Talk

Advanced search

Mumsnet has not checked the qualifications of anyone posting here. If you have any medical concerns we suggest you consult your GP.

Can I request a hysterectomy?

(10 Posts)
TitsalinaBumSquash Sun 25-Sep-11 11:48:03

I'm 24, I have 2 children and I want a hysterectomy for the following reasons.

I started my periods at 10, they have always been horrific to the point where I can move for pain, I bleed heavily, I sweat really foul smelling body odour, my hair falls out in great chunks and my pmt is so so bad, I fly into violent rages.

I can't have hormonal contraceptive, I have a history of blood clots on my lungs.
I had the Merina coil in for a year which improved things only very slightly. Then I fell pregnant with it in.
This was 20 weeks ago I had an early termination and I am STILL in great pain In my lower abdomen and am still bleeding on an off.
I have had scans and they can't see anything but the hospital said maybe endometriosis.

I can't like like this anymore. It's hell. I will never want anymore kids. My eldest is disabled I would never bring a child into the world I didn't have time to look after.
Can I request a hysterectomy? Will they give me one in the circs?
Any advice greatfully received. Thanks

catsareevil Sun 25-Sep-11 11:52:28

Have you asked your GP to re-refer you for treatment of the bleeding?

Hysterectomy is avoided if possible these days, but there are other options.

Probably the best thing is to go to the GP with the problem (ie the bleeding), rather than the solution that you want, IYSWIM.

TitsalinaBumSquash Sun 25-Sep-11 11:58:25

I have seen the gp loads of times and been to A&E when the pain just got so bad. I have had 5 courses of anti biotics for suspected infection.
I will be going back again in the week, I just want to get something sorted.

idlevice Sun 25-Sep-11 12:15:26

Have you not seen a gynae consultant about this? Has adenymyosis or Asherman's syndrome been mentioned? I think you would need ultrasounds or MRI to investigate fully and hormone level tests, as underlying hormonal imbalance is usually responsible for such conditions. Most "women's problems" have less drastic treatment options to try first with hysterectomy as a last resort, cos it can have long term side effects itself which you should research if you haven't already. Alternative therapies such as chinese herbs and acupuncture can be very effective in relieving symptoms if you have the time & money to invest. Hope you can get something sorted one way or the other.

margerykemp Sun 25-Sep-11 12:33:12

You sound like you have had a terrible time of it, op.

A hysterectomy is major surgery will potentially fatal long term health effects. There are different types, depending on whether they also remove the cervix and ovaries aswell. Do you realise that you would go through the menopause if you had the full removal?

What treatments have you already had? Have you been properly diagnosed? There are quite a few treatments, medically and surgically that you would most certainly want to try before going for a hysterectomy.

I am confused that you said that you cant have hormonal contraceptives but you had the minera coil. It works both hormonally (releasing progesterone), and physically (like the old copper coil). If it was safe for you to take this then it is maybe safe for you to take the mini pill or the injection/implant.

Demand that your GP makes an urgent referral to a gynacologist for a thorough investigation.

Meglet Sun 25-Sep-11 12:40:06

sad.

I will say that if you have a hysterectomy you won't be doing a thing for at least 6 weeks. I know someone who picked up their toddler in the first month and pinged her stitches open. I had to rest for 6 weeks then gradually build up over the next 6. you can MN a lot though.

SingleUse Sun 25-Sep-11 20:01:12

i am having a hysterectomy in a couple of weeks. i have had to push for it as i am only 27. i have explained for 3 years that i have no quality of life living like this.

i am scared, but hopeful i can live again xx

RandomMess Sun 25-Sep-11 20:04:09

I had endometrial ablation for periods that took over my life, def worth a try before you have a hysterectomy.

It sounds horrific and you def should be under consultant care.

TitsalinaBumSquash Mon 26-Sep-11 06:58:24

Thanks for the replies.
I spent another day in A&E yesterday because the pain was just so bad but they didn't find anything so just sent me home with more painkillers.

I know the Merina is hormone based but apparently it's safer than anything else, I'm not sure why. I have tried every other mini pill and injection/implant and all that's ever happened is I've got really Ill on them with constant heavy bleeding and pain.

I will ask for gyne federal as I've not actually been diagnosed with anything or seen anyone properly.
I'm aware hysto is a massive and risky op I was hoping to get a subtotal one so my ovaries where left.
I would just like to regain some sort of life because ATM I'm just surviving not living. sad

Tabitha99 Tue 27-Sep-11 23:20:55

Do you have a prolapsed colon? I read an article by a doc recently that 95% of his hysterectomy patients had a prolapsed colon. This puts pressure on other organs. I suffered from awful pressure in my lower abdomen and recurrent UTIs until my prolapsed was discovered. The colon was massaged back into place by a kinesiologist, but 4 days later it came down again because it was so heavy and impacted (constipation due to lack of fiber and water keeping me regular I believe). I did 3 caster oil colon cleanses - after the 2nd one, the colon moved back up itself. I knew because the nighttime pressure in my abdomen disappeared - I used to have to take paracetamol and sleep upright in bed because the pressure was so uncomfortable.

A colon cleanse seems to be too simple a solution for such a problem, but please read the article, it's worth a try. I can't believe how it has sorted out 12 years of my progressively worse problems.

I hope this helps.

This is the article: http://drhandley.com/hysterectomy.html

and this is the book on Google about prolapsed colons (page 527)

http://books.google.co.uk/books?id=I_KZnp4EDT8C&pg=PT520&lpg=PT520&dq=ripe+for+infection+urinary+tract+infections+prolapsed+transverse+colon&source=bl&ots=iqXIbzRCgW&sig=xpzANqG03EVvgr8t_6zaMW4yY3w&hl=en&ei=9NOATqmvKpS10QXJ-rG4CQ&sa=X&oi=book_result&ct=result&resnum=2&ved=0CCoQ6AEwAQ#v=onepage&q=ripe%20for%20infection%20urinary%20tract%20infections%20prolapsed%20transverse%20colon&f=false

Join the discussion

Join the discussion

Registering is free, easy, and means you can join in the discussion, get discounts, win prizes and lots more.

Register now