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Mental health tier 4 hospitals

(16 Posts)
Elise69 Fri 14-Aug-20 15:15:43

We have an 18 year old daughter who is being referred to a Tier 4 hospital for EUPD (personality disorder). There appears to be only 3 residential ones supported by the NHS in England (one being the New Dawn in London) but there are private ones that are also used by the NHS. Does anyone have any experiences of their child going through these facilities either good or bad. Our daughter has very sadly been an inpatient for 15 months already. Any help would be greatly appreciated.

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granadagirl Fri 14-Aug-20 15:43:01

Gosh that must be so upsetting for you.
I presume she’s moved up a tier recently ?

Is she currently in a hospital and your looking to move her or nearer home ?
What area are you in ?

itsso Fri 14-Aug-20 15:54:16

I'm a mental health nurse and from my experience the tier 4 hospitals can be great. I have known of a few people to go to new dawns and they have made great progress. It gives independence and offers therapy that can not be delivered in acute wards. Good luck to you and your family, and sending socially distanced hugsthanks

Elise69 Fri 14-Aug-20 16:17:03

She has been on a acute ward since February, she turned 18 at the end of January. At the moment she is in our home town in West Sussex but the Tier 4 facilities are not local I think 2 are in London and one is further up north. We have good reviews on Milestone hospital but that is private so would have to get it funded. Its been a very difficult 15 months but hoping this will help her to recover.

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itsso Fri 14-Aug-20 19:06:14

There isn't enough unfortunately. She will get a lot more help than they can give in acute services so will be worth it. She will most likely have assessments and visits with a few to see which one she feels would be most beneficial. As long as the funding has been accepted and there is a bed available she will move very quickly.

EL8888 Fri 14-Aug-20 20:12:28

No personal experience but professional experience. She needs a hospital with smallish wards (no more than 12 beds and ideally less) and a robust psychology programme with DBT or schema therapy on offer). Good luck with it all

Elise69 Fri 14-Aug-20 21:13:03

itsso

There isn't enough unfortunately. She will get a lot more help than they can give in acute services so will be worth it. She will most likely have assessments and visits with a few to see which one she feels would be most beneficial. As long as the funding has been accepted and there is a bed available she will move very quickly.

This is what we think. So sad that this help isn't available in the acute ward. But this move we are hoping will be the start if her recovery.

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Elise69 Fri 14-Aug-20 21:19:01

EL8888

No personal experience but professional experience. She needs a hospital with smallish wards (no more than 12 beds and ideally less) and a robust psychology programme with DBT or schema therapy on offer). Good luck with it all

Thank you. A small ward would be so much better for her. At the moment she struggles when the ward gets noisy and chaotic.
She was due to have EMDR therapy but it didn't happen because her psycologist left. I really felt that that would have helped. So yes we would welcome DBT therapy.

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BlackenedMonstera Sat 15-Aug-20 20:50:38

Hi, I was at the Cassel Hospital (Tier 4 Residential PD service) for a year when I was younger. I was admitted aged 17 after 14 months on an adolescent acute unit. I cannot overstate just how much it changed my life. These days I’m a happy, well, employed parent who is educated to postgraduate level. There is hope; treatment can be transformative. Wishing all the best for your daughter.

Elise69 Sun 16-Aug-20 20:16:24

BlackenedMonstera

Hi, I was at the Cassel Hospital (Tier 4 Residential PD service) for a year when I was younger. I was admitted aged 17 after 14 months on an adolescent acute unit. I cannot overstate just how much it changed my life. These days I’m a happy, well, employed parent who is educated to postgraduate level. There is hope; treatment can be transformative. Wishing all the best for your daughter.

Thank you, I live in hope this helps her too.

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granadagirl Sun 16-Aug-20 22:31:39

I think I’d look at the smaller female wards for her age group. A hospital where they have other therapy going on in the day, so she’s not just sat waiting for the therapy they have advised her to start.

Obviously you want her as near as possible to you, but are you looking further a field also ?
What does daughter think of going further away from home?

Is your council willing to fund private sector?
Perhaps ask about that, see if it’s available

I can’t imagine the stress your under, don’t rush into it as you need the best facilities/therapy you can get for your daughter
I’ve read there’s only 55 beds tier 4 in 4 nhs hospitals

Here’s a link(you’ve probably seen it)
personalitydisorder.org.uk/services

milkysmum Sun 16-Aug-20 22:48:17

Hi. I'm sure this is being looked at, but I thought I'd ask any way- does your daughter need a hospital inpatient bed or is her team considering community residential services yet?
I manage a specialist residential rehab/ therapy service for women with EUPD in the North of England. We offer an alternative to traditional inpatient care using a trauma informed model of care and offer full DBT programme also. We are not a hospital though and cannot take detained patients. We are also a private service. Happy to pm you more details if you are interested although it may be completely wrong location!

Elise69 Mon 17-Aug-20 06:35:24

granadagirl

I think I’d look at the smaller female wards for her age group. A hospital where they have other therapy going on in the day, so she’s not just sat waiting for the therapy they have advised her to start.

Obviously you want her as near as possible to you, but are you looking further a field also ?
What does daughter think of going further away from home?

Is your council willing to fund private sector?
Perhaps ask about that, see if it’s available

I can’t imagine the stress your under, don’t rush into it as you need the best facilities/therapy you can get for your daughter
I’ve read there’s only 55 beds tier 4 in 4 nhs hospitals

Here’s a link(you’ve probably seen it)
personalitydisorder.org.uk/services

Because she is under a section 3 we have no say where she goes. However, the hospital that she is in is keen for us to be a part of the move and to find one that she is happy to go to. There are only 4 tier 4 hospitals that the nhs support and on 3 of those are residential. They are all far from us. She understands this and has accepted it I think. A small ward would definitely be better for her and one that has daily activities for her. She had a friend who has gone through the private one and it was funded by the nhs so we know that this is possible. It's just getting the current hospital to make the referral to them as opposed to any that she doesn't want to go to. It's so difficult when you loose your rights as a parent and you have no say really in what can happen.

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granadagirl Tue 18-Aug-20 17:51:31

Any news on dd new hospital?

Bollocksitshappenedagain Tue 18-Aug-20 17:58:16

@BlackenedMonstera

How long was your application process for Castell? I have someone close to me going through this at the moment and it seems very long?

From what I understand it's weekend home release - is that always the case or is it sometimes full time?

They will not be able to transport themselves independently so it will be interesting to see how that works......

Elise69 Tue 18-Aug-20 18:47:16

milkysmum

Hi. I'm sure this is being looked at, but I thought I'd ask any way- does your daughter need a hospital inpatient bed or is her team considering community residential services yet?
I manage a specialist residential rehab/ therapy service for women with EUPD in the North of England. We offer an alternative to traditional inpatient care using a trauma informed model of care and offer full DBT programme also. We are not a hospital though and cannot take detained patients. We are also a private service. Happy to pm you more details if you are interested although it may be completely wrong location!

Hi thank you, my daughter has been an inpatient for more than 15 months and currently on 2:1 arms reach. So she has to be moved to a secure hospital. She is under a section 3 at the moment.

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