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TSH 0.09 but feeling OK. Will DR reduce thyroxine?

(10 Posts)
nothinginthefridge Tue 25-Sep-12 15:08:24

I think the receptionist said 0.09 but she may have said 0.009, but whichever I have to see the Dr.

It's the first time in years I have felt OK and I'm dreading the Dr putting my dose down. I've no signs of having too much thyroxine, I'm not anxious, I'm sleeping OK, I'm not loosing weight (unfortunately).

I feel like I am being a 'proper' wife and mum at the minute and I don't want that taken away from me sad

Will I have no choice but to reduce my thyroxine? I was on 75 mcg but felt rubbish and TSH was raised so Dr put me up to 100.
TIA

frankie4 Tue 25-Sep-12 15:11:19

My TSH went down to this, with a T4 of 14.5. My dr asked me how I was feeling, and was happy about me carrying on with my dose (150).

mercibucket Tue 25-Sep-12 18:09:17

Your gp might well want to. Go armed with a copy of the Dr Toft book, understanding thyroid disorders, which you can get from large chemists or supermarkets (or try the library) as well as amazon etc. P88 says you may need your tsh suppressed to feel well and this is ok as long as t3 is in range. This book is written by a uk endo and ex-head of bta and is part of a bma range of publications.

RockinD Tue 25-Sep-12 22:06:22

Docs hate a suppressed TSH, but if you, like me, have no signs of going hyper, and believe me you would know if you were, stress this fact and stick to your guns.

A suppressed TSH is not dangerous - it's merely a sign you have enough thyroid hormones in your system.

Good luck

D

frankie4 Wed 26-Sep-12 00:51:42

What would be the main signs of going hyper?

HazleNutt Wed 26-Sep-12 09:25:15

Testing just TSH is not enough. I had quite a struggle with my endo but said that even though TSH is low, I feel fine, I have no hyper symptoms and I want my T3-T4 tested before we change anything.

frankie, in my case shaking hands, elevated heart rate, weight loss and feeling hot all the time. A lot of people also complain about anxiety.

nothinginthefridge Wed 26-Sep-12 14:52:14

Thanks everyone. Appointment with doc is tomorrow, so I'll go armed with all your responses and hopefully he will keep me on the current dose.

mercibucket Mon 01-Oct-12 16:45:18

how did it go?

nothinginthefridge Tue 02-Oct-12 16:02:25

It went really well thanks merci

Dr was completely fine with me staying on current dose as I feel well and have no symptoms of going hyper. All she said was to watch out for symptoms of going the other way and she just wants to do another blood test in 3 months time, which I think is sensible.

Was annoyed when I went to collect my prescription at Boots though as they've changed supplier again angry My dad has just had his dose reduced by 75 mcg , and I have wondered if its because he never gets his thyroxine from the same chemist. (his dr has told him there are problems at the moment with differing strengths of thyroxine) I always go to Boots and so I'm annoyed that they've changed suppliers.

frankie4 Tue 02-Oct-12 21:31:57

What is the difference between different suppliers? My levothyroxine in my cupboard are a mixture of Actavis and PL Holder Forley Genetics Ltd. Are some suppliers better than others?

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