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Spoons! Support thread for CFS, ME & Lupus sufferers

(938 Posts)
Grockle Mon 24-Dec-12 23:30:26

Merry Christmas to you all.

Wishing you a happy, spoon-filled day.


Spoon Theory here

Coro Fri 29-Mar-13 06:44:42

Hi. I saw this come up on my active feeds and was so pleased! I have ME for 12 years and am a single parent. I'm all out of spoons and seeing a collection of people who understand is a relief. smile

Knowing what you need to do and being able to do them are totally different things!

Im now going to read back. I just wanted to say hi! smile

fuzzpig Fri 29-Mar-13 07:08:52

Hi coro, welcome thanks smile

icepole Fri 29-Mar-13 09:29:07

Hello Coro!

I hope they do but I feel uneasy about it. Why call HR? I am wondering if I should ask a Union Rep along. I don't want to come across as defensive but I don't want to be ganged up on either.

belleshell Fri 29-Mar-13 16:24:13

Hi Coro welcome , shame you have to be here bu tnoce to have you.

OH where a god send for me in my old job, they are there to be on your side not the employers!!

haapy spoons to you allx x

icepole Fri 29-Mar-13 18:25:12

OH have been great for me too but it's HR that will be there not OH, my depute has set this up. I don't think she is pleased but I did tell her that I was struggling and she put my timetable up anyway. I feel I have a chance of getting better from this if I am careful with my recovery.

ArbitraryUsername Fri 29-Mar-13 22:00:06

Hi Coro. Sorry to hear you're out of spoons. We can all understand that here.

Icepole: I'll PM you about what I teach. I work in HE and it's a very small, specialist subject area so too identifiable for a public thread. I hope your meeting with HR/management goes well. That sort of thing would make me dreadfully anxious. I always think, 'now what have I done wrong/forgotten/otherwise buggered up?'. I spend my working life barely getting by (at best), so I'm always waiting for disaster to hit.

belleshell Sat 30-Mar-13 17:24:50

grin to you all xxx

Fab41 Sun 31-Mar-13 13:10:05

I hope everyone is pacing themselves ok today. I had a rare night out with DH last night, but had to stand all night at the gig, so feeling very tired today and my legs are knackered. It's hard to always say no when I know it will wipe me out, and he had a great time. Just need to get through the next two weeks with ds now.

How is everyone else planning to cope with Easter holidays?

fuzzpig Sun 31-Mar-13 14:46:52

In a way holidays are easier to cope with than term time - school runs are very difficult. Thankfully my DCs have really low expectations are ok to stay in watching movies (Rise of the Guardians four days in a row, anyone?) although they do get stir crazy and fight a bit. I'm hoping that DH will take them out a bit although he's not feeling great himself. DSDs might help out though.

Back to work in 8 days, you know what, I just don't wanna sad <stamps foot>

ArbitraryUsername Sun 31-Mar-13 15:47:09

My mum and stepdad came to visit on fri/sat (I hadn't even remembered they wanted to come until they phoned to say they were on their way). We went to the cinema (say wreck it Ralph) and ate out on Friday and went to a national trust place yesterday. I was utterly exhausted last night (still am really). DS2 is vomity today though, so we're having a lazy day with the new Disney movies on demand feature of the sky box. Currently watching the rescuers down under.

Need to do some shopping tomorrow. H will want to go out somewhere, inevitably. So I'm making the most of today's lazy film watching.

belleshell Sun 31-Mar-13 18:21:02

im not sure what i was working on this am, but i have been in garden for 2 hours! i hate gardening, but its driving me mad........god help me rest of week. i also have a 14yr old who is bored, and 2 11 year olds on lap tops and 7 yr old on his tablet, oh musnt forget a 40 yr old addicted to candy crush......i wonder if they will miss me is i slope off to bed!

Fab41 Mon 01-Apr-13 11:00:21

I am missing out on the village Easter egg hunt this morning. It takes over an hour to go round the route of footpaths, so no option for an escape mid way. Sad to be having to rest at home alone.

belleshell Mon 01-Apr-13 14:46:28


why are kids such ard work, and the older they get the harder they 14 yr old as got "how to make mum feel like she is the worst mum in the world" off to a tee!

Coro Mon 01-Apr-13 23:36:23

Belle- Sorry to hear your Ds is being a pain! I know that one well. There's no easy answer. My ds has extra stress happening alongside my illness and I am copping it from him as that's what Mum's do (capable or not).

Easter weekend was great, we visited my Dad and I didn't have to go far or do anything.I was even given tea in bed in the morning!!grin Im back now though and finding the cold difficult to bear. My joints are incredibly achy. Im trying not to think about the things I need to do, its overwhelming!

