Recurrent DVT missed miscarriage

[maggie75]

sorry - long ...

I have just had an erpc for a missed miscarriage that was discovered at my 12 week scan. The pregnancy stopped at 10+3.

After diagnosis of the mmc I was having a leg scan on a separate outpatients appt in vascular surgery and they found a massive DVT at the top of my left leg. I was admitted as an emergency, they did the erpc and then began anticoagulation (clexane).

This is my 3rd DVT. I had one in my last (successful) pregnancy and was managed with clexane throughout. This pregnancy i was on 40mg clexane a day. Didnt stop the clot though.

My question is, has anyone had experience of recurrent DVT and miscarriage? They have done thrombophilia screens in the past and not found anything. Have been referred to Haematology for investigation. Will be warfarinised as of monday for 6 months + so can't TTC until that has stopped.

My DH and I are very sad about all of this. The mmc, the DVT, also have venous leg ulcer, not being able to try again and am just generally very worried about my health again. Its floored us a bit really. I have a healthy 3 yr old dd, so am very lucky in that respect.

Also, am sick of treatment without proper investigation - my mum and brother have both had DVTs as well. Has anyone gone private for investigation into clotting disorders? Am desperate for answers adn the NHS is like banging my head against a brick wall. Its taken me weeks to get diagnosed with a clot -they even missed it on a scan in A&E 2 weeks ago.

Im cross posting on 'miscarriage' in case anyone there has experience. Many thanks.

[Elibean]

I"m so sorry for your loss and awful to have health worries on top of it, not to mention the TTC delays.

I don't have any answers (though I did end up taking Clexane through both first trimesters of my successful pregnancies, due to recurring m/c prior to that - I too had a normal thrombophilia screen). Just can hear your frustration, and think if you have insurance, or are able to afford private appointment to discuss with a specialist - I, personally, would go for it. Simply because you are not feeling well looked after at the moment, have probably lost trust, and could do with some TLC from healthcare professionals - if nothing else.

I wish you rapid reassurance, and lots of luck regaining your health asap xxx

[maggie75]

Thanks for your kind words Elibean. You're right, feeling lost and helpless at the moment.

I think we will wait to see if the Haem appt comes through relatively quickly and take it from there. Private is an option, but will try the NHS just one more time - hopefully 3 DVTS and mmc will kick them into action.

One of the Gynae registrars also mentioned a condition called SLE (Systemic lupus erythematosus) to me, as apparently when Im hot I present a typical marker of the condition - a butterfly like pattern on my face. So this is another avenue to pursue to try and point the health profs in the direction of.

[Elibean]

Yes, definitely get the SLE checked out - that might well account for some of your other issues, and at least its a known quantity and has precedents for treatment!

Hope the apt. comes through fast. Meantime, amidst all the health appointments and concerns, I wish you space to grieve and recover...it makes perfect sense that you should be feeling lost and helpless atm. Let us know how you get on with the follow ups, please

[maggie75]

Thanks. Am looking forward to christmas with our DD now, hopefully will less in the new year.