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(6 Posts)
Vicx Thu 24-Jan-13 20:24:27

@loadsofchocolate it sounds like you have had an uphill struggle getting his anxieties recognised and dealt with properly.

We're just at the beginning of our plight. DD's OCD has been waxing and waning for 4 years but it's just constant at the moment. At her worse points she has only 2 hours sleep and has spent the entire night either washing her hands until they bleed or thinking about washing her hands.

She went to CAHMS at 4 years old but back in those days we marked it down to a one off episode. Went back to CAHMS at 7 years old they diagnosed her with Anxiety with OCD traits and we were there for a year but because she is my natural child and step parent adopted by my husband (whose been around since she was 7 months) they fobbed us off with an adoption social worker!!! Shocking! We stuck it out for a year but everything she suggested didn't work or produced band aid help that got worse over time quite simply because you can't fix a mental health problem like OCD with a flipping family tree and life story work!!!!

Complained bitterly to CAHMS and demanded a referral to the Tavistock only to be met with the ... Adoption, fostering and kinship care social team. Truly hacked off. We have demanded to see a psychiatrist for an assessment and diagnosis, they said they will let us know next week.

The school have been largely useless. The teacher tells me she's been fine all day but she's changed her clothes x amount of times= not fine! She's dropped from the top groups in everything to the lowest groups. Other kids say she just sits looking out of the window either worrying or tearful.

Phoned the council's Parent Partnership last week and they are coming in mid february to meet with me, class teacher and senco in school. No one has discussed school action or school action plus with me even though it's been 2 years like this and the school know how bad she is as they wrote the referral to the Tavistock.

I think the main problem is she is good at controlling it through the day and the teacher doesn't seem to know what she is looking for. Went in today with some monitoring forms - just a list of common symptoms : prolonged hand washing, wanting to change clothes, asking if it's ok if she touched something, looking at hands etc and asked the teacher to tick box when she notices her doing it.

Hoping once she gets her diagnosis it will be easier to get her the help she needs.

Loadsofchocolate Wed 23-Jan-13 20:40:09

DS was in mainstream up until a year and a half ago and it was a nightmare. Despite having an asd diagnosis and ocd traits most teachers refused to give him help as they thought there was nothing wrong with him and he was just a naughty child. Trying to get any sort of help was extremely hard work. We did manage to get some help with social groups for his asd but I really don't think they understood anything about his anxieties.

DS now goes to a special school and has an amazing teacher. It makes such a huge difference when your child is being taught by someone who has years of experience with these conditions. His teacher knows all about his problem with dirt and often talks to him about it and tries to reason with him. She also regularly keeps me up to date with any new problems he has (currently he is pulling big chunks of his hair out). We are still awaiting an official diagnosis although all the professionals he deals with seem to think he clearly has ocd.

Has your child been diagnosed yet and how do they manage at school?

Vicx Tue 22-Jan-13 22:20:54

Lovemynailstoday, Thanks for the book suggestion. Will order it on amazon.
Loadsofchocolate, I'm sooo pleased to meet you! Does your DS get any extra help at school?

Loadsofchocolate Tue 22-Jan-13 20:42:04

I have a 9 year old DS who has ASD and OCD. He has a big problem with things being dirty and contaminated. He also obsesses about disasters that might happen for example fires, earthquakes. He's had it for about 2 years.

Lovemynailstoday Tue 22-Jan-13 17:55:46

No, but I have recently read a wonderful book called Anxiety Free by Robert Leahy which I would highly recommend. There is a chapter on OCD, not specific to children though. Still, I think it makes good reading and he makes the point that a lot of new research has been done on anxiety/OCD over the past few years. I got the book from my local library.

Vicx Tue 22-Jan-13 17:36:23

Has anyone got a child with OCD? I have an 8 year old whose a washer. It's been going on for 4 years now and I could do with some online buddies that know what it's all about, either OCD adult sufferers or parents of OCD children.

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