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Anyone have fibromyalgia

(12 Posts)
doncaster1 Sat 30-Jul-11 22:08:28

I had been told many years ago that my unexplained aches were prob fibromalgia. Not much of a problem at the time. Now I have been getting pains back and I am finding that dc hurt me when they are tactile. Am going back to doctors this week so I will mention it.
Just wondering if anyone has it and what treatment helps symptons?

Putthatbookdown Sun 31-Jul-11 12:56:18

A close friend has this:she eventually settled on acupuncture after nearly a year of meds which left her like a puffed up doll I could not believe how awful she looked Her gp started her on antidepressants which did not work -all pufffed up and then other things Trial and error Ithink there is a group on he internet so have a look

GeneralCustardsHardHat Sun 31-Jul-11 19:51:01

Ive had it for 15 years or so now there are a lot of medications available - far more than when i was first diagnosed. I have started seeing a chiropractor for a disc problem caused by moving house (whoops) and my fibro symptoms have eased off since they started messing around with the cracking and the popping and what not. Might be worth a shot if you're keen to stay off meds. It can also be helped with dietary control - i find staying away from aspartame, citrus and wheat help me no end.

Best of luck.

DoesItWearingWellies Mon 01-Aug-11 18:15:39

A bit like GeneralCustard I have had my neck manipulated (once a fortnight now) by a rheumatolgy physio as my vertebrae were out of alignment. Since then, my symptoms have improved greatly.

Also, I have found that Pregabalin (also known as Lyrica) makes me feel million times better, as does limiting my wheat and dairy intake. If possible, stay away from Amitryptaline as for myself and other sufferers I've spoken to, it makes them lethargic and doesn't really help with sleep symptoms and many feel better once coming off it (obviously this may not be the case for you, and if you want to give it a try, then by all means do!)

I also experience the pain when being touched - it almost feels like bruising at the lightest contact, but this has eased with the physio and Pregabalin.

I hope you find something that works for you!

GeneralCustardsHardHat Tue 02-Aug-11 17:52:26

doesitwearingwellies sounds like we're identical, I could have written you post. Only thing i would say though is that pregabalin (lyrica) is not without its side effects but it does work.

doncaster1 Tue 02-Aug-11 21:50:00

Thank you everyone.

helibee Wed 03-Aug-11 06:21:28

Hi Doncaster. I have severe FM and chronic fatigue. I take tramadol every day and often need dihydrocodeine as well. I tried an osteopath and chiropractor but it didn't help my pain. But a few friends I know have treatment and it helps their back pain with FM. I find hydrotherapy and massage helpful but no lasting affects. also TENS machine can be very good. My GP is looking at trying me on Pramipexole.

Do you have any other symptoms. Unfortunately FM brings with it a myriad of other things such as IBS, migraines, interstitial cystitis, intolerance of noise, extremes of temperature, insomnia, fatigue etc. Fortunately though everyone is different and for many it is very mild. My ds's nusery teacher has it and it seems to only cause her mild pain and little to no fatigue.

Your GP may want you to keep a diary of all symptoms and then assess you again. It can be very useful if you are referred to a rheumatologist as they are generally the best people for helping you to cope with FM. Also if your pain is bad then ask for a referral to a pain specialist. I assume if you were diagnosed that they did the tender point test. If not then ask the drs for one as it is part of the diagnostic criteria. I only say this as if you have something else causing the pain, having treatment for FM won't help you much.

Hope you are ok and not in too much pain. I really do sympathise. I've not had a pain free day in 11 years. Big gentle hugs x

rockinhippy Wed 03-Aug-11 12:48:52

Hi, yes I'm another sufferer - diagnosed sever ME & Fibro - for my sins hmm

good Fibromyalgia Info & Support in Here

and there is some good info here

though I wouldn't recommend the current support forum on my second link

I would like to type more but having a bad day & have just typed a long post & my fingers giving upp onme now

in short YES YES to doesitwearing and generalcustard help tips - they work for me too - though I also extend the chemical avoidance to cleaning stuff too & would also add Manual Lymphatic Drainage as another therapy that can be very hepful - gentle too smile

bacon Wed 03-Aug-11 14:12:24

On the possitive side mine flared up in my mid 20's (now 40). I was very poorly and tried all kinds of pills and alternatives however I never found any of them any help and there is little eveidence that they do anything.

The last 5 years its got so much better with great (normal) diet, hobbies and interests and good lifestyle (if a little tubby!).

I had to plough on and it was awful that I lost a lot of time to it.

Still suffer from the poor sleep and have odd days when I'm not great but in general pretty good.

I do put it down to some depression & IBS. Since sorting these out life has improved.

helibee Thu 04-Aug-11 20:52:29

Hi Doncaster, how did you get on at the drs?

doncaster1 Fri 05-Aug-11 13:42:44

Unfortunately I had to cancel appointment. Fortunately symptons have died down. Still not really sure that this is the problem as original doctor didn't do any tests. On holiday now so will visit doctors upon my return.

doncaster1 Fri 05-Aug-11 13:46:28

Helibee its interested what you say about interstitial cystitis as I am really prone to bouts of cystitis.

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