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update to I cant pee

(12 Posts)
JustCallMeGrouchy Thu 28-Apr-11 18:24:29

sorry lost my orgina thread I cant pee

But wanted to give quick update as everyone was so supportive and yes that included those that nagge dme into going .Sadly today they confirmed that due to the trauma that occured tio the spinal cord.That I will be needing a wheelchair .

Hope is that i will recover some sensations back bowel/bladder etc and will be able to stand and walk very minmal distance indoors over time .

Been a few tears but i kinda knew that this was coming so not as much a ssuprise as could have been let alone am fortunate that I live in a bungalow thats already suitable for wheelchair,and know other sin wheelchairs .

Now I just need to get in some pratice so can race my youngest hes already pretty fast .Though think some of his is baked bean powered so he has unfair advantage as i dont like them .

I am sorry Grouchy. I can't begin to imagine how you're feeling about everything, but feel free to let 'er rip here x

jeee Thu 28-Apr-11 18:33:05

I am very sorry to hear this. I didn't read your original thread, so I don't know your back story.

My sister had spinal cord damage that sounds similar to yours, acquired after an operation. She learnt to live with it, even winning a place at the Beijing paralympics. In the end she felt that she did so much as a result of her disability that it stopped being the bad thing that it was initially. This may sound revoltingly pollyannaish, which I don't want it to be. And I don't want to trivialise her or your situation.

On a practical note, I hope you are getting rehabilitation. My sister's only option at the time of the spinal cord damage was a Neuro Unit, who were good but not specialist. When she went to Stoke Mandeville a couple of years later they knew so much more about her specific problems - and were particular good at helping her continence issues. So if you're not getting this kind of rehab, please get someone to fight for it for you.

With all my best wishes for the future.

JustCallMeGrouchy Thu 28-Apr-11 18:40:35

yes neuro unit here .Stoke have no spaces though they hope to have at some point but am once a loan wheelchair sorted will be pushing for home ssince already adapted and i miss my kids ;(

chipstick10 Thu 28-Apr-11 18:41:45

so sorry grouchy, i read your original post. I pray that everything turns out happy. Hugs to you and your family.

WorzselMaamage Thu 28-Apr-11 18:44:56

Oh god, you poor thing! I hope you sue the absolute arse off the dr that told you it was constipation and that you get enough from that to buy a kick arse wheelchair!

I've wondered how you are everyday since your thread so thanksfor updating smile x

JustCallMeGrouchy Thu 28-Apr-11 18:58:59

sadly becuase the condtion is so rare it would be hard case and not got the engery for that but i shall certainly be reminding him and drs in my surgery every time i wheel in that said muscular ( but apaprentley the symptons could match it was only when the bladder issues and then lost all feeling did it become obvious that something was amiss and from then onwards I can not fault the nhs,Bar the slops i had when flat on my back that i cant forgive

Am planning some races against my son though he has had more pratice and has advantage that i swear he sometimes uses baked bean power and since i dont like them thatsx unfair advanateg

rockinhippy Fri 29-Apr-11 14:01:56

I didn't see your original post, but sorry this is the end result, though I too wish you the very best in finding your way forward from this & finding the silver lining in your current cloud

There is also a specialist spinal rehab Centre in putney, London, from memory its Putney Hospice & home - that might be worth looking into, I volunteered there many years ago in Art therapy & the patients there really did seem to rate it & another guy I knew locally swears blind they got him back on his feet again after a very severe motorcycle crash

Might be worth you asking around about other centres too - Stoke Mandeville is the first one most people think of, but I bet there are lots more, & the more lists you can get on, the quicker you may get help smile

good luck

TheHumanCatapult Wed 08-Jun-11 09:22:31

Update to my posts .I am finally going home abet ok in wheelchair but am fully mobile in it and can do everything I need to do as a single mum of 4 can not wait .

Be lots of physio etc and unlikely to ever walk again and need to self cath et ( time to now buy all those silly heel shoes that look good but impossible to walk in ).But am just so happy

But please let it serve as a warning not to ignore symptons .If mine was picked up earlier when i was complaing of extreme back pain and no history o it beore it may not have got this far or it may of no one can say but please push and get it checked out

caughtinanet Wed 08-Jun-11 09:29:09

I remember your original thread, I'm pleased to hear that you're home and sounding so positive. I hope things continue to go well.

SparkleRainbow Wed 08-Jun-11 10:27:28

Hi THC I am so glad to hear you are going home. I have been messaging you. Hope you are all set up at home, and that your mum has been coping.

You are amazing and positive, and I am, as ever in awe of you.

noddyholder Wed 08-Jun-11 11:04:45

I am so sorry what a scary outcome! You sound very positive which can only help. My dp used to work at the Wolfson Rehab for brain and spinal injuries in Wimbledon and they had some amazing results.

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