt, seeds for breakfast, veggies, rice cakes, booked eggs for lunch, salmon and veg and a bit of ride for dinner. Plus a couple of bits of dark choc and a couple of the kids sweets...grin

I can't do anything that makes my heart rate rise, really. Would be okay with stretches, I expect, but cannot wrap my brain around any additional 'shoulds' at the minute.

fuzzpig Wed 03-Apr-13 18:12:42

Funny you should mention carry on camping, I started a thread yesterday about old comedy movies as I'm trying to watch more grin

Justtired you reminded me I haven't paid for DD's yoga club yet! Her first ever after school activity, I'm not doing well at this blush

justtired Wed 03-Apr-13 18:11:38

hmmm not sure belle. im not able to do much excercise as it makes my joints worse from the RA, plus I have a dodgy knee. I am thinking to get a yoga/pilates dvd to do at home and reduce my calorie intake but its soooo hard! I need to do it though.
love the thought of carry on lunges but alas I am not allowed (see dodgy knee above) grin

belleshell Wed 03-Apr-13 18:04:18

OMG banana tealoaf as just jumped into my mouth!!

belleshell Wed 03-Apr-13 18:02:19

so justtired and core how we gonna tackle this weight loss boot camp... i have decided some exercise is better than none, so i have done sit ups..and lunges.... i was laughing doing lunges all i can think about is Barbara Windsor in carry on camping with twanging bra...

justtired Wed 03-Apr-13 14:41:40

welcome Coro flowers

sorry I havent been on for a while. Have had a hectic couple of weeks. Had visitors and paid for that afterwards, then had my babies bday (not really a baby anymore) and now im poorly from all the organising and stressing etc.
Havent done anything with the ds's these holidays so am planning to take them out for the day on the weekend. older Ds wants to start two activities a week and im eager for him too, but the money and the tirdness it will cause me is a worry, plus younger ds does baby gym and toddler group.
Can I join the weightloss camp please? I need to loose about 2 stone sad I cant get away with the 'ive just had a baby' line anymore unfortunately. firstly I need to get all this easter choc out my house as its calling me! I start off well and then loose my willpower. can you tell me about juicing please building as I have a juicer and like the idea of it.

fuzzpig Wed 03-Apr-13 14:21:11

I'm here! Very tired as we had a meeting with a benefit advisor today. Supposed to start my new hours on Monday sad

You know this thread is for complaining grockle, there's nothing wrong with venting, we all understand xx

Thanks for new thread BTW, will shuffle on over there smile

Grockle Wed 03-Apr-13 13:49:44

Sorry for my moan. I have started a separate thread about my woes & general misery so I won't keep coming back on here to complain about everything.

I also took the liberty of starting a new thread for us since this one is filling up.

New thread here

Where's Fuzz?

Grockle Wed 03-Apr-13 08:46:03

I can't help, I'm afraid, Arbitrary. I've lost a lot of weight this year but through a combination of stress, illness & not eating.

I'm missing DS but maybe it's better this way. If he stays with his Dad, maybe he'll be more settled, less anxious and happier.

I feel shit. I'm tired of never sleeping. I'm tired of shivering & having goosebumps while I'm sweating. I'm tired of feeling fluey when I don't have flu. Of having no energy or lots of pain. I can't live like this any more. I don't want it. I'm sick of fighting for help when I have no energy to even move, let alone argue my case. I want this over but I don't think I could even do that properly.

buildingmycorestrength Tue 02-Apr-13 22:13:12

I used to have lots of willpower around food. I would do juice fasts every so often with no problem and felt great on it.

Now I just don't seem to be able to get my head around it. But yes, I would do 5:2 if I thought I could make it.

ArbitraryUsername Tue 02-Apr-13 21:54:02

Well the being completely useless for anything else is generally a problem with Really Evil painkillers. You don't get drastic weight loss without losing weeks of your life!

I think people have been losing loads of weight on the 5-2 intermittent sort-of-fasting diet thing. There are threads. You eat normally 5 days and then limit yourself to 500 calories 2 days a week. You can do 4-3 if you like feeling hungry.

belleshell Tue 02-Apr-13 20:54:45

which pain killers, ive had most, ami makes me eat shit...tramadol and co codamol mean im not alert enough for work, so can only take at night...

our next door neighbour runs some web based herbal product business, there fastet seller is slimming pills but im not sure i should mix with ever other tablet i take!!! IM SO SICK OF BEEN FAT...I HAVE PUT 2 STONE ON IN 2 YEARS

ArbitraryUsername Tue 02-Apr-13 20:38:16

Ask your GP for Evil Painkillers that make it impossible to eat for weeks on end. Actually, don't do that although it would work.

buildingmycorestrength Tue 02-Apr-13 18:54:04

Not a yoga snack, obviously. A yoghurt snack. smile.

buildingmycorestrength Tue 02-Apr-13 18:45:15

Oh, belles thank you for posting that. I have gained a stone in a year due to not being able to exercise but also due to have no freaking willpower over my eating! But felt a bit like we weren't supposed to moan about that on this I'm very glad you mentioned it.

Am currently trying to eat fewer biscuits carbs and lots of protein.

Eggs and kiwi for breakfast, tuna mayo and cuke for lunch (no bread), banana and yoga snack, salmon and veg dinner. Now to get through evening in front of telly with no bad snacks... Help!

belleshell Tue 02-Apr-13 18:15:10

Right MN freinds, i have 12lb to loose in 8 weeks, other than sewing my mouth together and not been able to rely upon the fact i could exercise, any other suggestions!

Coro Mon 01-Apr-13 23:36:23

Belle- Sorry to hear your Ds is being a pain! I know that one well. There's no easy answer. My ds has extra stress happening alongside my illness and I am copping it from him as that's what Mum's do (capable or not).

Easter weekend was great, we visited my Dad and I didn't have to go far or do anything.I was even given tea in bed in the morning!!grin Im back now though and finding the cold difficult to bear. My joints are incredibly achy. Im trying not to think about the things I need to do, its overwhelming!

I hope everything with the work meeting goes ok. I think having someone there for support would be good and not defensive. Having support will help you be less anxious and able to concentrate more.

Movie and duvet days are fab. When my ds was younger I would 'watch' the movie with my eyes closed. I would wake when my Ds moved when it finished. It was a lifesaver!
Wishing more spoons for all. smile x

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