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Crippling Exhaustion(32 Posts)
Can anyone shed any light on this?
After a major life change ie new home, new baby, new job, I am incredibly functional and energised, but after a couple of months I slip back into such exhaustion that it's disabling. I can barely function, even minor things become mammoth tasks. Going to a superkarket wipes me out for the day, can't do more than 20 minutes of activity a day, I stagger home from from work feeling vulnerable because I feel so out of it. Come dinner time I am so tired the thought of cooking makes me want to cry. I am so overwhelmed with tiredness I have no patience with my children, just keeping going and staying out of bed takes every ounce of 'me' that I have, I have nothing left for anyone or anything else. My voice often changes, I don't have the energy to talk so my voice becomes monotone or I mumble as if drunk and struggle to string a sentence together
It's awful and I feel like I am just half living my life
Why is this happening?
Hi Dude, I have suffered with Thyroid problems for several years now (well probably most of my life, now I know the symptoms).
My doctor was great at diagnosing my 'Hyperthyroid' a few years ago and gave me medication, but when I found a natural alternative medicine, which worked better, it was not believed by the Endocrinologist, who said I had no thyroid problem and wouldn't see me again...so I was left to look after myself.
Since then, about a year ago a went 'Hypothyroid'..again have received no help (apart from laxatives!!), despite depression, lethargy, constipation, feeling cold all the time (with an occasional episode of Hyperthyroid again).
I found, after constantly looking for answers, a book called 'The Iodine Crisis' by Lynne Farrow. It seems Iodine deficiency (which most people, including doctors, seem to think doesn't exist, but actually is a massive problem...there's a tiny, tiny bit in table salt and that's about it, unless you eat a Japanese diet!) causes Thyroid problems (amongst many other diseases) including tumors.
I've been following the Iodine protocol (which includes supporting nutritional supplements and unrefined 'Celtic' salt) for 3 weeks now and am feeling SO much better. My eyebrows are growing back at the sides. Lethargy and depression reduced considerably. My cold hands and feet (had since a child) are now warm. No more constipation. I can think straight and actually interested in doing things... I have motivation again!
The book also has reports of how on following the protocol, Thyroid tumors have shrunk and disappeared. I really recommend reading this book. Wish I could recommend an actual medical professional to visit, but can't. This books advice has helped me and I'm sure it could help you.
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Hi everyone .... really interesting reading your experiences with hyperparathyroidism .... i was diagnosed a year ago , took 4 months to see specialist , he said i wasn't ill enough do warranty surgery even tho they found tumour told me to go on holiday and come back in six months(helpful) , which has now turned into 12 months (fantastic) ... at the mo seeking 2nd opinion ... trying to work out which is best hosp that specialises in this field if anyone has any ideas .... don't want to waste anymore of my time or theirs ...been feeling crap for couple of years now at least and just getting worse ... lethargy, pain, nausea, no energy/enthusiasm, constant peeing,memory loss etc etc ....sorry do't want to bore you with anymore or bring you down ...if anyone has a clue of descent hosp/specialist would be much appreciated .... hope you guys are having better treatment than me.
Rough, when I am well enough, I walk (the dog helps with this!), take DS to the park etc and I have a physical job.
I don't do other exercise, mainly because I can't... after a day at work and sorting DS, I am exhausted & crawl up the stairs to bed often at 6pm. I cannot do anything more - not even paperwork that is required for work. So no, I don't exercise.
I did try pilates for a while and that was good - it is meant to strengthen your core without putting stresses on your muscles & joints. Maybe you could try that? I also love swimming but rarely go these days.
I have CFS / ME, and possible Fibro as well, waiting to see specialist for diagnosis. (Main difference between the two is fibro involves higher pain levels)
Go back and see another GP. It's worth having all the blood tests done again, and then request a referral to a fatigue management center if they're all negative. Know how horrible it is, my sympathies.
That sounds rotten Grockle lots to contend with. Have started another thread as trying to lose weight but I'm not supposed to run, do Zumba or yoga etc because it either puts too much pressure on joints or encourages them to overextend and slip out. Do you exercise?
Yes, I've heard of that before. I do have some of the symptoms but by no Frequenty sprain ankles & my shoulders slip out of their sockets. I do have muscle fatigue, lots of muscle & joint pain, easy bruising.
I have various other problems - Meniere's disease, lupus/ fibromyalgia... I never know if issues & problems are related to my Menieres or lupus or if it is something else.
Grockle - lots of hypermobile people are hypermobile with no probs, they're just 'bendy' IYSWIM. It can cause pain, fatigue, things like upset tummies etc when it's hypermobility syndrome (can't remember the proper name - is it Ehlers-Danlos 3??? Might have made that up).