I hope everything with the work meeting goes ok. I think having someone there for support would be good and not defensive. Having support will help you be less anxious and able to concentrate more.

Movie and duvet days are fab. When my ds was younger I would 'watch' the movie with my eyes closed. I would wake when my Ds moved when it finished. It was a lifesaver!
Wishing more spoons for all. smile x

belleshell Tue 02-Apr-13 18:15:10

Right MN freinds, i have 12lb to loose in 8 weeks, other than sewing my mouth together and not been able to rely upon the fact i could exercise, any other suggestions!

buildingmycorestrength Tue 02-Apr-13 18:45:15

Oh, belles thank you for posting that. I have gained a stone in a year due to not being able to exercise but also due to have no freaking willpower over my eating! But felt a bit like we weren't supposed to moan about that on this I'm very glad you mentioned it.

Am currently trying to eat fewer biscuits carbs and lots of protein.

Eggs and kiwi for breakfast, tuna mayo and cuke for lunch (no bread), banana and yoga snack, salmon and veg dinner. Now to get through evening in front of telly with no bad snacks... Help!

buildingmycorestrength Tue 02-Apr-13 18:54:04

Not a yoga snack, obviously. A yoghurt snack. smile.

ArbitraryUsername Tue 02-Apr-13 20:38:16

Ask your GP for Evil Painkillers that make it impossible to eat for weeks on end. Actually, don't do that although it would work.

belleshell Tue 02-Apr-13 20:54:45

which pain killers, ive had most, ami makes me eat shit...tramadol and co codamol mean im not alert enough for work, so can only take at night...

our next door neighbour runs some web based herbal product business, there fastet seller is slimming pills but im not sure i should mix with ever other tablet i take!!! IM SO SICK OF BEEN FAT...I HAVE PUT 2 STONE ON IN 2 YEARS

ArbitraryUsername Tue 02-Apr-13 21:54:02

Well the being completely useless for anything else is generally a problem with Really Evil painkillers. You don't get drastic weight loss without losing weeks of your life!

I think people have been losing loads of weight on the 5-2 intermittent sort-of-fasting diet thing. There are threads. You eat normally 5 days and then limit yourself to 500 calories 2 days a week. You can do 4-3 if you like feeling hungry.

buildingmycorestrength Tue 02-Apr-13 22:13:12

I used to have lots of willpower around food. I would do juice fasts every so often with no problem and felt great on it.

Now I just don't seem to be able to get my head around it. But yes, I would do 5:2 if I thought I could make it.

Grockle Wed 03-Apr-13 08:46:03

I can't help, I'm afraid, Arbitrary. I've lost a lot of weight this year but through a combination of stress, illness & not eating.

I'm missing DS but maybe it's better this way. If he stays with his Dad, maybe he'll be more settled, less anxious and happier.

I feel shit. I'm tired of never sleeping. I'm tired of shivering & having goosebumps while I'm sweating. I'm tired of feeling fluey when I don't have flu. Of having no energy or lots of pain. I can't live like this any more. I don't want it. I'm sick of fighting for help when I have no energy to even move, let alone argue my case. I want this over but I don't think I could even do that properly.

Grockle Wed 03-Apr-13 13:49:44

Sorry for my moan. I have started a separate thread about my woes & general misery so I won't keep coming back on here to complain about everything.

I also took the liberty of starting a new thread for us since this one is filling up.

New thread here

Where's Fuzz?

fuzzpig Wed 03-Apr-13 14:21:11

I'm here! Very tired as we had a meeting with a benefit advisor today. Supposed to start my new hours on Monday sad

You know this thread is for complaining grockle, there's nothing wrong with venting, we all understand xx

Thanks for new thread BTW, will shuffle on over there smile

justtired Wed 03-Apr-13 14:41:40

welcome Coro flowers

sorry I havent been on for a while. Have had a hectic couple of weeks. Had visitors and paid for that afterwards, then had my babies bday (not really a baby anymore) and now im poorly from all the organising and stressing etc.
Havent done anything with the ds's these holidays so am planning to take them out for the day on the weekend. older Ds wants to start two activities a week and im eager for him too, but the money and the tirdness it will cause me is a worry, plus younger ds does baby gym and toddler group.
Can I join the weightloss camp please? I need to loose about 2 stone sad I cant get away with the 'ive just had a baby' line anymore unfortunately. firstly I need to get all this easter choc out my house as its calling me! I start off well and then loose my willpower. can you tell me about juicing please building as I have a juicer and like the idea of it.

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