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Have recently been diagnosed with PA, not a surprise as had been advised by GP some time ago that it was likely I had it. But since DD was burn (6 months ago) the symptoms are back with a vengeance.
So have had first appt with Rheumatologist, she ordered blood tests and xrays, she wants me to start methotrexate, though she is happy for me to wait until I stop BF DD.
Although none of this is a surprise it's really playing on my mind, should I have the treatment, am I going to be able to carry on working, what effect will it all have on my ability to look after my DC.
I know no one has a crystal ball but I'd appreciate hearing some real life experiences.
I have rheumatoid arthritis which I think is similar, and my pregnancies cause flare ups for up to a year afterwards. Then things aren't so bad. Have you heard of dmards? That's what I'm on and I understand they are the predecessor to methotrexate
Thanks Hattie, am hoping that this flare up will settle as time goes on and hormones etc settle down.
Will ask cons about DMARD but she seems keen on me having methotrexate, as well as generally coping with life I have quite an active job (hospital midwife) and don't want to be struggling with work either.
I think I'm a bit freaked out by the thought that I've got this for life and just keep thinking the worst, think I need to get a bit of a grip
Totally know where u are coming from I freaked when first diagnosed. I had very limited mobility and felt a failure to my children I couldn't always take them to school. But since being on dmards and it seems the further from pregnancy I get (youngest now 18mths) I cope better. Understanding it thru reading has really helped me, changes to my lifestyle to ensure I get equal rest and activity have also helped and the appropriate use of my cocktail of drugs too - I used to avoid taking them because I didn't want to be on tablets playing silly mind games with myself, but acceptance of the pills and learning how to get the best from them helps! My rheumy time me to try these but indicated he expected me to end up on methotrexatr pretty quick but dmards have done well for me. Everyone reacts differently. You are certainly not alone. There is an excellent arthritis forum on arthritis.org they give fab advice.
Haribo, try not to worry about the future too much. It's a condition that can come and go, so in between flares you may be able to lead a normal life. I do manage to work with mine, though admittedly it is hard at the moment.
All of a sudden it switches from 'you are to young for arthritis' to 'don't you hate getting older' from people who are 15 years older than you. Grrrrr. And people will tell you all about their dodgy knee if you mention you have PsA.
I do get concerned about taking 'mega' doses of vitamins as I think getting the balance right between them can be quite tricky. I'd hate to take too much of one and find that means that I've become deficient in another or got the balance all wrong. I took mega doses of omega 3 as prescribed by a health nutritionist. Unfortunately it really upset my tummy.
I have PA and have had it since I was 21 (now 37). I also waited until the DCs were no longer breastfed before starting methotrexate but only got to 10 months as my flare up was so bad I could no longer pick them up!
I felt as you do that I was getting old very quickly, would be in a wheelchair etc etc. I don't feel like that now.
Methotrexate didn't work for me - made me feel very poorly actually (though was a great way to lose weight - lost 1 1/2 stone in five weeks!)
I am now on Enbrel. It's brill. I can do all normal things and have no pain.
Hi there, would anyone mind telling me what led to their diagnosis of PA? I've had a diagnosis of + hla b27 Ankylosing Spondylitis. The diagnoses from the rheumatologist was based on my recurrent attacks of iritis and sore joints around the pelvis, knees and heels. Lower back aches a bit too. I've recently had a seriously itchy elbow which I'm always furiously scratching and now it's looking a bit eczema like? Methotrexate has been offered to me but after reading the side effects I've decided to plod along with the ibuprofen while i'm still functioning .