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Fellow Fibromyalgia MNers advice please

(54 Posts)
MrsDeterminedandSpecialMum Thu 25-Oct-12 07:23:33

I've been diagnosed with Fibromyalgia.

Is there anything in my diet I need to eat/avoid to help me feel better?

TIA

Groovee Thu 25-Oct-12 07:28:59

If you google fibromyalgia diet then there is some stuff. I have a friend who follows it and is very healthy and active compared to me.

I don't tend to think diet helps me sad I have tried. I find my attitude depends on work x

tribpot Thu 25-Oct-12 07:29:25

Yes, you may well find cutting out some of the common triggers (wheat is one) can be beneficial - this book is worth a read and there's also some information here.

MrsDeterminedandSpecialMum Thu 25-Oct-12 14:19:17

Thanks ladies. The fatigue is awful feeling sad

MrsDeterminedandSpecialMum Thu 25-Oct-12 20:26:24

Is there anything else you recommend to help especially with fatigue?

Pincushion2 Thu 25-Oct-12 21:20:59

Hi MrsDetermined - sorry to hear you have been diagnosed with this and I have nothing to add to help but I hope you don't mind me asking what your symptoms were and how you got a diagnosis? I am feeling very low at the moment - I have neutropenia (in another thread) but wonder if there is something else going on too. Thanks

MrsDeterminedandSpecialMum Thu 25-Oct-12 21:25:49

Hi.,

Well I am extremely tired even after full nights sleep. Excruciating joint pain - top of spine, lumbar spine, hips & knees, also my hands lose strength.

I have Raynards syndrome, Severe joint hypermobility both had from birth.

Mood irritability and slowed digestion.

Hth.

MrsDeterminedandSpecialMum Thu 25-Oct-12 21:27:43

Pincushion is your neutropenia treatable?

Pincushion2 Thu 25-Oct-12 21:32:39

Well for the last 2 years I have been having injections (GCSF) which are normally given to chemotherapy patients. It is literally the only thing the haematologists can think of giving me. It has given me a huge boost in that I had some really good phases but just lately I am not rallying as quickly after an injection (every fortnight) and feel dreadful - the exhaustion and headaches being the worst symptom. Fed-up!

MrsDeterminedandSpecialMum Fri 26-Oct-12 06:54:11

Being fed-up is one of my symptoms too!

MrsDeterminedandSpecialMum Sat 27-Oct-12 07:41:55

Bump anything else I can do as feel awful sad

MrsDeterminedandSpecialMum Sat 27-Oct-12 08:21:44

Pincushion I also get mood swings but its not depression it's like PMT! blush

Pincushion2 Sat 27-Oct-12 13:38:06

I don't get mood swings thankfully but when I feel at my most drained I do get irritable because I just don't have the energy to deal with even the smallest thing. Very fed up today cos feeling particularly rubbish.

mercibucket Sat 27-Oct-12 13:48:53

Did you get your t4 and t3 tested and also vitamin d? It could be worth getting both checked first. If vit d is low, a high dose supplement could help with the pain. It is often low with autoimmune conditions.

mercibucket Sat 27-Oct-12 13:48:53

Did you get your t4 and t3 tested and also vitamin d? It could be worth getting both checked first. If vit d is low, a high dose supplement could help with the pain. It is often low with autoimmune conditions.

MrsDeterminedandSpecialMum Sat 27-Oct-12 14:03:40

Pin - that is just like me irritable & snappy esp when exhausted.

Merci - I've just had full bloods taken this week. So waiting for results!

Conflugenglugen Sat 27-Oct-12 14:07:13

Exercise - but not too strenuous. Even if - and especially if - you don't feel like it. Walking is really good.

Therapy.

Conflugenglugen Sat 27-Oct-12 14:11:24

I write this as someone who was diagnosed with fibromyalgia 11 years ago. From my own experience, and from talking to other fibro sufferers - most of whom are women - I have found there is nearly always a psychological element that is asking for attention. I am not saying fibro isn't physical - heaven knows I know just how debilitating it can be. But there is something to be said for the term 'suppression' - whether it is suppressed anger, shame, or fear.

Which is why I would recommend a multi-pronged approach: dietary, physical and psychological.

MrsDeterminedandSpecialMum Sat 27-Oct-12 15:08:28

Can you explain the psychological part a bit further? As mentally I'm fine maybe a little stressed but okay other than that.

MrsDeterminedandSpecialMum Sat 27-Oct-12 15:09:01

Forgot to add my GP agrees I'm totally fine mentally.

MrsDeterminedandSpecialMum Sat 27-Oct-12 15:13:37

Can I also ask what medication you have been given? Understand if you don't want to say just curious. smile

Conflugenglugen Sat 27-Oct-12 15:38:19

If you're totally fine mentally, MrsD, then great. I'm not a fibromyalgia expert; it's just what I've found personally.

My doctor (a rheumatologist) wanted to prescribe Propanalol, but I couldn't take it because I was asthmatic. He also prescribed a very low dose of amytriptiline, which I stopped taking because it spaced me out. Both of those are used to treat anxiety and stress, and apparently the amytriptiline helps with sleep. I preferred to address the underlying causes, which in my case were emotional. My fibromyalgia is a very good indicator of when I am feeling out of control in my life and out of touch with myself. Note: I am not saying this is true for everyone else, or anyone else, for that matter.

MrsDeterminedandSpecialMum Sat 27-Oct-12 15:53:55

I know my fibromyalgia flares up when I'm stressed or exhausted.

I'm on 1000mg Naproxen a day and 30mg of Amitryptiline to help me sleep.

Pincushion2 Sat 27-Oct-12 18:56:09

Good luck with your blood test results MrsD.

I had some more done yesterday and another trip to the hospital planned for this week. Feel like I have an ongoing virus at the moment - headaches, nausea, joint pain, dizziness, lethargy etc. No end to it. Just when I think I'm starting to feel a little better it flares up again.

Sorry to hijack your thread!

MrsDeterminedandSpecialMum Sat 27-Oct-12 19:06:15

Pin - it's not hijack its helping both of us. smile

Hope you get on ok at hospital x

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