Squashed, do go to your GP. There are lots of things that can cause this & some are relatively easy to fix. And smiling's link is a good one if you're in need of support & sympathy. We all suffer crippling exhaustion for various reasons.
I'm hypermobile too. I don't think I've ever thought about it in relation to my being ill.
hypermobility runs in my family too, I don't know if I have it but I know I really struggle with poor posture, unless I am consciously thinking about it my spine just slumps, a yoga instructor once thought I had a curvature of the spine. It just doesn't want to stay upright and straight.
I can't do exercise, I would have loved to have continued with yoga but any regular exercise other than walking leaves me in pain and really 'out of sorts' for days. I can swim a couple of laps but then need a nap! My kids want me to take them swimming, I just can't face it. I'd worry about getting them home again I would be so tired afterwards.
Once the festive season is over I am going to phone my GP. I struggled doing simple maths yesterday I was so tired, all I had to do was think of £5 as 500p and halve it! I somehow ended up with 1200. I am not a stupid person, but I get so tired I become so simple minded, it's awful
I feel the same. Will keep an eye on this thread. I have hypermobility in all my joints which is causing me a lot of pain just now so don't know if it's linked.
Me too 2old I will PM you tomorrow (been on the gin...)
Best Thanks for your reply My Vit D was also 8 and on my 2nd Endo appt increased dose to 40,000'wk.
Had a Sestamibi Scan last week in nuclear medicine. Endo told me my symptoms and blood results were classic for Hyperparathyroidism and the scan was required to hopefully locate the adenomas. Blood tests etc were conclusive.
Am very lucky to have a good team
The worst thing to me is how poorly knackered and grumpy I am feeling and the abdominal probs
I will keep you updated. Please PM me if you like---feel guilty I have hijacked poor OP's post
2old , My vit D was 8! But the Endo stopped me taking it as he said it might push the calcium up. I went for an ultrasound last week and they couldn't find anything - but the Radiology consultant said it's very difficult to find with an ultrasound. It is really really crap isn't it.
I don't have much faith in this doctor as has said he is minded just to monitor the situation - FFS! I am really hoping he will change his mind next Thursday.
What type of scan did you have? Let me know how you get on - I'm really interested to find out how you feel after surgery - it sounds like a miracle cure doesn't it?
I feel the same and have gone through periods of this and feeling a bit better for years. I can't function well without a sleep at lunchtime. I keep meaning to visit my gp as thyroid problems run in our family and my sister thinks it could be this too.
I felt like this before being diagnosed with diabetes. Type one although it can happen with type twos too. Have you been extremely thirsty? Thrush? Losing weight?
BestIsWest I agree about Vit D mine was low and am now taking 40,000iu.
BTW have never felt so ill or depressed in all my life
Best would be really interested how you get on. I have had scan and am seeing surgeon on 14 Jan,
that should say 'fibromyalgia' stooped predictive text<shakes fist>
I'd Google fybromyalgia. your symptoms sound almost identical to mine. I had endless tests anaemia, thyroid etc etc which always came back normal.
It was when a friend suggested fibro that i finally found out what was wrong with me and i had something to present to the gp. Was diagnosed about 9 months later after more blood tests and other things were ruled out.
Like 2old I have hyperparathyroidism, same symptoms too. I'm seeing the Endocrinologist next week to see if he will give me the go ahead for surgery. It is worth getting your GP to check your calcium levels and also your vit. D levels.
2old Good luck with the surgery. I am crossing my fingers I'll be given the go ahead next week.
You sound just like me so exhausted I can barely function, can't be arsed attitude also bone aches nausea and indigestion. I by the way much older than you. Visited brilliant GP) who arranged blood tests and found my calcium levels high ---hyperparathyroidism, Am now awaiting simple surgery and have been assured I will feel better in hours. Just a thought.
Thanks, that's all good to know
Going to make an appointment with my GP , find out what's causing this and get my life back on track. I was diagnosed with ME in the past after a thyroid test came back negative. But then I was told I didn't have ME and I just needed to get more exercise and eat healthily. The problem is, I am too tired to cook super healthy meals and it's becoming harder and harder to eat anything that isn't pasta or rice.
This was symptom when I was diagnosed with pernicious anaemia, but agree can be a whole host of easily treated problems.
Would help if I did the link properly
If your feeling up to reading a mammoth thread, have a look at this http://www.mumsnet.com/Talk/general_health/1515890-People-with-CFS-PVFS-ME-how-did-you-get-diagnosed we all have symptoms similar to you and were a friendly bunch
You really need to get to the doctor and ask for a thyroid and B12 test
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