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Negative RA results, still pains what would a rheumatologist do?

(18 Posts)
vickylou2004 Sat 17-Sep-11 22:59:30

As the subject says. If imflammation is not present, what would they then check?

shitmagnet Sun 18-Sep-11 10:50:59

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vickylou2004 Sun 18-Sep-11 12:31:47

How long did it take for the anti-CCP to become positive? And how long did you have symptoms before they got extreme?

It gradually started months ago in the bottom of my back and toes, then in the last few months in every joint, mainly in neck, spine and shoulders. Was put on anti-inflammatories for 2 weeks, kept it under control then came back. I THINK he did the CCP test well all the inflammatory tests anyway. Would a rheumy test further, is there any point going back yet if I'm not in agony?

Thanks shitmagnet smile

shitmagnet Sun 18-Sep-11 13:49:53

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vickylou2004 Sun 18-Sep-11 22:29:54

Hi shitmagnet and thanks again.

CRP and ESR were tested but no mention of anti-ccp.

I have Raynauds and since my joints have been worse I've had problems with feeling like the blood isn't circulating properly in my hands and feet.

Despite having a lie-in this weekend I woke up feeling tired and painful and rough all day. This has happened a lot recently.

My Mum has started with deformed fingers, says she's had arthritis for some time but blood tests have always been clear. Also my Dad's Mother had RA from her 30s.

No swelling but apparently it's not always the case. Toes are affected and hands and wrists only slightly.

Can I ask how old you are?

shitmagnet Sun 18-Sep-11 22:43:50

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shitmagnet Sun 18-Sep-11 22:44:43

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vickylou2004 Mon 19-Sep-11 07:27:01

Yeah the doc put me on nsaids for two weeks, finishing them about 2.5 weeks ago. I suffer more with pains when I excercise!

Hope you're not suffering too much. Do you take meds to prevent further damage?

shitmagnet Mon 19-Sep-11 11:15:39

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vickylou2004 Mon 19-Sep-11 13:46:52

I am 34. OTC? Is that a type you can take long term? As they always say that you should never use it for long don't they?

When I say excercise I mean anything physical like mowing the lawn, I can suffer the next day!

Yes your advice really helps, I really appreciate all the quick replies thankyou!

shitmagnet Mon 19-Sep-11 22:11:43

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vickylou2004 Tue 20-Sep-11 07:22:23

Thankyou for all the advice. I will let you know how I get on with the doc.

Thanks again!

grin

shitmagnet Tue 20-Sep-11 11:19:14

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vickylou2004 Tue 20-Sep-11 13:28:08

I saw the doc today and he's refered me for further tests at the hospital. Said it could take weeks! sad

With my explanation of parents with arthritis he said it gives me a strong case to delve further.

I know you're in a different country but how long did you have to wait?

shitmagnet Tue 20-Sep-11 21:28:26

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vickylou2004 Wed 21-Sep-11 07:31:26

Thankyou. So how long after you first saw the rhuemy did the ccp become positive?

vickylou2004 Wed 21-Sep-11 12:47:04

Before your diagnosis did you ever consider it to be Fibromyalgia?

Also I've just realised it could be Psoriatic arthritis as ONE of my wrists has been itchy and flaky and I put pressure on it and it's sore.

shitmagnet Wed 21-Sep-11 13:44:26

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